When I checked the weather at 5am I saw four straight days of storm clouds and lightning—-so I was not surprised when my plane was delayed, with the result that, after taking the CTA and a bus that stopped about every 2 blocks, I had to run down to the end of the Navy Pier. I was only some 17 minutes late to speak with other bloggers about the Revolution Health website (I guess I’ve kept my stamina up in keeping in step with Charlie—-maybe I will be ready to run with him when he learns to roller blade.)
The topic of the Revolution Health focus group was to talk about accessibility, usability, and more of their site (and I am curious to know what you think of it—would you use it?). Many of the focus group blogger participants mentioned that they use WebMD as a source for information about health and medicine, in part because it has been around for a long time. The issue of medication came up not only regarding getting information about different medications (here I emphasized how reading other parents’ experiences online and autistic adults’ experiences online has been invaluable to me in considering medications for Charlie) but about tracking the effects of medications on a person (one blogger proposed a widget).
Just met another autism mother—–at Diary of a Crazed Mom who is also an advocate and helps families in IEP meetings. And heard people say “my friend’s child just got diagnosed………”