Comments on: CAN to be under the aegis of Autism Speaks http://www.blisstree.com/articles/can-to-be-under-the-aegis-of-autism-speaks/ Family, Health, Home and Lifestyles Fri, 25 Dec 2009 04:00:54 -0500 http://wordpress.org/?v=2.8.4 hourly 1 By: Kassiane http://www.blisstree.com/articles/can-to-be-under-the-aegis-of-autism-speaks/comment-page-1/#comment-529492 Kassiane Wed, 06 Dec 2006 03:44:21 +0000 http://www.autismvox.com/can-to-be-under-the-aegis-of-autism-speaks/#comment-529492 I criticize organizations that make it acceptable to murder your child...that call it COURAGEOUS to talk about your plans to do so. That have the cash to get around the CPS visit. Uh-huh. They can handle a little criticism. I critcize organizations that lie. I criticize organizations that promote eugenics. In short, I am against devaluing human lives because of the kind of human they happen to belong to, and will stand up against any person or group that does it, be it ONE person or an organazation one million strong-whether I do it myself, or with thousands at my back. The "voiceless" will not have the tripe Autism Speaks and their ilk pour into their mouths unchallenged-there will always be another option on the menu so long as I am alive to challenge it. I criticize organizations that make it acceptable to murder your child…that call it COURAGEOUS to talk about your plans to do so. That have the cash to get around the CPS visit. Uh-huh. They can handle a little criticism.

I critcize organizations that lie. I criticize organizations that promote eugenics.

In short, I am against devaluing human lives because of the kind of human they happen to belong to, and will stand up against any person or group that does it, be it ONE person or an organazation one million strong-whether I do it myself, or with thousands at my back.

The “voiceless” will not have the tripe Autism Speaks and their ilk pour into their mouths unchallenged-there will always be another option on the menu so long as I am alive to challenge it.

]]> By: Kristina Chew, PhD http://www.blisstree.com/articles/can-to-be-under-the-aegis-of-autism-speaks/comment-page-1/#comment-529489 Kristina Chew, PhD Wed, 06 Dec 2006 02:20:41 +0000 http://www.autismvox.com/can-to-be-under-the-aegis-of-autism-speaks/#comment-529489 Thanks for commenting here, Bob---my sense is that they are big enough to withstand criticism. Thanks for commenting here, Bob—my sense is that they are big enough to withstand criticism.

]]> By: Bob http://www.blisstree.com/articles/can-to-be-under-the-aegis-of-autism-speaks/comment-page-1/#comment-529482 Bob Wed, 06 Dec 2006 00:16:56 +0000 http://www.autismvox.com/can-to-be-under-the-aegis-of-autism-speaks/#comment-529482 Why do we critize an organization that promotes awareness and raise millions for research. Take the time and think! Why do we critize an organization that promotes awareness and raise millions for research.

Take the time and think!

]]> By: Kristina Chew, PhD http://www.blisstree.com/articles/can-to-be-under-the-aegis-of-autism-speaks/comment-page-1/#comment-529417 Kristina Chew, PhD Fri, 01 Dec 2006 01:07:07 +0000 http://www.autismvox.com/can-to-be-under-the-aegis-of-autism-speaks/#comment-529417 It's going to be interesting to see which autism organization next goes under the Autism Speaks umbrella. We'll just have to keep at it to get every voice heard---to let every voice speak. It’s going to be interesting to see which autism organization next goes under the Autism Speaks umbrella.

We’ll just have to keep at it to get every voice heard—to let every voice speak.

]]> By: Stephen Drake http://www.blisstree.com/articles/can-to-be-under-the-aegis-of-autism-speaks/comment-page-1/#comment-529412 Stephen Drake Thu, 30 Nov 2006 22:24:28 +0000 http://www.autismvox.com/can-to-be-under-the-aegis-of-autism-speaks/#comment-529412 I hate it when I'm right. In the spring I started researching Autism Speaks and was astounded by the media connections and money behing the organization. I started predicting to some folks here that it was a 300-lb gorilla that was rapidly gaining wait and could conceivably gobble up all other autism groups over time. To Gerard: It's nice that you respect those of us who fell differently about autism and what advocacy should be. But it really doesn't mean anything, since the real implication of a juggernaut like the one that is "Autism Speaks" is that the voices you respect (but disagree with) will have an even harder time getting heard over the PR blitz than is the case now. --Stephen I hate it when I’m right. In the spring I started researching Autism Speaks and was astounded by the media connections and money behing the organization. I started predicting to some folks here that it was a 300-lb gorilla that was rapidly gaining wait and could conceivably gobble up all other autism groups over time.

To Gerard:

It’s nice that you respect those of us who fell differently about autism and what advocacy should be. But it really doesn’t mean anything, since the real implication of a juggernaut like the one that is “Autism Speaks” is that the voices you respect (but disagree with) will have an even harder time getting heard over the PR blitz than is the case now.

–Stephen

]]> By: Kassiane http://www.blisstree.com/articles/can-to-be-under-the-aegis-of-autism-speaks/comment-page-1/#comment-529406 Kassiane Thu, 30 Nov 2006 18:54:44 +0000 http://www.autismvox.com/can-to-be-under-the-aegis-of-autism-speaks/#comment-529406 "I cannot view Jodie as differently abled, for I cannot view her as abled"-Alison Tepper-Singer, Vice President, AutismWeeps. Anyone who can say that about their child has long since stopped seeing them as a child, and has been seeing them as a cash cow for their new job for quite some time. ESPECIALLY so soon after the cute little drive off the George Washington Bridge comment. NO organization that thinks that is remotely acceptable speaks for me. And I'm no where near as "high functioning" as people assume. “I cannot view Jodie as differently abled, for I cannot view her as abled”-Alison Tepper-Singer, Vice President, AutismWeeps.

Anyone who can say that about their child has long since stopped seeing them as a child, and has been seeing them as a cash cow for their new job for quite some time.

ESPECIALLY so soon after the cute little drive off the George Washington Bridge comment.

NO organization that thinks that is remotely acceptable speaks for me. And I’m no where near as “high functioning” as people assume.

]]> By: Ballastexistenz http://www.blisstree.com/articles/can-to-be-under-the-aegis-of-autism-speaks/comment-page-1/#comment-529405 Ballastexistenz Thu, 30 Nov 2006 17:11:10 +0000 http://www.autismvox.com/can-to-be-under-the-aegis-of-autism-speaks/#comment-529405 I'm a "non-verbal" person who will probably "never live independently" and I can't stand Autism Speaks, nor can I stand the existence of people like me being used to justify that crap. I’m a “non-verbal” person who will probably “never live independently” and I can’t stand Autism Speaks, nor can I stand the existence of people like me being used to justify that crap.

]]> By: Lisa/Jedi http://www.blisstree.com/articles/can-to-be-under-the-aegis-of-autism-speaks/comment-page-1/#comment-529404 Lisa/Jedi Thu, 30 Nov 2006 16:08:54 +0000 http://www.autismvox.com/can-to-be-under-the-aegis-of-autism-speaks/#comment-529404 This merger of autism groups feels to me a lot like one of those mega-media corporation mergers- less message for more bucks. The autism community is extremely diverse, so it does not make me hopeful to hear that the message is being codified rather than diversified, particularly the message of Autism Speaks, which considers the sanctioning & normalising of murderous thoughts in parents to be a "hopeful" message. Autism Speaks does not speak for this autism family, with an autistic child who does not conform to the easily tossed-about "high-functioning" & "low-functioning" labels. Autism is too complicated for such labels & my son deserves better than to be represented by a group that will ignore him once he reaches adulthood & has his own opinions about himself & his autism. In a culture where money speaks louder than actions, I can only hope that those of us who do not agree with Autism Speaks' mission will be able to have our hopeful, diverse messages of acceptance heard... This merger of autism groups feels to me a lot like one of those mega-media corporation mergers- less message for more bucks. The autism community is extremely diverse, so it does not make me hopeful to hear that the message is being codified rather than diversified, particularly the message of Autism Speaks, which considers the sanctioning & normalising of murderous thoughts in parents to be a “hopeful” message. Autism Speaks does not speak for this autism family, with an autistic child who does not conform to the easily tossed-about “high-functioning” & “low-functioning” labels. Autism is too complicated for such labels & my son deserves better than to be represented by a group that will ignore him once he reaches adulthood & has his own opinions about himself & his autism. In a culture where money speaks louder than actions, I can only hope that those of us who do not agree with Autism Speaks’ mission will be able to have our hopeful, diverse messages of acceptance heard…

]]> By: Bob, Charlotte NC http://www.blisstree.com/articles/can-to-be-under-the-aegis-of-autism-speaks/comment-page-1/#comment-529400 Bob, Charlotte NC Thu, 30 Nov 2006 14:32:21 +0000 http://www.autismvox.com/can-to-be-under-the-aegis-of-autism-speaks/#comment-529400 I think the mergers on the Autism world are winderful and long over do. As a father of an autistic son, I know the money for research may not solve my issues, but may solve and prevent issues in the future. This news leaves me with three words. Excitement, Relief & Hope. Bob I think the mergers on the Autism world are winderful and long over do. As a father of an autistic son, I know the money for research may not solve my issues, but may solve and prevent issues in the future.

This news leaves me with three words.

Excitement, Relief & Hope.

Bob

]]> By: Gerard Petillo http://www.blisstree.com/articles/can-to-be-under-the-aegis-of-autism-speaks/comment-page-1/#comment-529399 Gerard Petillo Thu, 30 Nov 2006 10:11:20 +0000 http://www.autismvox.com/can-to-be-under-the-aegis-of-autism-speaks/#comment-529399 It seems like Autism Speaks has a strong momentum behind their cause along with a strong leadership at the helm, Similar to the Roman Empire. I guess we will just have to watch and see how big Autism Speaks gets. It also seems like some autistics may oppose any efforts to alter who or what they are. I respect their position and opinion. As a parent of a low functioning non verbal child who will never live independently, a parent who is concerned for the well being of my son when I leave this planet, I hope Autism Speaks can make a difference in my son’s life and the life of people who can never live alone and want this assistance. I also hope they can make a difference in the lives of those who are yet to be born. To those bloggers who oppose or mock Autism Speaks please be patient with me as I am vulnerable in this area. Gerard Petillo Parents of ANGELS Bronx NY It seems like Autism Speaks has a strong momentum behind their cause along with a strong leadership at the helm, Similar to the Roman Empire. I guess we will just have to watch and see how big Autism Speaks gets.

It also seems like some autistics may oppose any efforts to alter who or what they are. I respect their position and opinion.

As a parent of a low functioning non verbal child who will never live independently, a parent who is concerned for the well being of my son when I leave this planet, I hope Autism Speaks can make a difference in my son’s life and the life of people who can never live alone and want this assistance.

I also hope they can make a difference in the lives of those who are yet to be born. To those bloggers who oppose or mock Autism Speaks please be patient with me as I am vulnerable in this area.

Gerard Petillo
Parents of ANGELS Bronx NY

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