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	<title>Comments on: Hope Starts With Acceptance</title>
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	<link>http://www.blisstree.com/articles/hope-starts-with-acceptance/</link>
	<description>Family, Health, Home and Lifestyles</description>
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		<title>By: Jean Marino</title>
		<link>http://www.blisstree.com/articles/hope-starts-with-acceptance/comment-page-1/#comment-563930</link>
		<dc:creator>Jean Marino</dc:creator>
		<pubDate>Sun, 28 Sep 2008 00:04:57 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/hope-starts-with-acceptance/#comment-563930</guid>
		<description>Ms. Chew
Of course any parent would choose to find the bes education and therapies for thier child. We also have seen postitive changes in our son. I also put him on a diet because he was unable to properly digest gluten and casien. It took way too long for the doctors to figure this out. It was years before the poor child had a normal bm. Sometimes other interventions are necessary and should not be overlooked.</description>
		<content:encoded><![CDATA[<p>Ms. Chew<br />
Of course any parent would choose to find the bes education and therapies for thier child. We also have seen postitive changes in our son. I also put him on a diet because he was unable to properly digest gluten and casien. It took way too long for the doctors to figure this out. It was years before the poor child had a normal bm. Sometimes other interventions are necessary and should not be overlooked.</p>
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		<title>By: Kristina Chew, PhD</title>
		<link>http://www.blisstree.com/articles/hope-starts-with-acceptance/comment-page-1/#comment-558982</link>
		<dc:creator>Kristina Chew, PhD</dc:creator>
		<pubDate>Fri, 26 Sep 2008 18:26:52 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/hope-starts-with-acceptance/#comment-558982</guid>
		<description>Dear Ms. Marino,

Thanks very much for your comments-----hope is crucial, indeed. In our case, education and educational therapies have meant the most, especially as we&#039;ve seen the changes in our son---greatest source of hope, for sure.

Very best------</description>
		<content:encoded><![CDATA[<p>Dear Ms. Marino,</p>
<p>Thanks very much for your comments&#8212;&#8211;hope is crucial, indeed. In our case, education and educational therapies have meant the most, especially as we&#8217;ve seen the changes in our son&#8212;greatest source of hope, for sure.</p>
<p>Very best&#8212;&#8212;</p>
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		<title>By: Jean Marino</title>
		<link>http://www.blisstree.com/articles/hope-starts-with-acceptance/comment-page-1/#comment-561926</link>
		<dc:creator>Jean Marino</dc:creator>
		<pubDate>Fri, 26 Sep 2008 13:22:30 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/hope-starts-with-acceptance/#comment-561926</guid>
		<description>I am Jean Marino. Thank you for mentioning my article in the Buffalo news. Perhaps it gave some parents of an autistic child a smile and a lift that hope can bring.

Though you made it clear that you did not care for my terminology, I wonder if you grasped the whole point of my article.

 The point was not specifying the various treatments or therapies or diet.

There is a strict word count and criteria when submitting an article to a newspaper.--the bottom line being the paper directs the author to stick to one subject; my subject was hope. 

The whole point of the article was HOPE. Hope for our children with autism and hope for parents dealing with the stress, heartache and joys of raising a child with autism. Nothing more. I believe you may have read more into my article than the obvious.
A child with autism always has room to grow and improve...that is the kind of hope I believe in.</description>
		<content:encoded><![CDATA[<p>I am Jean Marino. Thank you for mentioning my article in the Buffalo news. Perhaps it gave some parents of an autistic child a smile and a lift that hope can bring.</p>
<p>Though you made it clear that you did not care for my terminology, I wonder if you grasped the whole point of my article.</p>
<p> The point was not specifying the various treatments or therapies or diet.</p>
<p>There is a strict word count and criteria when submitting an article to a newspaper.&#8211;the bottom line being the paper directs the author to stick to one subject; my subject was hope. </p>
<p>The whole point of the article was HOPE. Hope for our children with autism and hope for parents dealing with the stress, heartache and joys of raising a child with autism. Nothing more. I believe you may have read more into my article than the obvious.<br />
A child with autism always has room to grow and improve&#8230;that is the kind of hope I believe in.</p>
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		<title>By: Phil Schwarz</title>
		<link>http://www.blisstree.com/articles/hope-starts-with-acceptance/comment-page-1/#comment-555418</link>
		<dc:creator>Phil Schwarz</dc:creator>
		<pubDate>Sun, 10 Aug 2008 01:51:02 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/hope-starts-with-acceptance/#comment-555418</guid>
		<description>&quot;Acceptance vs. cure&quot; is nothing more than a false dichotomy.  There is nothing (except persistent and pernicious strawman arguments) preventing one from &lt;b&gt;both&lt;/b&gt; &lt;i&gt;accepting&lt;/i&gt; the differences in autistic people that are disabling only because they are devalued by the majority society, &lt;b&gt;and&lt;/b&gt; working to &lt;i&gt;cure&lt;/i&gt; the (truly) medical maladies autistic people (just like any other people) might have, and to &lt;i&gt;mitigate&lt;/i&gt; the sensory and communication handicaps they might have.  

Never underestimate the power of the conjunctive &lt;b&gt;&lt;i&gt;and&lt;/i&gt;&lt;/b&gt;: it compels its two arguments to coexist peacefully.

Treating gastrointestinal distress; exercising and strengthening executive function skills or versatility in allocation of attention; developing at least one reliable, trusted, and acknowledged modality of communication: all of these make sense, and help the individual achieve a better quality of life.  And none of these things are going to make an individual &quot;less autistic&quot;.  

Extinguishing hand-flapping, OTOH, is an attempt to do just that, and in the end does &lt;b&gt;none&lt;/b&gt; of these things.

&quot;Indistinguishability from nonautistic peers&quot; is simply the &lt;b&gt;wrong&lt;/b&gt; goal and the wrong metric.

If you are going to look for intensive 1:1 educational or therapeutic services, whether they&#039;re being marketed as &quot;ABA&quot; or otherwise, &lt;b&gt;look for providers and programs oriented around goals of building skills and leveraging the individual&#039;s innate strengths&lt;/b&gt;, not around making the individual &quot;look less autistic&quot;.

That&#039;s one way that hope really does start with acceptance.  The real kind.  Not the strawman promulgated by those who fear and work to deny a greater role for self-advocates and their allies in public discourse and policymaking about autism.</description>
		<content:encoded><![CDATA[<p>&#8220;Acceptance vs. cure&#8221; is nothing more than a false dichotomy.  There is nothing (except persistent and pernicious strawman arguments) preventing one from <b>both</b> <i>accepting</i> the differences in autistic people that are disabling only because they are devalued by the majority society, <b>and</b> working to <i>cure</i> the (truly) medical maladies autistic people (just like any other people) might have, and to <i>mitigate</i> the sensory and communication handicaps they might have.  </p>
<p>Never underestimate the power of the conjunctive <b><i>and</i></b>: it compels its two arguments to coexist peacefully.</p>
<p>Treating gastrointestinal distress; exercising and strengthening executive function skills or versatility in allocation of attention; developing at least one reliable, trusted, and acknowledged modality of communication: all of these make sense, and help the individual achieve a better quality of life.  And none of these things are going to make an individual &#8220;less autistic&#8221;.  </p>
<p>Extinguishing hand-flapping, OTOH, is an attempt to do just that, and in the end does <b>none</b> of these things.</p>
<p>&#8220;Indistinguishability from nonautistic peers&#8221; is simply the <b>wrong</b> goal and the wrong metric.</p>
<p>If you are going to look for intensive 1:1 educational or therapeutic services, whether they&#8217;re being marketed as &#8220;ABA&#8221; or otherwise, <b>look for providers and programs oriented around goals of building skills and leveraging the individual&#8217;s innate strengths</b>, not around making the individual &#8220;look less autistic&#8221;.</p>
<p>That&#8217;s one way that hope really does start with acceptance.  The real kind.  Not the strawman promulgated by those who fear and work to deny a greater role for self-advocates and their allies in public discourse and policymaking about autism.</p>
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		<title>By: Regan</title>
		<link>http://www.blisstree.com/articles/hope-starts-with-acceptance/comment-page-1/#comment-550055</link>
		<dc:creator>Regan</dc:creator>
		<pubDate>Fri, 09 May 2008 06:48:31 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/hope-starts-with-acceptance/#comment-550055</guid>
		<description>Someone sent me this short audio essay on adaptation. I thought some might appreciate it.

From NPR&#039;s &quot;This I believe&quot;
http://tinyurl.com/5a7n2p</description>
		<content:encoded><![CDATA[<p>Someone sent me this short audio essay on adaptation. I thought some might appreciate it.</p>
<p>From NPR&#8217;s &#8220;This I believe&#8221;<br />
<a href="http://tinyurl.com/5a7n2p" rel="nofollow">http://tinyurl.com/5a7n2p</a></p>
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		<title>By: The Open Wallet Policy</title>
		<link>http://www.blisstree.com/articles/hope-starts-with-acceptance/comment-page-1/#comment-548707</link>
		<dc:creator>The Open Wallet Policy</dc:creator>
		<pubDate>Tue, 29 Apr 2008 15:11:45 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/hope-starts-with-acceptance/#comment-548707</guid>
		<description>[...] Sunday I wrote about hope starting with acceptance and asked: Does one strive to do everything one can to cure, heal, recover a child from autism with [...]</description>
		<content:encoded><![CDATA[<p>[...] Sunday I wrote about hope starting with acceptance and asked: Does one strive to do everything one can to cure, heal, recover a child from autism with [...]</p>
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		<title>By: Marla</title>
		<link>http://www.blisstree.com/articles/hope-starts-with-acceptance/comment-page-1/#comment-546461</link>
		<dc:creator>Marla</dc:creator>
		<pubDate>Mon, 28 Apr 2008 21:46:25 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/hope-starts-with-acceptance/#comment-546461</guid>
		<description>We went through phases. At first we wanted to cure our daughter and then eventually we gained acceptance.  I don&#039;t think about a cure anymore.  I don&#039;t believe there is one.  I like this post.  It is very thought provoking.</description>
		<content:encoded><![CDATA[<p>We went through phases. At first we wanted to cure our daughter and then eventually we gained acceptance.  I don&#8217;t think about a cure anymore.  I don&#8217;t believe there is one.  I like this post.  It is very thought provoking.</p>
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		<title>By: mayfly</title>
		<link>http://www.blisstree.com/articles/hope-starts-with-acceptance/comment-page-1/#comment-554742</link>
		<dc:creator>mayfly</dc:creator>
		<pubDate>Mon, 28 Apr 2008 13:20:36 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/hope-starts-with-acceptance/#comment-554742</guid>
		<description>@Melody,  I don&#039;t think anyone has tried to make the point that people on the acceptance side of th argument are in favor of ignoring medical conditions.

Autism is defined by a list of symptoms.   If one chooses to take action to  one of those symptoms via a drug, a teaching method, or just assuring the child it is welcome, then one has not fully embraced their child&#039;s autism as they chose to change one of its manifestations.

I see it this way.  I am a flawed person as is my wife.  We both know that and we both try to improve in these problem areas, but both of us know that we will be loved by other should we fail.  I don&#039;t spend my days  thinking of my wife&#039;s flaws.  I&#039;m more concerned with my own.
We love each other despite our imperfections. 

My child has a disabling disorder called autism.  It has manifested itself in her quite differently than it has in  some.   Just as I don&#039;t dwell on my wife&#039;s flaws, I don&#039;t dwell on my daughter&#039;s disabilities.   She would be better off in life if her disabilities were eliminated. However that does not mean she is not loved/accepted as she is.  Just as my wife loves, accepts me as I am.

Now it could be argued that autism is like a person&#039;s height.  There&#039;s  nothing  which can be done about it.  If I or my wife thought that my shortcomings had to do with my being shorter or taller than average, it does no one good because I cannot change that.  My height is fixed.

One can view the autism in the same way.  However height passed a certain age is fixed.  How autism manifests itself is not.</description>
		<content:encoded><![CDATA[<p>@Melody,  I don&#8217;t think anyone has tried to make the point that people on the acceptance side of th argument are in favor of ignoring medical conditions.</p>
<p>Autism is defined by a list of symptoms.   If one chooses to take action to  one of those symptoms via a drug, a teaching method, or just assuring the child it is welcome, then one has not fully embraced their child&#8217;s autism as they chose to change one of its manifestations.</p>
<p>I see it this way.  I am a flawed person as is my wife.  We both know that and we both try to improve in these problem areas, but both of us know that we will be loved by other should we fail.  I don&#8217;t spend my days  thinking of my wife&#8217;s flaws.  I&#8217;m more concerned with my own.<br />
We love each other despite our imperfections. </p>
<p>My child has a disabling disorder called autism.  It has manifested itself in her quite differently than it has in  some.   Just as I don&#8217;t dwell on my wife&#8217;s flaws, I don&#8217;t dwell on my daughter&#8217;s disabilities.   She would be better off in life if her disabilities were eliminated. However that does not mean she is not loved/accepted as she is.  Just as my wife loves, accepts me as I am.</p>
<p>Now it could be argued that autism is like a person&#8217;s height.  There&#8217;s  nothing  which can be done about it.  If I or my wife thought that my shortcomings had to do with my being shorter or taller than average, it does no one good because I cannot change that.  My height is fixed.</p>
<p>One can view the autism in the same way.  However height passed a certain age is fixed.  How autism manifests itself is not.</p>
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		<title>By: stopautismquackery</title>
		<link>http://www.blisstree.com/articles/hope-starts-with-acceptance/comment-page-1/#comment-548477</link>
		<dc:creator>stopautismquackery</dc:creator>
		<pubDate>Mon, 28 Apr 2008 06:42:01 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/hope-starts-with-acceptance/#comment-548477</guid>
		<description>&quot;HHV-6 does what it does. Whether you heard about it ten years ago or today or ten years from now.&quot;

H6, the straw-man was in reference to the weary-worn argument that some groups put forth about others claiming they don&#039;t treat medical illnesses --- which couldn&#039;t be further from the truth.  I really quite don&#039;t understand the meaning of your words above.</description>
		<content:encoded><![CDATA[<p>&#8220;HHV-6 does what it does. Whether you heard about it ten years ago or today or ten years from now.&#8221;</p>
<p>H6, the straw-man was in reference to the weary-worn argument that some groups put forth about others claiming they don&#8217;t treat medical illnesses &#8212; which couldn&#8217;t be further from the truth.  I really quite don&#8217;t understand the meaning of your words above.</p>
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		<title>By: stopautismquackery</title>
		<link>http://www.blisstree.com/articles/hope-starts-with-acceptance/comment-page-1/#comment-550451</link>
		<dc:creator>stopautismquackery</dc:creator>
		<pubDate>Mon, 28 Apr 2008 06:28:48 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/hope-starts-with-acceptance/#comment-550451</guid>
		<description>@H6

Do you have HHV-6?</description>
		<content:encoded><![CDATA[<p>@H6</p>
<p>Do you have HHV-6?</p>
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