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	<title>Comments on: Does Your Child Know She or He is Autistic?</title>
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	<link>http://www.blisstree.com/articles/does-your-child-know-she-or-he-is-autistic/</link>
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		<title>By: Tracy London</title>
		<link>http://www.blisstree.com/articles/does-your-child-know-she-or-he-is-autistic/comment-page-2/#comment-565212</link>
		<dc:creator>Tracy London</dc:creator>
		<pubDate>Fri, 01 May 2009 22:10:43 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/does-your-child-know-she-or-he-is-autistic/#comment-565212</guid>
		<description>My seven year old autistic son wanted to know if he was &quot;normal&quot;.  I said he was and then later asked him why he wanted to know.  He said, &quot;Because I know everything.&quot;  I was worried that he thought being different was bad and instead he saw deviating from &quot;normal&quot; was a good thing.  I replied by saying, &quot;Oh, you mean that you are above-average.  People can be &quot;normal&quot; and be below-average, average or above-average.  I know it was a dodge and I am going to have &quot;the discussion&quot; with him very soon.  It is just that he still has some auditory processing issues and at times I get scared he won&#039;t understand.  He has both a photographic visual memory and and auditory memory, but beyond that, I swear this kid is psychic when it comes to emotions.  There is a lot he knows or questions, but doesn&#039;t express.  I know it has impacted his self-esteem.  At five years old he tearfully asked me why I would even want him.  He has been obsessed with the story of Pinnochio from day one.  Had us read it to him every night for two years.  I think all the therapies he&#039;s had since the age of three have made him feel as if he isn&#039;t a &quot;real boy.&quot;  Happily, he is doing so great now.  He is doing well in a typical first grade class and having lots of play dates.  What frustrates me even more than the other kids some times are the adults who throw labels around without asking me what I&#039;ve actually told my son.  If I know anything about Autism it is that it is so damn individual.  I am all for throwing labels around to get services, but at the end of the day our children are absolutely unique - Autistic and typical.  I think everyone could do with a huge dose of sensitivity.</description>
		<content:encoded><![CDATA[<p>My seven year old autistic son wanted to know if he was &#8220;normal&#8221;.  I said he was and then later asked him why he wanted to know.  He said, &#8220;Because I know everything.&#8221;  I was worried that he thought being different was bad and instead he saw deviating from &#8220;normal&#8221; was a good thing.  I replied by saying, &#8220;Oh, you mean that you are above-average.  People can be &#8220;normal&#8221; and be below-average, average or above-average.  I know it was a dodge and I am going to have &#8220;the discussion&#8221; with him very soon.  It is just that he still has some auditory processing issues and at times I get scared he won&#8217;t understand.  He has both a photographic visual memory and and auditory memory, but beyond that, I swear this kid is psychic when it comes to emotions.  There is a lot he knows or questions, but doesn&#8217;t express.  I know it has impacted his self-esteem.  At five years old he tearfully asked me why I would even want him.  He has been obsessed with the story of Pinnochio from day one.  Had us read it to him every night for two years.  I think all the therapies he&#8217;s had since the age of three have made him feel as if he isn&#8217;t a &#8220;real boy.&#8221;  Happily, he is doing so great now.  He is doing well in a typical first grade class and having lots of play dates.  What frustrates me even more than the other kids some times are the adults who throw labels around without asking me what I&#8217;ve actually told my son.  If I know anything about Autism it is that it is so damn individual.  I am all for throwing labels around to get services, but at the end of the day our children are absolutely unique &#8211; Autistic and typical.  I think everyone could do with a huge dose of sensitivity.</p>
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		<title>By: Victoria</title>
		<link>http://www.blisstree.com/articles/does-your-child-know-she-or-he-is-autistic/comment-page-2/#comment-565373</link>
		<dc:creator>Victoria</dc:creator>
		<pubDate>Mon, 16 Mar 2009 04:02:42 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/does-your-child-know-she-or-he-is-autistic/#comment-565373</guid>
		<description>Yes I told my son, when he was around 7 to 8yr.&#039;s of age he noticed and knew because he wanted to know why you, You &amp; YOU all can communicate well and I can&#039;t, and YES he was very upset. But I talked to him very calm and loving a Mom to child heart to heart talk I explained as best as I could.

Most of all reassuring him we&#039;d be fine and dandy, after all everyone is different in lots of ways, try not to stress too much that we&#039;d get through it together and anytime he needed help or I did we&#039;d have each other to face the ups and downs good days and bad days. I knew and could tell by his actions it was tough for him, it took a couple days for him to really process it all. But he took trust and truth i gave him with the promise, I&#039;d do everything in my power to help him and always be at his side. 

Then I reminded him that he was not only adopted, but God must have loved and trusted me ALOT because he didn&#039;t  send me just any ole child he sent me a very special little boy that happens to be handsomely cute. I am the luckiest Mom in the world because he had already taught me so much about life and love, meekness, patients, understanding, acceptance in Gods designs, strength,wisdom and boldness. Then I giggled and said, Son you&#039;ve even made your mommy a better and smarter woman and to think I couldn&#039;t have came thus far without you. Son I thank God daily for you, You are the best blessing I&#039;ve ever had!  

~~~ in return I was giving love that is so pure, unconditional and untarnished to a lot of the worlds ugliness that I found through in my son.  

IT WAS THE BEST THING I DID, BE HONEST WITH YOUR CHILDREN WHERE ELSE WILL THEY LEARN HOW TO LOVE, TRUST &amp; HONESTY.</description>
		<content:encoded><![CDATA[<p>Yes I told my son, when he was around 7 to 8yr.&#8217;s of age he noticed and knew because he wanted to know why you, You &amp; YOU all can communicate well and I can&#8217;t, and YES he was very upset. But I talked to him very calm and loving a Mom to child heart to heart talk I explained as best as I could.</p>
<p>Most of all reassuring him we&#8217;d be fine and dandy, after all everyone is different in lots of ways, try not to stress too much that we&#8217;d get through it together and anytime he needed help or I did we&#8217;d have each other to face the ups and downs good days and bad days. I knew and could tell by his actions it was tough for him, it took a couple days for him to really process it all. But he took trust and truth i gave him with the promise, I&#8217;d do everything in my power to help him and always be at his side. </p>
<p>Then I reminded him that he was not only adopted, but God must have loved and trusted me ALOT because he didn&#8217;t  send me just any ole child he sent me a very special little boy that happens to be handsomely cute. I am the luckiest Mom in the world because he had already taught me so much about life and love, meekness, patients, understanding, acceptance in Gods designs, strength,wisdom and boldness. Then I giggled and said, Son you&#8217;ve even made your mommy a better and smarter woman and to think I couldn&#8217;t have came thus far without you. Son I thank God daily for you, You are the best blessing I&#8217;ve ever had!  </p>
<p>~~~ in return I was giving love that is so pure, unconditional and untarnished to a lot of the worlds ugliness that I found through in my son.  </p>
<p>IT WAS THE BEST THING I DID, BE HONEST WITH YOUR CHILDREN WHERE ELSE WILL THEY LEARN HOW TO LOVE, TRUST &amp; HONESTY.</p>
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		<title>By: Bonnie Sayers</title>
		<link>http://www.blisstree.com/articles/does-your-child-know-she-or-he-is-autistic/comment-page-1/#comment-555202</link>
		<dc:creator>Bonnie Sayers</dc:creator>
		<pubDate>Sat, 10 May 2008 16:48:04 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/does-your-child-know-she-or-he-is-autistic/#comment-555202</guid>
		<description>Nick has known for many years that he is high functioning and likes to read books and review items with me and give his take on it.  Since he was mainstreamed in gen ed from 1-5 he did not see other kids like himself and no one in class knew about it being on the spectrum.  But going to social skills for a year and going to camp for seven summer sessions he has learned there are degrees of autism and it has helped him understand his brother better and know that Matt is not the only one like this.  In fact, he has seen some girls at camp that are worse and that made him feel better knowing Matt does not bite himself or throw knives at other kids.  It has helped his overall awareness of autism and to see his differences.  Sometimes he does say he hates autism.</description>
		<content:encoded><![CDATA[<p>Nick has known for many years that he is high functioning and likes to read books and review items with me and give his take on it.  Since he was mainstreamed in gen ed from 1-5 he did not see other kids like himself and no one in class knew about it being on the spectrum.  But going to social skills for a year and going to camp for seven summer sessions he has learned there are degrees of autism and it has helped him understand his brother better and know that Matt is not the only one like this.  In fact, he has seen some girls at camp that are worse and that made him feel better knowing Matt does not bite himself or throw knives at other kids.  It has helped his overall awareness of autism and to see his differences.  Sometimes he does say he hates autism.</p>
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		<title>By: Does Your Child Know That It&#8217;s Autism Awareness Month?</title>
		<link>http://www.blisstree.com/articles/does-your-child-know-she-or-he-is-autistic/comment-page-1/#comment-542110</link>
		<dc:creator>Does Your Child Know That It&#8217;s Autism Awareness Month?</dc:creator>
		<pubDate>Fri, 04 Apr 2008 08:09:55 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/does-your-child-know-she-or-he-is-autistic/#comment-542110</guid>
		<description>[...] few days ago I asked does your child know that he or she is autistic?&#8212;-and now, after Wednesday&#8217;s World Autism Day and April being Autism Awareness Month, [...]</description>
		<content:encoded><![CDATA[<p>[...] few days ago I asked does your child know that he or she is autistic?&#8212;-and now, after Wednesday&#8217;s World Autism Day and April being Autism Awareness Month, [...]</p>
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		<title>By: Brett</title>
		<link>http://www.blisstree.com/articles/does-your-child-know-she-or-he-is-autistic/comment-page-1/#comment-541963</link>
		<dc:creator>Brett</dc:creator>
		<pubDate>Thu, 03 Apr 2008 19:35:08 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/does-your-child-know-she-or-he-is-autistic/#comment-541963</guid>
		<description>A related question for the group:  Do you include your autistic child in IEP meetings?  Obviously, some sort of discussion with them is necessary before doing that.</description>
		<content:encoded><![CDATA[<p>A related question for the group:  Do you include your autistic child in IEP meetings?  Obviously, some sort of discussion with them is necessary before doing that.</p>
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		<title>By: Momto4kidsny</title>
		<link>http://www.blisstree.com/articles/does-your-child-know-she-or-he-is-autistic/comment-page-1/#comment-552081</link>
		<dc:creator>Momto4kidsny</dc:creator>
		<pubDate>Thu, 03 Apr 2008 18:43:17 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/does-your-child-know-she-or-he-is-autistic/#comment-552081</guid>
		<description>My son is 6. We have started talking about it with him in a postive light but it&#039;s more of a passing talk than it is a big talk like one may have for the subject of sex or drugs. He is letting us know that he knows he is diffrent and wants to know why. I&#039;m finding that I am stumbling when it comes to telling him why. And looking back it&#039;s because I am afraid to put a lable on him even though we already have it. 
I must say though that this Autism Awareness blogging thing has brought to me many rescources and I hope I can have this talk in a better manner for my son. I need to become more accepting of the &quot;lable&quot; before I can even begin to help my son to accept it.</description>
		<content:encoded><![CDATA[<p>My son is 6. We have started talking about it with him in a postive light but it&#8217;s more of a passing talk than it is a big talk like one may have for the subject of sex or drugs. He is letting us know that he knows he is diffrent and wants to know why. I&#8217;m finding that I am stumbling when it comes to telling him why. And looking back it&#8217;s because I am afraid to put a lable on him even though we already have it.<br />
I must say though that this Autism Awareness blogging thing has brought to me many rescources and I hope I can have this talk in a better manner for my son. I need to become more accepting of the &#8220;lable&#8221; before I can even begin to help my son to accept it.</p>
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		<title>By: Amanda</title>
		<link>http://www.blisstree.com/articles/does-your-child-know-she-or-he-is-autistic/comment-page-1/#comment-548527</link>
		<dc:creator>Amanda</dc:creator>
		<pubDate>Sat, 29 Mar 2008 12:23:08 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/does-your-child-know-she-or-he-is-autistic/#comment-548527</guid>
		<description>Well... my comprehension of a lot of things was pretty decent, but my comprehension of many aspects of language (or even some of the concepts required for language) was pretty crappy and intermittent, especially compared to what it &lt;em&gt;looked&lt;/em&gt; like at times.

What I needed was a combination of a number of things (some of which I can give longer descriptions of, some of which I can&#039;t):

Time to let assorted information settle into my brain, a process that is not conscious and can take a very long time.  (I have had spans of &lt;em&gt;decades&lt;/em&gt; between hearing words and understanding them, for instance, and there&#039;s still at least one instance from when I was about three that I am very conscious of the sound, can replay it at will, but I still can&#039;t understand the words.)

Context, and lots of it.

Understanding that the &lt;em&gt;way&lt;/em&gt; I understand something isn&#039;t necessarily the same as someone else does, and that therefore pushing for immediate and conscious understanding is unlikely to produce long-term results.  Understanding generally &lt;em&gt;has to&lt;/em&gt; come about by a longer-term process, but when that does happen, I&#039;ll understand something in more depth than usual.

(That last one accounts both for my total lack of understanding of a lot of things that I describe, &lt;em&gt;and&lt;/em&gt; the observation you made that I seem more &quot;reflective&quot; than most people.  The &quot;reflection&quot; takes place differently, and so does the processing of information that leads to it.  You won&#039;t &lt;em&gt;get&lt;/em&gt; immediate conscious comprehension of a lot of things, but you&#039;ll get extremely detail-rich long-term comprehension that &lt;em&gt;I&#039;m&lt;/em&gt; often not even aware of until something triggers it.  

I suspect these are two sides of the same coin, rather than a contradiction.  There&#039;s only so much a person can hold in conscious memory at once, and only so many connections that can be made between things that way, and I don&#039;t have as many of the shortcuts as some other people can take to understanding.  But I think those shortcuts, which have many advantages that I lack, come at their own price.

And of course I needed the actual information to steer me at least a little into how to look at these things, because otherwise there would be patterns I just plain wouldn&#039;t see.

I also needed time away from being pushed to use a certain kind of understanding (that is not sustainable to me) to the absolute limits, which meant that I was too busy doing &lt;em&gt;that&lt;/em&gt; to really understand a lot of other things.  This  includes using certain abilities that took substantial amounts away from all other abilities in order to use them.

I don&#039;t know if that answer is complete or not but it&#039;s all the explanation I can give right now.  I know what I &lt;em&gt;mean&lt;/em&gt;, though.</description>
		<content:encoded><![CDATA[<p>Well&#8230; my comprehension of a lot of things was pretty decent, but my comprehension of many aspects of language (or even some of the concepts required for language) was pretty crappy and intermittent, especially compared to what it <em>looked</em> like at times.</p>
<p>What I needed was a combination of a number of things (some of which I can give longer descriptions of, some of which I can&#8217;t):</p>
<p>Time to let assorted information settle into my brain, a process that is not conscious and can take a very long time.  (I have had spans of <em>decades</em> between hearing words and understanding them, for instance, and there&#8217;s still at least one instance from when I was about three that I am very conscious of the sound, can replay it at will, but I still can&#8217;t understand the words.)</p>
<p>Context, and lots of it.</p>
<p>Understanding that the <em>way</em> I understand something isn&#8217;t necessarily the same as someone else does, and that therefore pushing for immediate and conscious understanding is unlikely to produce long-term results.  Understanding generally <em>has to</em> come about by a longer-term process, but when that does happen, I&#8217;ll understand something in more depth than usual.</p>
<p>(That last one accounts both for my total lack of understanding of a lot of things that I describe, <em>and</em> the observation you made that I seem more &#8220;reflective&#8221; than most people.  The &#8220;reflection&#8221; takes place differently, and so does the processing of information that leads to it.  You won&#8217;t <em>get</em> immediate conscious comprehension of a lot of things, but you&#8217;ll get extremely detail-rich long-term comprehension that <em>I&#8217;m</em> often not even aware of until something triggers it.  </p>
<p>I suspect these are two sides of the same coin, rather than a contradiction.  There&#8217;s only so much a person can hold in conscious memory at once, and only so many connections that can be made between things that way, and I don&#8217;t have as many of the shortcuts as some other people can take to understanding.  But I think those shortcuts, which have many advantages that I lack, come at their own price.</p>
<p>And of course I needed the actual information to steer me at least a little into how to look at these things, because otherwise there would be patterns I just plain wouldn&#8217;t see.</p>
<p>I also needed time away from being pushed to use a certain kind of understanding (that is not sustainable to me) to the absolute limits, which meant that I was too busy doing <em>that</em> to really understand a lot of other things.  This  includes using certain abilities that took substantial amounts away from all other abilities in order to use them.</p>
<p>I don&#8217;t know if that answer is complete or not but it&#8217;s all the explanation I can give right now.  I know what I <em>mean</em>, though.</p>
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		<title>By: Marla</title>
		<link>http://www.blisstree.com/articles/does-your-child-know-she-or-he-is-autistic/comment-page-1/#comment-550328</link>
		<dc:creator>Marla</dc:creator>
		<pubDate>Fri, 28 Mar 2008 16:28:11 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/does-your-child-know-she-or-he-is-autistic/#comment-550328</guid>
		<description>I am with Club 166 on this one.  We started talking about adoption and sharing M&#039;s birth story from day one.  Sharing what is appropriate for her age.  We do the same with her autism, chromosome disorder and cyclical vomiting syndrome.  M does know that she copes differently and has difficulty keeping up with children her age.  Even though we discuss it I don&#039;t know how much she really understands.  But, we just keep on talking about it.  I want her to feel confident communicating her health and learning needs as best she can and I think for her knowing about her diagnosis is important.</description>
		<content:encoded><![CDATA[<p>I am with Club 166 on this one.  We started talking about adoption and sharing M&#8217;s birth story from day one.  Sharing what is appropriate for her age.  We do the same with her autism, chromosome disorder and cyclical vomiting syndrome.  M does know that she copes differently and has difficulty keeping up with children her age.  Even though we discuss it I don&#8217;t know how much she really understands.  But, we just keep on talking about it.  I want her to feel confident communicating her health and learning needs as best she can and I think for her knowing about her diagnosis is important.</p>
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		<title>By: Bink</title>
		<link>http://www.blisstree.com/articles/does-your-child-know-she-or-he-is-autistic/comment-page-1/#comment-545848</link>
		<dc:creator>Bink</dc:creator>
		<pubDate>Fri, 28 Mar 2008 13:30:28 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/does-your-child-know-she-or-he-is-autistic/#comment-545848</guid>
		<description>When my child was almost six, one day I said to her, in the course of conversation, &quot;you know that you are a kid with autism, right?&quot; And she said yes, she knew that. My guess had been that she had overheard enough conversations to figure it out and I was right. We try to talk about it honestly and positively, but don&#039;t dwell on it.

Also, parents -- check your school yearbooks. In my child&#039;s yearbook, the teacher who assists her is clearly labeled as the Autism Specialist. Any child who can read and attends that school therefore knows my child is autistic, so I cannot imagine trying to pretend it isn&#039;t so or imagining my child might not know. I think that pretending it wasn&#039;t so would only lead my child to wonder what was so awful about her that it could not even be spoken of.</description>
		<content:encoded><![CDATA[<p>When my child was almost six, one day I said to her, in the course of conversation, &#8220;you know that you are a kid with autism, right?&#8221; And she said yes, she knew that. My guess had been that she had overheard enough conversations to figure it out and I was right. We try to talk about it honestly and positively, but don&#8217;t dwell on it.</p>
<p>Also, parents &#8212; check your school yearbooks. In my child&#8217;s yearbook, the teacher who assists her is clearly labeled as the Autism Specialist. Any child who can read and attends that school therefore knows my child is autistic, so I cannot imagine trying to pretend it isn&#8217;t so or imagining my child might not know. I think that pretending it wasn&#8217;t so would only lead my child to wonder what was so awful about her that it could not even be spoken of.</p>
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		<title>By: Norah</title>
		<link>http://www.blisstree.com/articles/does-your-child-know-she-or-he-is-autistic/comment-page-1/#comment-551626</link>
		<dc:creator>Norah</dc:creator>
		<pubDate>Fri, 28 Mar 2008 13:07:46 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/does-your-child-know-she-or-he-is-autistic/#comment-551626</guid>
		<description>I don&#039;t like &#039;big conversations&#039; either. My parents never did that for any topic. They more or less just presented each topic casually as it came up (like sex when my mom got pregnant with my youngest brother: &quot;Fine, we know how he&#039;s going to come out, but now: how the heck did he get in there in the first place, huh?&quot;). Sometimes they&#039;d get us interesting (library) books for kids (but still accurate and detailed) about a topic. It also wasn&#039;t just one conversation, things came up several times at different ages.</description>
		<content:encoded><![CDATA[<p>I don&#8217;t like &#8216;big conversations&#8217; either. My parents never did that for any topic. They more or less just presented each topic casually as it came up (like sex when my mom got pregnant with my youngest brother: &#8220;Fine, we know how he&#8217;s going to come out, but now: how the heck did he get in there in the first place, huh?&#8221;). Sometimes they&#8217;d get us interesting (library) books for kids (but still accurate and detailed) about a topic. It also wasn&#8217;t just one conversation, things came up several times at different ages.</p>
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