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	<title>Comments on: Age of Diagnosis and the Apparent Increase in Autism</title>
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	<link>http://www.blisstree.com/articles/age-of-diagnosis-and-the-apparent-increase-in-autism/</link>
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		<title>By: Ed</title>
		<link>http://www.blisstree.com/articles/age-of-diagnosis-and-the-apparent-increase-in-autism/comment-page-1/#comment-559237</link>
		<dc:creator>Ed</dc:creator>
		<pubDate>Mon, 15 Dec 2008 01:06:58 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/age-of-diagnosis-and-the-apparent-increase-in-autism/#comment-559237</guid>
		<description>Dedj,

It is a matter of faith that there is no epidemic.  This is necessary for the pro-vax community since they have nothing to offer to replace vaccines as what caused the epidemic.  It does not mean that there can be nothing else, but every time there is a mention of an autism epidemic and the pro-vax community says it can&#039;t be vaccines, with nothing else to replace it vaccines rush back in to fill that void.  Faith doesn&#039;t make it.</description>
		<content:encoded><![CDATA[<p>Dedj,</p>
<p>It is a matter of faith that there is no epidemic.  This is necessary for the pro-vax community since they have nothing to offer to replace vaccines as what caused the epidemic.  It does not mean that there can be nothing else, but every time there is a mention of an autism epidemic and the pro-vax community says it can&#8217;t be vaccines, with nothing else to replace it vaccines rush back in to fill that void.  Faith doesn&#8217;t make it.</p>
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		<title>By: Dedj</title>
		<link>http://www.blisstree.com/articles/age-of-diagnosis-and-the-apparent-increase-in-autism/comment-page-1/#comment-564053</link>
		<dc:creator>Dedj</dc:creator>
		<pubDate>Sun, 14 Dec 2008 20:49:57 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/age-of-diagnosis-and-the-apparent-increase-in-autism/#comment-564053</guid>
		<description>Sorry, add &quot;, even when that some guy is an authourity&quot; to the end of the last sentence.</description>
		<content:encoded><![CDATA[<p>Sorry, add &#8220;, even when that some guy is an authourity&#8221; to the end of the last sentence.</p>
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		<title>By: Dedj</title>
		<link>http://www.blisstree.com/articles/age-of-diagnosis-and-the-apparent-increase-in-autism/comment-page-1/#comment-564052</link>
		<dc:creator>Dedj</dc:creator>
		<pubDate>Sun, 14 Dec 2008 20:48:41 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/age-of-diagnosis-and-the-apparent-increase-in-autism/#comment-564052</guid>
		<description>The main questions to ask anyone claiming increased exposure are these:

Is the definition of the condition under scrutiny the same? If so, can we expect lesser or greater exposure if all other factors were the same?

Has the opportunity for exposure remained the same? If not, have services changed? If so, are they now more delineated or inclusive?

Would the person have had proper awareness of exposure at the time? Could they be motivated to remember otherwise?

That&#039;s just a shortlist of questions to consider when reading opinion. McMasters or CASP can provide good templates for other critiques.

We need to consider all factors and not just jump to the conclusion that it must be increased incidence just because some guy took a straw poll one day.</description>
		<content:encoded><![CDATA[<p>The main questions to ask anyone claiming increased exposure are these:</p>
<p>Is the definition of the condition under scrutiny the same? If so, can we expect lesser or greater exposure if all other factors were the same?</p>
<p>Has the opportunity for exposure remained the same? If not, have services changed? If so, are they now more delineated or inclusive?</p>
<p>Would the person have had proper awareness of exposure at the time? Could they be motivated to remember otherwise?</p>
<p>That&#8217;s just a shortlist of questions to consider when reading opinion. McMasters or CASP can provide good templates for other critiques.</p>
<p>We need to consider all factors and not just jump to the conclusion that it must be increased incidence just because some guy took a straw poll one day.</p>
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		<title>By: Dedj</title>
		<link>http://www.blisstree.com/articles/age-of-diagnosis-and-the-apparent-increase-in-autism/comment-page-1/#comment-562063</link>
		<dc:creator>Dedj</dc:creator>
		<pubDate>Sun, 14 Dec 2008 20:40:00 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/age-of-diagnosis-and-the-apparent-increase-in-autism/#comment-562063</guid>
		<description>I believe his testimony too, it&#039;s what&#039;s been happening across the board, for all professions, for most neurological conditions I can think of, even those that have decreased in incidence. It&#039;s a predictable and totally expected experience. 

I&#039;ve worked with plenty of people whose care needs were met by a very small team of people, because that was the only people willing to do so. Now with the push for mainstreaming they get taken care of by their GP or down the local hospital, just like anyone else.

The question is why the exposure has changed, not wheter it has, as exposure would change for the reasons put forth by the autism community. Unless you can show that none of the other contributory factors have changed (tip : the general consensus in the autism field is that they have changed rather noticably) then your example is as much an arguement in favour of Dr Offit as it is against it.

I&#039;ve not read False Prophets yet, but I strongly doubt Offit failed to provide references. It&#039;s irrelevant anyway, he&#039;s reporting consensus, not making it.</description>
		<content:encoded><![CDATA[<p>I believe his testimony too, it&#8217;s what&#8217;s been happening across the board, for all professions, for most neurological conditions I can think of, even those that have decreased in incidence. It&#8217;s a predictable and totally expected experience. </p>
<p>I&#8217;ve worked with plenty of people whose care needs were met by a very small team of people, because that was the only people willing to do so. Now with the push for mainstreaming they get taken care of by their GP or down the local hospital, just like anyone else.</p>
<p>The question is why the exposure has changed, not wheter it has, as exposure would change for the reasons put forth by the autism community. Unless you can show that none of the other contributory factors have changed (tip : the general consensus in the autism field is that they have changed rather noticably) then your example is as much an arguement in favour of Dr Offit as it is against it.</p>
<p>I&#8217;ve not read False Prophets yet, but I strongly doubt Offit failed to provide references. It&#8217;s irrelevant anyway, he&#8217;s reporting consensus, not making it.</p>
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		<title>By: Ed</title>
		<link>http://www.blisstree.com/articles/age-of-diagnosis-and-the-apparent-increase-in-autism/comment-page-1/#comment-564061</link>
		<dc:creator>Ed</dc:creator>
		<pubDate>Sun, 14 Dec 2008 20:14:13 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/age-of-diagnosis-and-the-apparent-increase-in-autism/#comment-564061</guid>
		<description>Dedj,

In Dr Chez book &quot;Autism and its medical management&quot;, he talks about a meeting with other pediatric neurologists.  These are people who would recognize autism if they saw it.  When asked who was treating autism 20(?) years before almost noone stood.  When asked who is treating autism now, all stood.  

I believe his testimony and I do not believe Dr. Offit who offered the theory in his False Prophets book without proof.</description>
		<content:encoded><![CDATA[<p>Dedj,</p>
<p>In Dr Chez book &#8220;Autism and its medical management&#8221;, he talks about a meeting with other pediatric neurologists.  These are people who would recognize autism if they saw it.  When asked who was treating autism 20(?) years before almost noone stood.  When asked who is treating autism now, all stood.  </p>
<p>I believe his testimony and I do not believe Dr. Offit who offered the theory in his False Prophets book without proof.</p>
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		<title>By: Top Posts from the Past Two Weeks</title>
		<link>http://www.blisstree.com/articles/age-of-diagnosis-and-the-apparent-increase-in-autism/comment-page-1/#comment-564956</link>
		<dc:creator>Top Posts from the Past Two Weeks</dc:creator>
		<pubDate>Sun, 14 Dec 2008 02:36:59 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/age-of-diagnosis-and-the-apparent-increase-in-autism/#comment-564956</guid>
		<description>[...] Age of Diagnosis and the Apparent Increase in Autism A study in the December Archives of Pediatrics and General Medicine examines autism prevalence trends over time in Denmark and states that &#8220;the apparent increase in autism in recent years is in part attributable to a decrease over time in the age at diagnosis. [...]</description>
		<content:encoded><![CDATA[<p>[...] Age of Diagnosis and the Apparent Increase in Autism A study in the December Archives of Pediatrics and General Medicine examines autism prevalence trends over time in Denmark and states that &#8220;the apparent increase in autism in recent years is in part attributable to a decrease over time in the age at diagnosis. [...]</p>
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		<title>By: C. S. Wyatt</title>
		<link>http://www.blisstree.com/articles/age-of-diagnosis-and-the-apparent-increase-in-autism/comment-page-1/#comment-561314</link>
		<dc:creator>C. S. Wyatt</dc:creator>
		<pubDate>Thu, 04 Dec 2008 07:21:32 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/age-of-diagnosis-and-the-apparent-increase-in-autism/#comment-561314</guid>
		<description>@Kristina

No, no paper planned on the specific question, but it is haunting me, lately. The university wants me retested and this neuro-psych team seems to think I can&#039;t be HFA/autistic and be a student of rhetoric and philosophy. You know &quot;autistic&quot; means I can&#039;t possibly deal with abstractions. 

If I am &quot;relabeled&quot; it will be frustrating. It gets tiring to be categorized every few years. I went from remedial to gifted to &quot;average&quot; to gifted with ADDD... and so on... throughout school. The bouncing about has affected how I view the labels -- unreliable and subjective. 

Instructors do judge you by the labels. Peers also judge you. I guess I can&#039;t help but wonder how the label changes influenced my parents over the years. 

It is apparently okay to also be interested in science. The neuro-psych team seemed to approve of my scientific pursuits, as if that fit with &quot;ASD.&quot; It&#039;s as if they have a template I need to match. 

Changing criteria, changing &quot;rates&quot; of autism. We&#039;re a moving target, I guess.</description>
		<content:encoded><![CDATA[<p>@Kristina</p>
<p>No, no paper planned on the specific question, but it is haunting me, lately. The university wants me retested and this neuro-psych team seems to think I can&#8217;t be HFA/autistic and be a student of rhetoric and philosophy. You know &#8220;autistic&#8221; means I can&#8217;t possibly deal with abstractions. </p>
<p>If I am &#8220;relabeled&#8221; it will be frustrating. It gets tiring to be categorized every few years. I went from remedial to gifted to &#8220;average&#8221; to gifted with ADDD&#8230; and so on&#8230; throughout school. The bouncing about has affected how I view the labels &#8212; unreliable and subjective. </p>
<p>Instructors do judge you by the labels. Peers also judge you. I guess I can&#8217;t help but wonder how the label changes influenced my parents over the years. </p>
<p>It is apparently okay to also be interested in science. The neuro-psych team seemed to approve of my scientific pursuits, as if that fit with &#8220;ASD.&#8221; It&#8217;s as if they have a template I need to match. </p>
<p>Changing criteria, changing &#8220;rates&#8221; of autism. We&#8217;re a moving target, I guess.</p>
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		<title>By: Dedj</title>
		<link>http://www.blisstree.com/articles/age-of-diagnosis-and-the-apparent-increase-in-autism/comment-page-1/#comment-559979</link>
		<dc:creator>Dedj</dc:creator>
		<pubDate>Wed, 03 Dec 2008 14:54:39 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/age-of-diagnosis-and-the-apparent-increase-in-autism/#comment-559979</guid>
		<description>Ed - like it or not, it is niave to believe that the definition of autism has not changed since you were at school. Hell, it changed radically the year I left mine.

It is niave to believe that several legions of relevantly qualified and experienced professionals would merely accept the &#039;diagnostics&#039; idea just on someones say so. It is also niave to believe that claim is made without evidence, especially as some of that same evidence is what led to the diagnoistic criteria being what they are now.

It is incredibly niave to believe that the social and institutional changes - most noticably the drive to mainstream special needs children - have had no impact on their appearance in mainstream schools. Certainly, some of the older clients I work with would never have been mainstreamed at all, yet some of the younger clients are assisted to go to college (high school) and some eventually go to onto Uni (college) with support.

This matches my experience with dyslexia exactly - less than 10 or so out of a  600+ school in the early 90&#039;s, yet I&#039;m now in contact with twice that number, most only being assessed in adulthood regardless of being fresh from A-levels or being parents of teenagers.

I think you&#039;ve hit the nail on the head as to why the anti-vax idea still has support - people simply won&#039;t pay any attention to the evidence against them. Environmental issues may play a factor in autism , but to deny that the diagnostics have radically changed and improved is not just niave but is actually quite stupid.

This is why claims from personal experience hold little validity - anyone can claim anything, especially if they retrospectively attribute skills of perception and comprehensive experience to themselves. Your experience is exactly what you should expect it to be regardless of wheter it&#039;s &#039;diagnostics&#039; or &#039;epidemic&#039;.</description>
		<content:encoded><![CDATA[<p>Ed &#8211; like it or not, it is niave to believe that the definition of autism has not changed since you were at school. Hell, it changed radically the year I left mine.</p>
<p>It is niave to believe that several legions of relevantly qualified and experienced professionals would merely accept the &#8216;diagnostics&#8217; idea just on someones say so. It is also niave to believe that claim is made without evidence, especially as some of that same evidence is what led to the diagnoistic criteria being what they are now.</p>
<p>It is incredibly niave to believe that the social and institutional changes &#8211; most noticably the drive to mainstream special needs children &#8211; have had no impact on their appearance in mainstream schools. Certainly, some of the older clients I work with would never have been mainstreamed at all, yet some of the younger clients are assisted to go to college (high school) and some eventually go to onto Uni (college) with support.</p>
<p>This matches my experience with dyslexia exactly &#8211; less than 10 or so out of a  600+ school in the early 90&#8217;s, yet I&#8217;m now in contact with twice that number, most only being assessed in adulthood regardless of being fresh from A-levels or being parents of teenagers.</p>
<p>I think you&#8217;ve hit the nail on the head as to why the anti-vax idea still has support &#8211; people simply won&#8217;t pay any attention to the evidence against them. Environmental issues may play a factor in autism , but to deny that the diagnostics have radically changed and improved is not just niave but is actually quite stupid.</p>
<p>This is why claims from personal experience hold little validity &#8211; anyone can claim anything, especially if they retrospectively attribute skills of perception and comprehensive experience to themselves. Your experience is exactly what you should expect it to be regardless of wheter it&#8217;s &#8216;diagnostics&#8217; or &#8216;epidemic&#8217;.</p>
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		<title>By: Kristina Chew, PhD</title>
		<link>http://www.blisstree.com/articles/age-of-diagnosis-and-the-apparent-increase-in-autism/comment-page-1/#comment-559752</link>
		<dc:creator>Kristina Chew, PhD</dc:creator>
		<pubDate>Wed, 03 Dec 2008 05:40:25 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/age-of-diagnosis-and-the-apparent-increase-in-autism/#comment-559752</guid>
		<description>@CS Wyatt,
At the time when he was diagnosed, the labels meant a lot. I was really afraid (that is the best way to put it) about saying he was mentally retarded. It&#039;s perhaps ironic that there has never been a question about Charlie having the autism &quot;label&quot;---he&#039;s always been &quot;autism,&quot; not PDD-NOS, not &quot;mild autism.&quot; Again, when he was younger, these differences were something to get used to; as things have turned out, it&#039;s been a lot &quot;easier&quot; (from the perspective of getting services) that Charlie&#039;s diagnosis has not been in question.

&quot;Rhetorical implications&quot;----paper you&#039;re working on?</description>
		<content:encoded><![CDATA[<p>@CS Wyatt,<br />
At the time when he was diagnosed, the labels meant a lot. I was really afraid (that is the best way to put it) about saying he was mentally retarded. It&#8217;s perhaps ironic that there has never been a question about Charlie having the autism &#8220;label&#8221;&#8212;he&#8217;s always been &#8220;autism,&#8221; not PDD-NOS, not &#8220;mild autism.&#8221; Again, when he was younger, these differences were something to get used to; as things have turned out, it&#8217;s been a lot &#8220;easier&#8221; (from the perspective of getting services) that Charlie&#8217;s diagnosis has not been in question.</p>
<p>&#8220;Rhetorical implications&#8221;&#8212;-paper you&#8217;re working on?</p>
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		<title>By: C. S. Wyatt</title>
		<link>http://www.blisstree.com/articles/age-of-diagnosis-and-the-apparent-increase-in-autism/comment-page-1/#comment-556163</link>
		<dc:creator>C. S. Wyatt</dc:creator>
		<pubDate>Wed, 03 Dec 2008 05:16:55 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/age-of-diagnosis-and-the-apparent-increase-in-autism/#comment-556163</guid>
		<description>@Kristina

Do you think the &quot;label&quot; matters to your understanding of Charlie as your son? I don&#039;t mean that to sound rude or offensive -- I am trying to consider the &quot;rhetorical implications&quot; (uhg) of the word &quot;autistic&quot; as experienced by parents. 

I know the label matters in terms of what I can or cannot provide to students. Labels determine access to extra help, even at the university level. But, labels seem fluid, ever changing as we learn more about the mind. What is &quot;autistic&quot; today might be three or four different things in two decades.</description>
		<content:encoded><![CDATA[<p>@Kristina</p>
<p>Do you think the &#8220;label&#8221; matters to your understanding of Charlie as your son? I don&#8217;t mean that to sound rude or offensive &#8212; I am trying to consider the &#8220;rhetorical implications&#8221; (uhg) of the word &#8220;autistic&#8221; as experienced by parents. </p>
<p>I know the label matters in terms of what I can or cannot provide to students. Labels determine access to extra help, even at the university level. But, labels seem fluid, ever changing as we learn more about the mind. What is &#8220;autistic&#8221; today might be three or four different things in two decades.</p>
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