Awareness & Need For a Name Change

The name “chronic fatigue syndrome” is problematic, misleading and does not adequately describe the serious and complex nature of the illness or the severe impact it has on a person’s life.
CFIDS Association of America

That is an understatement if ever I heard one. Few things are more irritating to a victim of CFS than someone saying, “Yeah, I think I had a bout of that last year. I was so sleepy all the time.” A bout of it? I would like to have just a bout of this! That would mean it would go away. /rant

So moving along, it is important to participate in the awareness campaign going on, as much as realistically possible. For some people, who are so ill they can’t sit up for more than a few minutes at a time, participation is pretty limited. Others of us can write emails or maybe make phone calls. Any action at all – one letter, one email, one phone call, will help. Never think that you can’t do anything.

Changing the name of this disease to something that explains the disorder rather than naming it for its symptoms is one of the topics the CFIDS Association of America is addressing. And this is where you jump into the never-ending circle.

You can’t name a disease until you know the medical issues pertaining to that disease and you can’t know the medical issues until you have the research, and you can’t get the research when you don’t have a disease with a real name.

Everyone scream with me now. /second rant

The Name Change page at the CFIDS Association of America explains the situation. Read it and write to your representative. There is a box to your right – it is right below our names. All you have to do is put in your zip code and you will be taken to all of the information you need to contact the people in congress that have far too much control over our health.

The Name Change Page

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