Comments on: Autistic Catatonia http://www.blisstree.com/articles/autistic-catatonia/ Family, Health, Home and Lifestyles Wed, 23 Dec 2009 20:13:26 -0500 http://wordpress.org/?v=2.8.4 hourly 1 By: carol http://www.blisstree.com/articles/autistic-catatonia/comment-page-184/#comment-565810 carol Mon, 19 Oct 2009 23:17:43 +0000 http://www.autismvox.com/autistic-catatonia/#comment-565810 Similar. Eli was mis-diagnosed at age 17 as psychotic...after 8 physicians refused to see him. Eventually a catatonic specialist diagnosed him with autistic catatonia. Carol Similar. Eli was mis-diagnosed at age 17 as psychotic…after 8 physicians refused to see him. Eventually a catatonic specialist diagnosed him with autistic catatonia.
Carol

]]> By: carol http://www.blisstree.com/articles/autistic-catatonia/comment-page-1/#comment-565809 carol Mon, 19 Oct 2009 23:15:10 +0000 http://www.autismvox.com/autistic-catatonia/#comment-565809 Thanks. Eli is now 32..but the effects of autistic catatonia are so ever present. Even with the meds, he still has cycles. When he zones out, usually a touch will bring him back. Since he has no speech, he is unable to express what happened. His understanding of spoken words is excellent, but without response from him verbally, he is unable to tell what happens before and when he goes"in his world" Carol Thanks. Eli is now 32..but the effects of autistic catatonia are so ever present. Even with the meds, he still has cycles. When he zones out, usually a touch will bring him back. Since he has no speech, he is unable to express what happened. His understanding of spoken words is excellent, but without response from him verbally, he is unable to tell what happens before and when he goes”in his world” Carol

]]> By: What’s Going to Happen After I’m Gone? http://www.blisstree.com/articles/autistic-catatonia/comment-page-1/#comment-549722 What’s Going to Happen After I’m Gone? Sat, 19 Jul 2008 16:55:19 +0000 http://www.autismvox.com/autistic-catatonia/#comment-549722 [...] episode in her family’s life, when her son (at 17) was misdiagnosed as psychotic and had autistic catatonia. She’s also written about the struggle to find and help him keep a job, and how, too often, [...] [...] episode in her family’s life, when her son (at 17) was misdiagnosed as psychotic and had autistic catatonia. She’s also written about the struggle to find and help him keep a job, and how, too often, [...]

]]> By: Carol http://www.blisstree.com/articles/autistic-catatonia/comment-page-1/#comment-555739 Carol Mon, 30 Jun 2008 00:43:43 +0000 http://www.autismvox.com/autistic-catatonia/#comment-555739 My son is now 31 yrs of age and the autistic catatonia stills controls him. He does not have the severe episodes as before. During the 8 months of severe neuroleptic malignant syndrome, ECT was the last resort to save him. I did not agree with this and continued to experiement with the different medications available. A combination was found and over the past 15yrs it has been adjusted several times. The physical result of catatonia is his twisted fingers. He holds an object to prevent further damage. Without his object, his fingers intertwine. His patterns stay apparent though...walking, repetiveness, zoning out and mutism are managable. Elis catatonic specialist has co-authored with several others specialist to produce the book covering every new aspect on catatonia/autism. Titled, From Psychopathology to Neurobiology. My son is now 31 yrs of age and the autistic catatonia stills controls him. He does not have the severe episodes as before. During the 8 months of severe neuroleptic malignant syndrome, ECT was the last resort to save him. I did not agree with this and continued to experiement with the different medications available. A combination was found and over the past 15yrs it has been adjusted several times. The physical result of catatonia is his twisted fingers. He holds an object to prevent further damage. Without his object, his fingers intertwine. His patterns stay apparent though…walking, repetiveness, zoning out and mutism are managable. Elis catatonic specialist has co-authored with several others specialist to produce the book covering every new aspect on catatonia/autism. Titled, From Psychopathology to Neurobiology.

]]> By: carol http://www.blisstree.com/articles/autistic-catatonia/comment-page-1/#comment-554283 carol Fri, 20 Jun 2008 00:24:37 +0000 http://www.autismvox.com/autistic-catatonia/#comment-554283 Just received news concerning autistic catatonia. Someone came across a note from a meeting of geneticists last year...So if you think its Downs and its not, then its 9q34.3 deletion syndrome. Basically the facial features are similar along with floppiness,sometimes heart problems etc and learning difficulties. Some of the older kids with the syndrome also have autism and catatonia,sometimes diagnosed as that, sometimes as rapid cycling bipolar disorder..or sometimes as a huge list of psychiatric illnesses. I plan o investigate this 9q34.3 deletion syndrome. Just received news concerning autistic catatonia. Someone came across a note from a meeting of geneticists last year…So if you think its Downs and its not, then its 9q34.3 deletion syndrome. Basically the facial features are similar along with floppiness,sometimes heart problems etc and learning difficulties. Some of the older kids with the syndrome also have autism and catatonia,sometimes diagnosed as that, sometimes as rapid cycling bipolar disorder..or sometimes as a huge list of psychiatric illnesses. I plan o investigate this 9q34.3 deletion syndrome.

]]> By: Kristina Chew, PhD http://www.blisstree.com/articles/autistic-catatonia/comment-page-1/#comment-558367 Kristina Chew, PhD Wed, 18 Jun 2008 16:14:57 +0000 http://www.autismvox.com/autistic-catatonia/#comment-558367 @Carol, really glad to hear that your son is doing all right and thank you for passing on the information about your book. @Carol, really glad to hear that your son is doing all right and thank you for passing on the information about your book.

]]> By: carol http://www.blisstree.com/articles/autistic-catatonia/comment-page-1/#comment-549082 carol Wed, 18 Jun 2008 12:45:14 +0000 http://www.autismvox.com/autistic-catatonia/#comment-549082 My son developed non-medical catatonia after an unknown trauma. He was in the severe stage for 8 months. After several physicians did not want to take him as a patient (stated they did not know what was wrong with him) a catatonic specialist agreed to see him. After three years of trial/error, medications to keep him functional was found. He did come to a critical stage where ECT therapy to save him was suggested. He has continued with the medications these past 15yrs and does cycle to catatonia sevaral times per day. The episodes of "spaced" lasts only minutes now. He does receive Risperdol/Ativan/Tegretol as well as other meds to keep him level. I kept journals on the prior months before/During and after catatonia was diagnosed. Also the symptoms leading up to diagnosis along with each medication tried. My hopes are for the book to help others in the situation. My son developed non-medical catatonia after an unknown trauma. He was in the severe stage for 8 months. After several physicians did not want to take him as a patient (stated they did not know what was wrong with him) a catatonic specialist agreed to see him. After three years of trial/error, medications to keep him functional was found. He did come to a critical stage where ECT therapy to save him was suggested. He has continued with the medications these past 15yrs and does cycle to catatonia sevaral times per day. The episodes of “spaced” lasts only minutes now. He does receive Risperdol/Ativan/Tegretol as well as other meds to keep him level. I kept journals on the prior months before/During and after catatonia was diagnosed. Also the symptoms leading up to diagnosis along with each medication tried. My hopes are for the book to help others in the situation.

]]> By: carol http://www.blisstree.com/articles/autistic-catatonia/comment-page-1/#comment-554230 carol Wed, 04 Jun 2008 17:48:35 +0000 http://www.autismvox.com/autistic-catatonia/#comment-554230 My book covers my sons life with Downs syndrome,Autism,non-medical Catatonia,Bi-polar,and PTSD. The catatonia was present(severe)for 8 months before he was diagnosed.The symptoms are all recorded in daily journals and each medication tried/results are recorded. My son was lucky to have one of the top catatonic specialist working with him for many years to bring him back to life. http://stores.lulu.com/carolhawk Google my name. My book covers my sons life with Downs syndrome,Autism,non-medical Catatonia,Bi-polar,and PTSD. The catatonia was present(severe)for 8 months before he was diagnosed.The symptoms are all recorded in daily journals and each medication tried/results are recorded. My son was lucky to have one of the top catatonic specialist working with him for many years to bring him back to life. http://stores.lulu.com/carolhawk Google my name.

]]> By: Bonnie Sayers http://www.blisstree.com/articles/autistic-catatonia/comment-page-1/#comment-534551 Bonnie Sayers Sun, 20 May 2007 21:19:04 +0000 http://www.autismvox.com/autistic-catatonia/#comment-534551 Hi Kristina - I found Ann's article on digg and read through many of the letters posted as well and see Ann has a link on her website that will be working tomorrow on autistic catatonia. When reading the article I thought this might be what my son Matthew will become, since he has a 50% chance of being Schizophrenic due to the father. I also thought the issues seemed to stem from the antidepressant. My son turns 11 next month and has been on Geodon for three years, but at the same dosage. We experienced side effects with Risperdal and switched. My son had PICA before meds and was eating dirt, rocks, paint chips and tree bark. I just read reviews on amazon for the book, but think I will pass on that - not much time to devote to a novel. Hi Kristina -

I found Ann’s article on digg and read through many of the letters posted as well and see Ann has a link on her website that will be working tomorrow on autistic catatonia.

When reading the article I thought this might be what my son Matthew will become, since he has a 50% chance of being Schizophrenic due to the father. I also thought the issues seemed to stem from the antidepressant.

My son turns 11 next month and has been on Geodon for three years, but at the same dosage. We experienced side effects with Risperdal and switched. My son had PICA before meds and was eating dirt, rocks, paint chips and tree bark.

I just read reviews on amazon for the book, but think I will pass on that – not much time to devote to a novel.

]]> By: Kristina Chew, PhD http://www.blisstree.com/articles/autistic-catatonia/comment-page-1/#comment-534548 Kristina Chew, PhD Sun, 20 May 2007 18:52:28 +0000 http://www.autismvox.com/autistic-catatonia/#comment-534548 Scarey to think about but I'd rather know about all of this before rather than (as in Bauer's article) after. Scarey to think about but I’d rather know about all of this before rather than (as in Bauer’s article) after.

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