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	<title>Comments on: Girls and Getting a Diagnosis</title>
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	<description>Family, Health, Home and Lifestyles</description>
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		<title>By: J</title>
		<link>http://www.blisstree.com/articles/girls-and-getting-a-diagnosis/comment-page-1/#comment-565558</link>
		<dc:creator>J</dc:creator>
		<pubDate>Sun, 28 Jun 2009 06:48:14 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/girls-and-getting-a-diagnosis/#comment-565558</guid>
		<description>Let me clarify that I was talking about the &quot;Asperger&#039;s&quot; thing.  I&#039;m not talking about actual autism.  I&#039;ve known people with autism and it&#039;s very real.</description>
		<content:encoded><![CDATA[<p>Let me clarify that I was talking about the &#8220;Asperger&#8217;s&#8221; thing.  I&#8217;m not talking about actual autism.  I&#8217;ve known people with autism and it&#8217;s very real.</p>
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		<title>By: J</title>
		<link>http://www.blisstree.com/articles/girls-and-getting-a-diagnosis/comment-page-1/#comment-565523</link>
		<dc:creator>J</dc:creator>
		<pubDate>Wed, 17 Jun 2009 19:41:20 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/girls-and-getting-a-diagnosis/#comment-565523</guid>
		<description>Give me a break.  How&#039;s labeling everything autistic supposed to be edifying to people?  There may be a few legitimate cases, but about 90 percent of the time it&#039;s an excuse to pathologize being different.  &quot;I always knew there was something different about me.&quot;  Gee, that must mean that part of your brain doesn&#039;t work as well as everyone else&#039;s and of course society knows what it&#039;s doing and sets the proper standard.  There are adults using the &quot;Asperger&#039;s&quot; thing to explain why they couldn&#039;t get a date to prom and sat alone at the lunch table.  I can&#039;t find it anymore, but Liane Willey admitted that she was trying to recruit people for the label.  
Some people don&#039;t want to waste their time pathologizing the stupid mistakes they&#039;ve made.  They&#039;d just rather chalk it up to experience and move on.  Some people don&#039;t care to pathologize their quirks or differences.  People don&#039;t all tell sob stories after encountering a few rude people, either.  
As I said, some cases might be legitimate, but this whole witch hunt is out of hand.</description>
		<content:encoded><![CDATA[<p>Give me a break.  How&#8217;s labeling everything autistic supposed to be edifying to people?  There may be a few legitimate cases, but about 90 percent of the time it&#8217;s an excuse to pathologize being different.  &#8220;I always knew there was something different about me.&#8221;  Gee, that must mean that part of your brain doesn&#8217;t work as well as everyone else&#8217;s and of course society knows what it&#8217;s doing and sets the proper standard.  There are adults using the &#8220;Asperger&#8217;s&#8221; thing to explain why they couldn&#8217;t get a date to prom and sat alone at the lunch table.  I can&#8217;t find it anymore, but Liane Willey admitted that she was trying to recruit people for the label.<br />
Some people don&#8217;t want to waste their time pathologizing the stupid mistakes they&#8217;ve made.  They&#8217;d just rather chalk it up to experience and move on.  Some people don&#8217;t care to pathologize their quirks or differences.  People don&#8217;t all tell sob stories after encountering a few rude people, either.<br />
As I said, some cases might be legitimate, but this whole witch hunt is out of hand.</p>
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		<title>By: john roe</title>
		<link>http://www.blisstree.com/articles/girls-and-getting-a-diagnosis/comment-page-1/#comment-565216</link>
		<dc:creator>john roe</dc:creator>
		<pubDate>Sat, 02 May 2009 08:29:11 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/girls-and-getting-a-diagnosis/#comment-565216</guid>
		<description>Julie, maybe the first guy you saw was uninformed, but I thought love of horses was one of the stereotypical obsession of AS girls. (And I am assuming you are not my relation who bought a horse farm for her family-- including a horse loving daughter and a son with a diagnosis and services, but what he has was never shared with me).

I think the starting point for under-diagnosis is the relatively recent understanding of this disorder in the english speaking world. As with most diseases, medicine deals first with the men, then with the women (heart disease has seen the same history of under-diagnosis in women, but that trend has started to be corrected).

My sister and my mom both have AS so I am well aware of what it seems like in women and girls (They are from the undiagnosed generations, I think both have heard about the syndrome. I told my sister I though she had it-- there was context and it seemed like a very appropriate moment to tell her because her challenges were impacting her career and had created a couple of life threatening situations-- and she seemed relieved to have a name for the challenges in her life and to hear exactly what the challenges were... I think it was big aha moment for he. I can tell she has been trying to learn facial expressions and trying to diversify her conversation away from her interests. My mom is less agreeable with the idea that she might have AS, but I am sure of her too. Growing up I learned not to express through my face because it created problematic interaction with both my sister and my mother. When I went away to college I began to express again and now whenever I am with my sister or my mom they become confused by my facial expressions). The obsessive interests can run a range and while they sometimes fit with our concept of girls&#039; interests, they can also tend toward the geeky.

I think AS can be very hard to diagnose and differentiate from other problems. The diagnosis seems to involve both quantitative and qualitative questions. When is a deep interest in something an obsessive interest? When do poor social skills become a clinical issue? Which metaphors are obvious to an NT child that are challenging for one with AS? Combine the vagueries of diagnostic criteria with the normal range of development expected at any age and diagnosis becomes very challenging. Personally, I think the diagnostic criteria are in need of some revision and that too few professionals have had enough experience of the syndrome to understand what Asperger&#039;s really looks like. On the other hand, I think I can spot an adult woman with Asperger&#039;s from about fifty yards away because I know it intimately. In kids I think it is much harder to be sure and a professional would need to spend a lot of time with a child to rule out other problems.</description>
		<content:encoded><![CDATA[<p>Julie, maybe the first guy you saw was uninformed, but I thought love of horses was one of the stereotypical obsession of AS girls. (And I am assuming you are not my relation who bought a horse farm for her family&#8211; including a horse loving daughter and a son with a diagnosis and services, but what he has was never shared with me).</p>
<p>I think the starting point for under-diagnosis is the relatively recent understanding of this disorder in the english speaking world. As with most diseases, medicine deals first with the men, then with the women (heart disease has seen the same history of under-diagnosis in women, but that trend has started to be corrected).</p>
<p>My sister and my mom both have AS so I am well aware of what it seems like in women and girls (They are from the undiagnosed generations, I think both have heard about the syndrome. I told my sister I though she had it&#8211; there was context and it seemed like a very appropriate moment to tell her because her challenges were impacting her career and had created a couple of life threatening situations&#8211; and she seemed relieved to have a name for the challenges in her life and to hear exactly what the challenges were&#8230; I think it was big aha moment for he. I can tell she has been trying to learn facial expressions and trying to diversify her conversation away from her interests. My mom is less agreeable with the idea that she might have AS, but I am sure of her too. Growing up I learned not to express through my face because it created problematic interaction with both my sister and my mother. When I went away to college I began to express again and now whenever I am with my sister or my mom they become confused by my facial expressions). The obsessive interests can run a range and while they sometimes fit with our concept of girls&#8217; interests, they can also tend toward the geeky.</p>
<p>I think AS can be very hard to diagnose and differentiate from other problems. The diagnosis seems to involve both quantitative and qualitative questions. When is a deep interest in something an obsessive interest? When do poor social skills become a clinical issue? Which metaphors are obvious to an NT child that are challenging for one with AS? Combine the vagueries of diagnostic criteria with the normal range of development expected at any age and diagnosis becomes very challenging. Personally, I think the diagnostic criteria are in need of some revision and that too few professionals have had enough experience of the syndrome to understand what Asperger&#8217;s really looks like. On the other hand, I think I can spot an adult woman with Asperger&#8217;s from about fifty yards away because I know it intimately. In kids I think it is much harder to be sure and a professional would need to spend a lot of time with a child to rule out other problems.</p>
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		<title>By: Kristina Chew, PhD</title>
		<link>http://www.blisstree.com/articles/girls-and-getting-a-diagnosis/comment-page-1/#comment-559690</link>
		<dc:creator>Kristina Chew, PhD</dc:creator>
		<pubDate>Tue, 02 Dec 2008 02:35:37 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/girls-and-getting-a-diagnosis/#comment-559690</guid>
		<description>@Joseph,
I think you&#039;re describing more than a few individuals I&#039;ve known................</description>
		<content:encoded><![CDATA[<p>@Joseph,<br />
I think you&#8217;re describing more than a few individuals I&#8217;ve known&#8230;&#8230;&#8230;&#8230;&#8230;.</p>
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		<title>By: Joseph</title>
		<link>http://www.blisstree.com/articles/girls-and-getting-a-diagnosis/comment-page-1/#comment-565065</link>
		<dc:creator>Joseph</dc:creator>
		<pubDate>Mon, 01 Dec 2008 23:46:48 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/girls-and-getting-a-diagnosis/#comment-565065</guid>
		<description>That reminds me of this:

http://elvenjedi.livejournal.com/251258.html

&quot;Because I&#039;m sick of seeing that &#039;Tribute to the Nice Guys&#039; thing. Retort:

&quot;This is my tribute to the nice girls. To the nice girls who are overlooked, who become friends and nothing more, who spend hours fixating upon their looks and their personalities and their actions because it must be they that are doing something wrong. This is for the girls who don&#039;t give it up on the first date, who don&#039;t want to play mind games, who provide a comforting hug and a supportive audience for a story they&#039;ve heard a thousand times...&quot;

You know how some self-proclaimed &quot;nice guys&quot; throw themselves at women who throw themselves at male jerks and claim &quot;we&#039;re finishing last, all women want jerks instead of us!&quot; as if the other women, their female counterparts, don&#039;t even exist?

I wonder how much of the denial of women and girls having ASD/AS is the same kind of thing.  You know, people claiming that guys with ASD/AS finish last because the cheerleaders pick the Big Men On Campus instead and &quot;women can get sex whenever they want.&quot;</description>
		<content:encoded><![CDATA[<p>That reminds me of this:</p>
<p><a href="http://elvenjedi.livejournal.com/251258.html" rel="nofollow">http://elvenjedi.livejournal.com/251258.html</a></p>
<p>&#8220;Because I&#8217;m sick of seeing that &#8216;Tribute to the Nice Guys&#8217; thing. Retort:</p>
<p>&#8220;This is my tribute to the nice girls. To the nice girls who are overlooked, who become friends and nothing more, who spend hours fixating upon their looks and their personalities and their actions because it must be they that are doing something wrong. This is for the girls who don&#8217;t give it up on the first date, who don&#8217;t want to play mind games, who provide a comforting hug and a supportive audience for a story they&#8217;ve heard a thousand times&#8230;&#8221;</p>
<p>You know how some self-proclaimed &#8220;nice guys&#8221; throw themselves at women who throw themselves at male jerks and claim &#8220;we&#8217;re finishing last, all women want jerks instead of us!&#8221; as if the other women, their female counterparts, don&#8217;t even exist?</p>
<p>I wonder how much of the denial of women and girls having ASD/AS is the same kind of thing.  You know, people claiming that guys with ASD/AS finish last because the cheerleaders pick the Big Men On Campus instead and &#8220;women can get sex whenever they want.&#8221;</p>
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		<title>By: A Voice to Listen To</title>
		<link>http://www.blisstree.com/articles/girls-and-getting-a-diagnosis/comment-page-1/#comment-564890</link>
		<dc:creator>A Voice to Listen To</dc:creator>
		<pubDate>Fri, 28 Nov 2008 02:34:48 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/girls-and-getting-a-diagnosis/#comment-564890</guid>
		<description>[...] &#8220;rich and dark mezzo soprano voice,&#8221; today&#8217;s Charlotte Observer notes. Sawyer was not diagnosed with autism until she was 17 years old. She started piano lessons and performing with school choirs at the age [...]</description>
		<content:encoded><![CDATA[<p>[...] &#8220;rich and dark mezzo soprano voice,&#8221; today&#8217;s Charlotte Observer notes. Sawyer was not diagnosed with autism until she was 17 years old. She started piano lessons and performing with school choirs at the age [...]</p>
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		<title>By: Randy</title>
		<link>http://www.blisstree.com/articles/girls-and-getting-a-diagnosis/comment-page-1/#comment-563096</link>
		<dc:creator>Randy</dc:creator>
		<pubDate>Wed, 26 Nov 2008 16:17:39 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/girls-and-getting-a-diagnosis/#comment-563096</guid>
		<description>Emily:

Sounds like you might have a Sensory Processing Disfunciton (SPD).

see yourtube on research ongoing:  http://www.facebook.com/ext/share.php?sid=98788985626&amp;h=Y6xow

We think our 10-year old has SPD and are having a he\\ of a time avoiding a knee-jerk ADHD diagnosis, so it is off to the city of brotherly love to meet with Dr. Schaaf.</description>
		<content:encoded><![CDATA[<p>Emily:</p>
<p>Sounds like you might have a Sensory Processing Disfunciton (SPD).</p>
<p>see yourtube on research ongoing:  <a href="http://www.facebook.com/ext/share.php?sid=98788985626&amp;h=Y6xow" rel="nofollow">http://www.facebook.com/ext/share.php?sid=98788985626&amp;h=Y6xow</a></p>
<p>We think our 10-year old has SPD and are having a he\\ of a time avoiding a knee-jerk ADHD diagnosis, so it is off to the city of brotherly love to meet with Dr. Schaaf.</p>
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		<title>By: Shana Nichols, Ph.D.</title>
		<link>http://www.blisstree.com/articles/girls-and-getting-a-diagnosis/comment-page-1/#comment-564843</link>
		<dc:creator>Shana Nichols, Ph.D.</dc:creator>
		<pubDate>Wed, 26 Nov 2008 12:14:01 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/girls-and-getting-a-diagnosis/#comment-564843</guid>
		<description>As a psychologist / Clinical Director at the Fay J. Lindner Center for Autism and author of the newly published book &quot;Girls Growing Up on the Autism Spectrum&quot;, I am pleased by the recent media attention to understanding females with autism spectrum conditions. Many of the girls in our Girls Programming come to our center having had very little interaction and experiences in connecting with other girls who are like them. One of our teen group participants stated emphatically &quot;this is the only place I have felt accepted, understood, and that I belong&quot;. At our center we are working on developing clinical and research programs to meet the learning needs of females with ASDs across all ages. It&#039;s an exciting endeavor for all of us, including our clients.

Website for our book on girls with ASDs: www.jkp.com/catalogue/book.php/isbn/9781843108559</description>
		<content:encoded><![CDATA[<p>As a psychologist / Clinical Director at the Fay J. Lindner Center for Autism and author of the newly published book &#8220;Girls Growing Up on the Autism Spectrum&#8221;, I am pleased by the recent media attention to understanding females with autism spectrum conditions. Many of the girls in our Girls Programming come to our center having had very little interaction and experiences in connecting with other girls who are like them. One of our teen group participants stated emphatically &#8220;this is the only place I have felt accepted, understood, and that I belong&#8221;. At our center we are working on developing clinical and research programs to meet the learning needs of females with ASDs across all ages. It&#8217;s an exciting endeavor for all of us, including our clients.</p>
<p>Website for our book on girls with ASDs: <a href="http://www.jkp.com/catalogue/book.php/isbn/9781843108559" rel="nofollow">http://www.jkp.com/catalogue/book.php/isbn/9781843108559</a></p>
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		<title>By: Naydi</title>
		<link>http://www.blisstree.com/articles/girls-and-getting-a-diagnosis/comment-page-1/#comment-563075</link>
		<dc:creator>Naydi</dc:creator>
		<pubDate>Wed, 26 Nov 2008 06:42:02 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/girls-and-getting-a-diagnosis/#comment-563075</guid>
		<description>I had some traits of Aspergers as a child (less so as an adult).  As a child I was obsessed with ballet and cats, and I refused to wear anything but stretch leggings for several years (sensory issues I&#039;m sure).  I don&#039;t think I would have ever qualified for a diagnosis though.

I did have diagnosed issues with auditory processing, anxiety, speech, and dyslexia though.  I think autism spectrum disorder have a great deal of crossover with childhood onset anxiety/OCD issues and learning disabilities.  Perhaps everything exists on a spectrum.</description>
		<content:encoded><![CDATA[<p>I had some traits of Aspergers as a child (less so as an adult).  As a child I was obsessed with ballet and cats, and I refused to wear anything but stretch leggings for several years (sensory issues I&#8217;m sure).  I don&#8217;t think I would have ever qualified for a diagnosis though.</p>
<p>I did have diagnosed issues with auditory processing, anxiety, speech, and dyslexia though.  I think autism spectrum disorder have a great deal of crossover with childhood onset anxiety/OCD issues and learning disabilities.  Perhaps everything exists on a spectrum.</p>
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		<title>By: Tara</title>
		<link>http://www.blisstree.com/articles/girls-and-getting-a-diagnosis/comment-page-1/#comment-559492</link>
		<dc:creator>Tara</dc:creator>
		<pubDate>Tue, 18 Nov 2008 21:34:06 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/girls-and-getting-a-diagnosis/#comment-559492</guid>
		<description>You know, the bullying I went through was not exactly &quot;normal&quot; - at least it was not the garden variety bullying that my son (and many other boys) unfortunately went through. 

Noone ever hit me. It was much more subtle, and for the good part was morphing into exploitation. For instance, there was a girl who used to phone me every afternoon and ask me to give her answers to math homework. Day in, day out, for months. If I did that, she would be my friend. If I refused to do that, she would give me the guilt trip of my life. Was this bullying? Yes, it was. It was as impossible for me to stand up to her based on emotional/social blackmail as it was for my son when he was faced with physical threats.</description>
		<content:encoded><![CDATA[<p>You know, the bullying I went through was not exactly &#8220;normal&#8221; &#8211; at least it was not the garden variety bullying that my son (and many other boys) unfortunately went through. </p>
<p>Noone ever hit me. It was much more subtle, and for the good part was morphing into exploitation. For instance, there was a girl who used to phone me every afternoon and ask me to give her answers to math homework. Day in, day out, for months. If I did that, she would be my friend. If I refused to do that, she would give me the guilt trip of my life. Was this bullying? Yes, it was. It was as impossible for me to stand up to her based on emotional/social blackmail as it was for my son when he was faced with physical threats.</p>
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