Dear Kendra: Hypoplastic left heart syndrome and roller coasters?

Thanks to Rita- we have another great question! So here is our Dear Kendra for the weekend.

Just curious if roller coaster’s are out for all children with congenital heart defects? My son has Hypoplastic Left Heart Syndrome (HLHS) and is getting to the age where he is asking to ride the more adult, scarier rides. Let me know if anyone out there has HLHS or a child with HLHS and share your experience.

Thanks

Rita- Thanks for the question again. Roller coasters… ahhh! I personally find them very scary and the thought of my kids getting on them is even scarier, but for a parent that has a heart defect… I can not even imagine.

Yes, children with Hypoplastic Left Heart Syndrome (HLHS) have many of chronic issues and need to be on many medications and plenty of follow up visits following surgery. I searched and searched… I found a mixed bag of advice. There are many children that are living to live, meaning they ride the rides and do what pleases them. Personally, I think there is some truth to this way of life.

I also found some threads stating that kids with HLHS should not ride roller coasters and thrill seeking rides. I also found some indications of doctors and cardiologists stating that children with HLHS should not take such risks.

There is no strong answer and no definitive right or wrong. My advice is to speak with your cardiologist and follow up with all concerns and worries, as well as worries from your son, and come to a decision that both you and your son can live with. How is he doing? Has he had success? Thanks again for your concerns and your questions, hope you are having a great summer!

Thanks,

Kendra