Comments on: Beyond Anecdotal Evidence: Clinical Trial of the GFCF Diet

By: Autism Vox 2008 in Review: August-December

Autism Vox 2008 in Review: August-December — Thu, 01 Jan 2009 09:02:00 +0000

[...] at the Jersey Shore. Not surprisingly, it was still impossible to avoid talk about vaccines. A new clinical trial of the GFCF diet was announced. While people have strong disagreements about the “right” of parents to [...]

By: lori

lori — Fri, 24 Oct 2008 11:33:04 +0000

For passionlessDrone – we have a GFCF 15 yr old, endless eating issues, but we have found a “chocolate sandwich creme cookie” (Can I mention trade names?) that is gluten-free/wheat-free/diary&casein-free/egg-free/trans fat-free. You think, “yeah, sure – yuck” but it tastes like the “real thing” – you cannot tell the diff!! It is sooo hard to find anything GFCF & egg free baked-goods-wise that he’d actually want to eat. We got our local Kroger’s and Whole Foods Market to carry this cookie (21 to a pkg, too!) It is the single best GFCF discovery I have ever made and I can’t fathom why it’s not more well known – the local stores can’t keep the cookies on the shelves now!

By: And when we were wrong, we promptly admitted it

And when we were wrong, we promptly admitted it — Mon, 22 Sep 2008 15:06:09 +0000

[...] biomedical, and otherwise—options that they hear about for autism. Should one try the special diet? Try brushing or a therapy dog or multivitamins? Chocolate? Invest in hours of ABA, or Floortime? [...]

By: This and Last Week’s Top Posts

This and Last Week’s Top Posts — Sun, 17 Aug 2008 19:29:53 +0000

[...] Beyond Anecdotal Evidence: Clinical Trial of the GFCF DietThe University of Texas Health Science Center at Houston has begun one of the first double-blind, clinical studies about the gfcf diet. [...]

By: Kristina Chew, PhD

Kristina Chew, PhD — Sun, 10 Aug 2008 03:35:38 +0000

@Phil,
I guess you could say, the jury’s still out about this. Charlie’s seem to have done ok with the addition of some bread products to his diet, though it’s also the case that he generally doesn’t eat a lot of wheat, by force of habit (all those years on the diet). I still cook “vaguely Asian” for him and we still don’t have a lot of bread products around the house—-it’s made going to social occasions less stressful and better for him.

Thanks for the explanation, very much.

By: Phil Schwarz

Phil Schwarz — Sun, 10 Aug 2008 02:26:31 +0000

So Charlie isn’t positive for celiac disease after all?

FWIW, my first cousin, who is the most profoundly nonautistic member of my family, has celiac disease, and has done much better by adjusting her diet correspondingly.

And Patty Clark z”l, former officer of the Greater Georgia chapter of the ASA and at the same time a vital part of the autistic self-advocacy community, finally in late middle age got the medical attention for her GI issues that she should have had as a child, and was diagnosed with celiac disease. Patty was instrumental in helping shape various aspects of Autreat, including the GF/CF options in its menu, in the years before her untimely death from a massive stroke in 2005.

(z”l is a transliterated abbreviation for “zichronah librachah”, Hebrew for “may her memory be a blessing” — a common thing in Jewish tradition to append to the name of someone whose absence from the world is sorely missed.)

By: Mary

Mary — Sun, 10 Aug 2008 01:14:41 +0000

@Emily – our son is almost 3, and still eats baby food. In fact, he still eats essentially stage 2 baby food. That’s how we get fruits/veggies into him. He was in feeding therapy for a couple of years to even get this far. Before I had him of course, I was totally convinced that my kid wouldn’t be one of those toddlers who only ate chicken nuggets and cheese pizza. Ah, to get him to eat even pizza…

By: Kristina Chew, PhD

Kristina Chew, PhD — Sat, 09 Aug 2008 22:46:39 +0000

Science Daily posts the press released about the study with this title:

“Diet And Autism Research Focuses On Which Foods May Affect Autistic Behavior”

Just found that of interest as it draws attention to the link (or not) between foods and behaviors.

By: Marita

Marita — Fri, 08 Aug 2008 23:29:57 +0000

Good to hear there are serious studies being done into these issues. I look forward to hearing the results.

By: Regan

Regan — Fri, 08 Aug 2008 21:43:36 +0000

Kristina blogged on the bone density.
http://www.autismvox.com/dont-got-milk/

I’m really interested in what Rochester reports. I passed the study protocol to some folks who have some experience, and they thought it was a good research design as proposed. FWIW–Eleanor is not on a special diet and does not have any digestive ills, apart from a lactose intolerance which both myself and my mother also had, but I’m catholic on the issue.