8 Autism Bills in California
April 4, 2008 by Kristina Chew, PhD
Filed under Health
I grew up in California and almost all of my family still lives there, and Jim and I have talked very seriously about possibly moving out west when Charlie is an adult. My dad has lived in Oakland for all but a few years of his life and has long said exasperated things about the city’s politics and politicos (and don’t get him started on Berkeley’s). On hearing about a package of eight autism bills introduced by Senate President Pro Tem Don Perata, D-Oakland, my dad (who is, by the way, a really really nice guy) said that he might have to change his mind about this particular politician. (Might.)
The April 3rd Sacramento Bee reports on the eight autism bills:
- SB 527 directs California’s Department of Developmental Services to establish a pilot project to find best practices for early “identifying, assessing and treating” children with autism.
- SB 1475 seeks to improve coordination of transitional services between regional centers and school districts for autistic children aged birth to five years old.
- SB 1563 directs two state agencies, the Department of Managed Care and the Department of Insurance, “to work to ensure that health plans and insurers provide equitable coverage for autism and other developmental disabilities.”
- AB 1872 establishes a state clearinghouse for the education of autistic students.
- AB 2302 allows teachers with “certain special education credentials” to be able to teach children with autism.
- SB 1175 seeks to expand independent living opportunities for autistic adults.
- SB 1531 calls for training for police officers and law enforcement personnel about autism.
- SB 1364, would (as noted in the San Jose Mercury News) would “declare that ASD is a public health care crisis in California and direct the Department of Public Health to make services more available to underserved communities. The Centers for Disease Control and Prevention have called autism a national public health care crisis.”
Somewhat in the tone of SB 1364, the Sacramento Bee refers to autism as a “malady” and to the “spread of autism,” both phrasings that seem—incorrectly—to suggest that autism is some like an infectious disease that is growing. Autism is not something that you can (like the measles) catch. And while it might seem that the numbers of autistic persons has grown tremendously in recent years, it is important to note that there are more autistic adults out there than might be thought, and that have an actual autism diagnosis.
A package of autism bills was passed in September of 2007 here in New Jersey where I currently live; one the bills established a task force on adults with autism. Of those appointed to the task force on April 2nd by New Jersey’s Governor Jon S. Corzine, was Ari Ne’eman, the President of the Autistic Self-Advocacy Network. It would certainly mean a great deal to me if California also had a task force on issues pertaining to adults with autism, as Charlie will be an adult if and by the time we might live in California—and there is a lot to consider and plan ahead for. My dad (and an aunt and a cousin or two) are keeping track.















Haven’t looked closely at the CA bills but,
LOL–I would be very interested in your Dad’s opinion of Sen. Perata (just kidding, a little) –because Don Perata was my high school’s civics teacher and was considered a really “cool” guy way back in the way back. One of those small world kind of things.
Suppose these three hypotheses turn out to be true:
1) Genetic predisposition + HHV-6 = Chronic Fatigue Syndrome
2) Genetic predisposition + HHV-6 = MS
3) Genetic predisposition + HHV-6 = autism
Wouldn’t that suggest that there is potentially a contagious element in all three of these problems/issues?
There is a growing amount of evidence to support 1 and 2.
As for the autism-HHV-6 link, here’s a start:
http://members.jorsm.com/~binstock/hhv6.htm
And there is a discussion of autism and HHV-6 in the forum section of this HHV-6 site:
http://www.hhv-6foundation.org/
I’m not sure if I quite understand the English subtleties (norwegian) and the words “health care crisis” right now, but from my perspective it seems like a “care crisis” for autism is something that might have existed for a long time, unrecognized. It doesn’t seem to implicate that there’s any epidemic.
I get the impression that “[treatment/bill/whatever] for autism” easily provokes the neurodiversity community, while not “[treatment/bill/whatever] as a benefit for autistics”. I agree that the first is more appropriate while I don’t think autism acceptance has come so far that it’s a discussion worth starting.
@Regan, so far, not a very high opinion of Perata—-my dad has a lot of reservations about anyone in politics.
@Ivar T,
I do think there is a “care crisis”—-there’s been a lot of talk in the US media though of an “autism epidemic” as a “health care crisis” and I think that’s the meaning implied. Certainly there’s an ever-present need for services for autistic persons.
same thing going on in Missouri, seems like half of the bills related to disability have to do with autism