Comments on: A Very Hard Decision to Make http://www.blisstree.com/articles/a-very-hard-decision-to-make/ Family, Health, Home and Lifestyles Thu, 24 Dec 2009 06:20:27 -0500 http://wordpress.org/?v=2.8.4 hourly 1 By: Regan http://www.blisstree.com/articles/a-very-hard-decision-to-make/comment-page-1/#comment-562004 Regan Wed, 15 Oct 2008 05:39:35 +0000 http://www.autismvox.com/a-very-hard-decision-to-make/#comment-562004 Payne-Christiansen, E.M., & Sitlington, P.L. (2008). Guardianship: Its role in the transition process for students with developmental disabilities. Education and Training in Developmental Disabilities, 42, 3-19. Other articles on transition, guardianship and self-determination. Part of <a href="http://www.dddcec.org/ETMRDDV/sample/sample_issues.htm"> Education and Training in Developmental Disabilities Sample Articles</a> from Division on Developmental Disabilities, Council for Exceptional Children Payne-Christiansen, E.M., & Sitlington, P.L. (2008). Guardianship: Its role in the transition process for students with developmental disabilities. Education and Training in Developmental Disabilities, 42, 3-19.

Other articles on transition, guardianship and self-determination.

Part of Education and Training in Developmental Disabilities Sample Articles from Division on Developmental Disabilities, Council for Exceptional Children

]]> By: Autism, Representation, and the Case of Hannah Poling http://www.blisstree.com/articles/a-very-hard-decision-to-make/comment-page-1/#comment-554541 Autism, Representation, and the Case of Hannah Poling Thu, 07 Aug 2008 04:39:23 +0000 http://www.autismvox.com/a-very-hard-decision-to-make/#comment-554541 [...] aware of much, and violent toddlers trapped in the body of a 200-pound teenager (as suggested in a recent article). My son has lots, lots, and lots of struggles—piano practice this evening exhausted both of [...] [...] aware of much, and violent toddlers trapped in the body of a 200-pound teenager (as suggested in a recent article). My son has lots, lots, and lots of struggles—piano practice this evening exhausted both of [...]

]]> By: Arthur Golden http://www.blisstree.com/articles/a-very-hard-decision-to-make/comment-page-1/#comment-556652 Arthur Golden Wed, 06 Aug 2008 17:57:30 +0000 http://www.autismvox.com/a-very-hard-decision-to-make/#comment-556652 In an effort to be absolutely clear: Based on actual experience, with appropriate planning, anyone (without exception) can choose and live in one's own home, at least as safely as in any specialized group placement. I am prepared to answer any questions about this statement. Arthur Golden of Jerusalem Israel In an effort to be absolutely clear:

Based on actual experience, with appropriate planning, anyone (without exception) can choose and live in one’s own home, at least as safely as in any specialized group placement.

I am prepared to answer any questions about this statement.

Arthur Golden of Jerusalem Israel

]]> By: Kristina Chew, PhD http://www.blisstree.com/articles/a-very-hard-decision-to-make/comment-page-1/#comment-560013 Kristina Chew, PhD Tue, 05 Aug 2008 20:34:01 +0000 http://www.autismvox.com/a-very-hard-decision-to-make/#comment-560013 I think one can keep hoping and trying to do the best things so that constant supports might not be called for, but as a parent, one has to plan ahead and also factor in change. (All while factoring the reality that parents only get older, and have more needs themselves.) I think one can keep hoping and trying to do the best things so that constant supports might not be called for, but as a parent, one has to plan ahead and also factor in change. (All while factoring the reality that parents only get older, and have more needs themselves.)

]]> By: Amanda http://www.blisstree.com/articles/a-very-hard-decision-to-make/comment-page-1/#comment-552450 Amanda Tue, 05 Aug 2008 19:53:39 +0000 http://www.autismvox.com/a-very-hard-decision-to-make/#comment-552450 Odd to know at 12 whether someone would need a guardian at 18 or not. Odd to know at 12 whether someone would need a guardian at 18 or not.

]]> By: Amanda http://www.blisstree.com/articles/a-very-hard-decision-to-make/comment-page-1/#comment-556486 Amanda Tue, 05 Aug 2008 18:16:54 +0000 http://www.autismvox.com/a-very-hard-decision-to-make/#comment-556486 Yeah, and what you wrote made it sound as if constant supports are incompatible with having your own apartment or house. Yeah, and what you wrote made it sound as if constant supports are incompatible with having your own apartment or house.

]]> By: Phil Schwarz http://www.blisstree.com/articles/a-very-hard-decision-to-make/comment-page-1/#comment-559920 Phil Schwarz Tue, 05 Aug 2008 05:03:38 +0000 http://www.autismvox.com/a-very-hard-decision-to-make/#comment-559920 @Amanda: you misread me, but I admit it's easy to have done that. I said: "Each of us, as an autistic individual and family, is going to need a different mix of support. Some of our kids will be able to live in their own apartments, or as housemates in a house which does not have live-in support staff, with varying degrees of external assistance, coaching, or consulting; others will need that constantly present degree of live-in assistance and supervision." "Constantly present degree of live-in assistance and supervision" doesn't preclude such support being provided in one's own apartment. I should have made that clearer. And I wish I could think of a better word than "supervision"; what I was trying to get at was the kind of support necessary for, say, someone experiencing disruptions of attention or executive function that would make some kinds of household activity (cooking, maybe cleaning, maybe bathing, etc. etc.) either dangerous, or prone to consequential perils. Supervision has all the wrong connotations :-(. @Amanda: you misread me, but I admit it’s easy to have done that.

I said: “Each of us, as an autistic individual and family, is going to need a different mix of support. Some of our kids will be able to live in their own apartments, or as housemates in a house which does not have live-in support staff, with varying degrees of external assistance, coaching, or consulting; others will need that constantly present degree of live-in assistance and supervision.”

“Constantly present degree of live-in assistance and supervision” doesn’t preclude such support being provided in one’s own apartment. I should have made that clearer.

And I wish I could think of a better word than “supervision”; what I was trying to get at was the kind of support necessary for, say, someone experiencing disruptions of attention or executive function that would make some kinds of household activity (cooking, maybe cleaning, maybe bathing, etc. etc.) either dangerous, or prone to consequential perils.

Supervision has all the wrong connotations :-( .

]]> By: Bonnie Sayers http://www.blisstree.com/articles/a-very-hard-decision-to-make/comment-page-1/#comment-556350 Bonnie Sayers Mon, 04 Aug 2008 20:20:34 +0000 http://www.autismvox.com/a-very-hard-decision-to-make/#comment-556350 There is a lot to think about based on the post and comments here. My kids are 12 and 13. The 13 yr old will live on his own and the 12 yr old will need me to be his legal guardian. The next major step will be the high school years and his transition IEP where he will take part as well. Two more years before he goes back to school. For now it is homeschool with California Virtual Academy. He talks of wanting a job, but has a wait still. There is a lot to think about based on the post and comments here. My kids are 12 and 13. The 13 yr old will live on his own and the 12 yr old will need me to be his legal guardian. The next major step will be the high school years and his transition IEP where he will take part as well. Two more years before he goes back to school. For now it is homeschool with California Virtual Academy. He talks of wanting a job, but has a wait still.

]]> By: Amanda http://www.blisstree.com/articles/a-very-hard-decision-to-make/comment-page-1/#comment-556157 Amanda Mon, 04 Aug 2008 10:19:45 +0000 http://www.autismvox.com/a-very-hard-decision-to-make/#comment-556157 If anyone hasn't read <a href="http://www.ragged-edge-mag.com/0501/0501cov.htm">Critic of the Dawn</a>, read it. If you haven't read it, reread it. What I see in these newspaper stories is "Bruce" all over the place. That's a large part of the reason I find it so painful to read. I automatically, without meaning to, just unconsciously, identify with the person being 'placed', and I see most people in most reactions to this newspaper story identifying with the parents. And the newspaper articles want people to. And they take something out of the core of the other person and pretend it doesn't exist. It's all very instinctive for me so it's hard to put all this into words, so read the article I just linked. If anyone hasn’t read Critic of the Dawn, read it. If you haven’t read it, reread it.

What I see in these newspaper stories is “Bruce” all over the place. That’s a large part of the reason I find it so painful to read.

I automatically, without meaning to, just unconsciously, identify with the person being ‘placed’, and I see most people in most reactions to this newspaper story identifying with the parents.

And the newspaper articles want people to.

And they take something out of the core of the other person and pretend it doesn’t exist.

It’s all very instinctive for me so it’s hard to put all this into words, so read the article I just linked.

]]> By: Casdok http://www.blisstree.com/articles/a-very-hard-decision-to-make/comment-page-1/#comment-552484 Casdok Mon, 04 Aug 2008 08:53:04 +0000 http://www.autismvox.com/a-very-hard-decision-to-make/#comment-552484 It is a very very hard decision. I am well aware my son has to live with the decisions I make for him and because of this I took years looking and researching. I wanted somewhere that suited his needs, somewhere he would be happy and somewhere that would enable him to continue to grow. Somewhere with the right ethos, forward thinking and different opportunities. And as C grows I will continue looking at what are his best options. This home I have chosen is only a stepping stone, as who knows what the future holds. It is a very very hard decision. I am well aware my son has to live with the decisions I make for him and because of this I took years looking and researching. I wanted somewhere that suited his needs, somewhere he would be happy and somewhere that would enable him to continue to grow. Somewhere with the right ethos, forward thinking and different opportunities.
And as C grows I will continue looking at what are his best options. This home I have chosen is only a stepping stone, as who knows what the future holds.

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