Comments on: Company’s calling – a journey with fibromyalgia

By: National Fibromyalgia Awareness Day : Blisstree - Family, Health, Home and Lifestyles

Tue, 12 May 2009 07:16:27 +0000

[...] quite a bit on fibromyalgia and I had featured someone with it in a Company’s Calling piece (Company’s calling – a journey with fibromyalgia ) when I wrote Help My Hurt for this network. I never knew there was a National Fibromyalgia [...]

By: Pamela Jessen

Pamela Jessen — Sun, 26 Oct 2008 22:27:22 +0000

I have been officially diagnosed with Fibro, along with a IBS, and Painful Bladder Syndrome, although I’ve been dealing with all three for many years.

What’s frustrating for me is to “look normal and healthy and fine” on the outside, and not be able to explain adequately how I feel on the inside. When every muscle and fibre is screaming in pain, but you still have to get thru the business of living each day…it takes it’s toll.

I have started on Lyrica for the Fibro and it seems to be helping a bit, after a month. My doctor and I play with the dosage on a regular basis, and I’m learning to live with the side effects (for me, weight gain, dizziness and blurry vision). Combined with pain medications, gentle exercise, massage, rest and flexibility with my schedule, I’m keeping the upper hand.

It IS nice to know there are others out there going thru the same thing. I tried joining a few support groups, but perhaps haven’t found the right one…I’m not interested in being part of a pity party, which is what most of them turned out to be.

I have been dealing with pain issues for a number of years (including internal scar tissue from multiple surgeries), and I’m determined not to give in. Thanks for letting us know we’re not alone.

By: Marijke Durning, RN

Marijke Durning, RN — Sat, 16 Feb 2008 18:43:29 +0000

Thanks John. Providing information like this is a big help to everyone.

By: John Galt

John Galt — Sat, 16 Feb 2008 03:11:45 +0000

I have read that there’s a drug that can be beneficial for fibromyalgia which is also used for Parkinson’s. pramipexole. Google it and you’ll find some interesting studies. Many have said it works for them. Here’s an excerpt from one:

Compared with patients receiving placebo, those receiving pramipexole had gradual and more significant improvements in pain, fatigue, function, and global status. At 14 weeks, the VAS pain score decreased by 36% in the pramipexole group and by 9% in the placebo group (treatment difference, -1.77 cm). Decrease in pain by at least 50% occurred in 42% of patients receiving pramipexole and in 14% of those receiving placebo.

By: Marijke Durning, RN

Marijke Durning, RN — Thu, 14 Feb 2008 12:29:22 +0000

thanks Denis – that is exactly what I hope to do with Company’s calling features. I’m glad that this helped.

Marijke

By: Denis

Denis — Thu, 14 Feb 2008 02:49:00 +0000

Nice write-up, easy to understand the problem and relate to the issues. I learned a lot about issues that are not evident at first glance.

By: Trish

Trish — Thu, 14 Feb 2008 01:43:03 +0000

Marijke,

Thank you for giving me the opportunity to share my story. I am happy to offer support to others with fibromyalgia or to answer reader’s questions.

Trish