Comments on: Company’s calling: For Grace’s founder, Cynthia Toussaint speaks out

By: Tigerlily

Tigerlily — Wed, 27 May 2009 20:32:10 +0000

Thanks for speaking out about your experience. My Mother has had RSD for 9 years now and I am her full time caregiver. I have set up a site for caregivers with tips and tricks that have helped us over the past 9 years.
Blessings

By: Gail Toussaint

Gail Toussaint — Wed, 08 Apr 2009 07:36:54 +0000

Wrote Cynthia an email. Please advise if you have any thoughts? I am sick of going to dr’s that “don’t hear me”….I feel “why did I waste my time”….I gave up on neurologists……..
Gail Guerke

By: Marijke Durning, RN

Marijke Durning, RN — Mon, 26 May 2008 23:51:07 +0000

Kristen,

Wasn’t I lucky to get in contact with her? I’m so happy she shared her story here and I hope that it will encourage others with pain to speak out.

By: Marijke Durning, RN

Marijke Durning, RN — Mon, 26 May 2008 23:50:19 +0000

Helen, thank you so much for that link. I will most definitely follow up on it. In the mean time, I do hope you will come back and contribute to our community here at Help my Hurt.

Marijke

By: Marijke Durning, RN

Marijke Durning, RN — Mon, 26 May 2008 23:49:30 +0000

Candy, thank you for checking out Help my Hurt. You would be a valuable member of our community with your background and knowledge so I do hope you will be back again.

Marijke

By: Kristen King

Kristen King — Mon, 26 May 2008 23:29:58 +0000

What a beautiful story. I’m just a wannabe dancer, not a real ballerina, but I can still imagine on some level how difficult this must have been to deal with. Thank you so much for sharing.

By: Helen Small PARC

Helen Small PARC — Mon, 26 May 2008 20:59:01 +0000

Bravo to Cynthia for speaking out on CRPS/RSD !It needs to be recognized by all physicians. Too often our HELP LINE receives comments like “It’s all in your head”, “you must be faking or malingering,” etc. RSD is rated higher than cancer pain (28) on the MCGill Pain Index as 42/50.RSD needs better treatments and doctors need to be educated. Our RIDE TO CONQUER CRPS will showcase CRPS across Canada this summer when Dr Shulman, a CRPS doctor will ride to St Johns NL. More info, visit our site http://www.rsdcanada.org.

By: Candy Asman, RN

Candy Asman, RN — Mon, 26 May 2008 18:52:35 +0000

Brava to Ms. Toussaint for becoming the voice for many women in chronic pain regardless of the etiology(ies). I, too, have labored in the vineyard of chronic pain managing my own in collaboration with other health care professionals for years and in isolation as well, wedded to bed and despair. I have witnessed and reached out to others as a volunteer and in my Professional role.
Now I have learned allopathic/traditional methods and complementary/alternative means to take the edge off. I have learned coping skills and pain management tools and that “…together we can do what we cannot do alone.” The pain of Fibromyalgia and failed back surgery syndrome never leave me, I am not yet pain free. For Grace, is literally is a place to go, to share and listen and heal! It has always been a question which was worse — the isolation of chronic pain and disability or the pain itself. Again, Ms. Toussaint, on behalf of women who walk with you literally and figuratively, thank you for your courage, effort and your example.