• Fri, Jul 27 2007

11 hours away

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When I checked the weather at 5am I saw four straight days of storm clouds and lightning—-so I was not surprised when my plane was delayed, with the result that, after taking the CTA and a bus that stopped about every 2 blocks, I had to run down to the end of the Navy Pier. I was only some 17 minutes late to speak with other bloggers about the Revolution Health website (I guess I’ve kept my stamina up in keeping in step with Charlie—-maybe I will be ready to run with him when he learns to roller blade.)

The topic of the Revolution Health focus group was to talk about accessibility, usability, and more of their site (and I am curious to know what you think of it—would you use it?). Many of the focus group blogger participants mentioned that they use WebMD as a source for information about health and medicine, in part because it has been around for a long time. The issue of medication came up not only regarding getting information about different medications (here I emphasized how reading other parents’ experiences online and autistic adults’ experiences online has been invaluable to me in considering medications for Charlie) but about tracking the effects of medications on a person (one blogger proposed a widget).

Just met another autism mother—–at Diary of a Crazed Mom who is also an advocate and helps families in IEP meetings. And heard people say “my friend’s child just got diagnosed………”

11 hours……………..

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  • Chuck

    I worked at AOL in the heyday. Steve was/is? an excellent businessman but a poor person. Talking to him about non-business was almost impossible. He was very corporate/advertising driven, so I am sure the new call center for Revolution Health will have a wealth of corporate advertised health information, but not much else. That is how AOL sales call centered were informed.

  • http://www.autismvox.com Kristina Chew, PhD

    Chuck–have you looked at Revolution Health? What do you think?

  • Chuck

    It was to be expected

    A search on Autism provided a feed from the Mayo clinic which quoted a 1:1000 rate, only offered Psyco pharma medication for treatment and nothing else. The list of potential symptoms was poor IMHO. There were no feeds to support/major ASD organizations and the books listed I have never seen anyone recommend or read. I did look for other medical problems that I have researched in the past and found that information to be equally lacking or behind the times. I probably would not go here for a newly diagnosed condition as it is too simplistic in the information that it provided.

  • http://compostermom.blogspot.com Daisy

    I read your experience, and it reinforced my decision not to go this year, even though I wouldn’t need to fly. If I’d gone, I would have been very dependent on public transportation, and I don’t really have the knack for it, either.

  • http://www.autismvox.com Kristina Chew, PhD

    The return trip back to the airport was easier—mostly because I knew what I was doing and because there was less traffic in the downtown area. But that does not include delays like the one I’m waiting out right now at gate H-17…….

    Maybe next year?

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  • http://www.revolutionhealth.com/blogs/resilientmom Robin H. Morris

    I was asked to write for Revolution Health regarding my experiences raising a son with autism. He is 19 years old. I agree with Kristina that anecdotal experiences from other parents are invaluable.
    Sadly, autism continues to be a trial and error disease and even the medical community relies on data based information provided by parents.
    Recently I posted a story from a parent which prompted a quest for “medic-alert” bracelets for those on the spectrum.
    Was it difficult to find autism community information on the site?
    Please advise.
    Robin H. Morris

  • http://www.autismvox.com Kristina Chew, PhD

    Robin,

    I did not have difficulties finding the autism information on Revolution Health. In the focus group, we all talked about how the site might distinguish itself from other websites about health and medicine—no easy task!

  • Chuck

    I had more time to dig down into the details of the ASD at Revolution Health. Treatments go from ABA to Zinc, good and bad. The topic and news links are just more of the same old same old. I couldn’t find anything that would differentiate it from the rest of the WEB.