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	<title>Comments on: I can assure you that no one knows the autism spectrum better than someone on it,</title>
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	<link>http://www.blisstree.com/articles/i-can-assure-you-that-no-one-knows-the-autism-spectrum-better-than-someone-on-it/</link>
	<description>Family, Health, Home and Lifestyles</description>
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		<title>By: Autism Vox &#187; 9 Autism Bills in New Jersey</title>
		<link>http://www.blisstree.com/articles/i-can-assure-you-that-no-one-knows-the-autism-spectrum-better-than-someone-on-it/comment-page-1/#comment-531496</link>
		<dc:creator>Autism Vox &#187; 9 Autism Bills in New Jersey</dc:creator>
		<pubDate>Sun, 04 Mar 2007 04:21:44 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/i-can-assure-you-that-no-one-knows-the-autism-spectrum-better-than-someone-on-it/#comment-531496</guid>
		<description>[...] The Asperger&#8217;s Syndrome Pilot Initiative (S-690) was approved this past Monday, February 26th; testimony on the bill by Ari Ne&#8217;eman, President of the Autistic Self Advocacy Network (ASAN), can be read here. [...]</description>
		<content:encoded><![CDATA[<p>[...] The Asperger&#8217;s Syndrome Pilot Initiative (S-690) was approved this past Monday, February 26th; testimony on the bill by Ari Ne&#8217;eman, President of the Autistic Self Advocacy Network (ASAN), can be read here. [...]</p>
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		<title>By: Ari Ne'eman</title>
		<link>http://www.blisstree.com/articles/i-can-assure-you-that-no-one-knows-the-autism-spectrum-better-than-someone-on-it/comment-page-1/#comment-531502</link>
		<dc:creator>Ari Ne'eman</dc:creator>
		<pubDate>Sun, 04 Mar 2007 01:24:42 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/i-can-assure-you-that-no-one-knows-the-autism-spectrum-better-than-someone-on-it/#comment-531502</guid>
		<description>&lt;i&gt;When a law is written, it is usually interpreted to mean exactly what it says (especially when money is involved). Therefore this law would exclude Kristina’s Charlie, as well as my Buddy Boy, as neither carries a diagnosis of “Asperger’s Syndrome”.

It’s a shame that the law was not written to include alldisabled who need support services in the community.&lt;/i&gt;

Club 166, I wholeheartedly agree. It is a shame that the bill did not include the widest possible group of individuals. My organization, the Autistic Self Advocacy Network (www.autisticadvocacy.org), is interested in advocating for the entirety of the autism spectrum, not just the Asperger&#039;s or High-Functioning part. With that in mind, I have made clear in my conversations with legislators that further legislative action is needed. It would be my hope that extensive effort is put into support services for individuals at all points on the autism spectrum, with the ultimate goal of independent living, self-advocacy skills and self-determination for all. That is our goal and I want to make clear that we share a common vision of the future that can be.</description>
		<content:encoded><![CDATA[<p><i>When a law is written, it is usually interpreted to mean exactly what it says (especially when money is involved). Therefore this law would exclude Kristina’s Charlie, as well as my Buddy Boy, as neither carries a diagnosis of “Asperger’s Syndrome”.</p>
<p>It’s a shame that the law was not written to include alldisabled who need support services in the community.</i></p>
<p>Club 166, I wholeheartedly agree. It is a shame that the bill did not include the widest possible group of individuals. My organization, the Autistic Self Advocacy Network (www.autisticadvocacy.org), is interested in advocating for the entirety of the autism spectrum, not just the Asperger&#8217;s or High-Functioning part. With that in mind, I have made clear in my conversations with legislators that further legislative action is needed. It would be my hope that extensive effort is put into support services for individuals at all points on the autism spectrum, with the ultimate goal of independent living, self-advocacy skills and self-determination for all. That is our goal and I want to make clear that we share a common vision of the future that can be.</p>
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		<title>By: Autism Vox &#187; Something To Make You Think</title>
		<link>http://www.blisstree.com/articles/i-can-assure-you-that-no-one-knows-the-autism-spectrum-better-than-someone-on-it/comment-page-1/#comment-531418</link>
		<dc:creator>Autism Vox &#187; Something To Make You Think</dc:creator>
		<pubDate>Fri, 02 Mar 2007 07:27:45 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/i-can-assure-you-that-no-one-knows-the-autism-spectrum-better-than-someone-on-it/#comment-531418</guid>
		<description>[...] As you may have noticed over the past few days, or weeks, or months, there have been a few other things to write about regarding autism: cause&#8212;-cure&#8212;-the autism &#8220;epidemic&#8220;&#8212;-vaccines&#8212;-why in the world there is so much autism in New Jersey&#8212;-little Katherine McCarron&#8212;-the genetics of autism&#8212;-disablity and mythology in the ancient world&#8212;-legislation for autism in New Jersey&#8212;-Sigourney Weaver as an autistic woman&#8212;-poetry&#8212;-the rhetoric of autism writing&#8212;-and a really good book. [...]</description>
		<content:encoded><![CDATA[<p>[...] As you may have noticed over the past few days, or weeks, or months, there have been a few other things to write about regarding autism: cause&#8212;-cure&#8212;-the autism &#8220;epidemic&#8220;&#8212;-vaccines&#8212;-why in the world there is so much autism in New Jersey&#8212;-little Katherine McCarron&#8212;-the genetics of autism&#8212;-disablity and mythology in the ancient world&#8212;-legislation for autism in New Jersey&#8212;-Sigourney Weaver as an autistic woman&#8212;-poetry&#8212;-the rhetoric of autism writing&#8212;-and a really good book. [...]</p>
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		<title>By: Chris</title>
		<link>http://www.blisstree.com/articles/i-can-assure-you-that-no-one-knows-the-autism-spectrum-better-than-someone-on-it/comment-page-1/#comment-531410</link>
		<dc:creator>Chris</dc:creator>
		<pubDate>Fri, 02 Mar 2007 02:59:41 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/i-can-assure-you-that-no-one-knows-the-autism-spectrum-better-than-someone-on-it/#comment-531410</guid>
		<description>I am wondering who does make the dicisions for kids with Autism when they are adults.  I have a 4 year old who is autistic/ but verbal, and will my husband and I always be in charge of his finances.  When does a child with autism get s.s?  Is it when they turn 18?  Does it matter if they can work or if they need help or a guide to help them do a job.  I am asked all the time, what do we expect out of our son?  I never know how to answer this.  I understand that these kids come to the awareness that they are different, and have complete awareness tothere surroundings, they just haandle things in there own way, or is this aspergers.  I can not imagine yet, my son having the awareness of his dissability.  He is so young.  I hope for him to be able to express himself and have a relationship with the world and people in it.  But I can not picture it.  I wonder if they become sad, and yern to be different or they just accept it.  I was born blind in one eye, and I never new anyone saw things different then me till I was in middle school. I never really effected me till I was older.  I see the limitations of my dissablility more as an adult.  I wonder if this will be my sons reality.---Your article has forced me to look ahead, I have been so busy with the now, I did not look so far in the future.</description>
		<content:encoded><![CDATA[<p>I am wondering who does make the dicisions for kids with Autism when they are adults.  I have a 4 year old who is autistic/ but verbal, and will my husband and I always be in charge of his finances.  When does a child with autism get s.s?  Is it when they turn 18?  Does it matter if they can work or if they need help or a guide to help them do a job.  I am asked all the time, what do we expect out of our son?  I never know how to answer this.  I understand that these kids come to the awareness that they are different, and have complete awareness tothere surroundings, they just haandle things in there own way, or is this aspergers.  I can not imagine yet, my son having the awareness of his dissability.  He is so young.  I hope for him to be able to express himself and have a relationship with the world and people in it.  But I can not picture it.  I wonder if they become sad, and yern to be different or they just accept it.  I was born blind in one eye, and I never new anyone saw things different then me till I was in middle school. I never really effected me till I was older.  I see the limitations of my dissablility more as an adult.  I wonder if this will be my sons reality.&#8212;Your article has forced me to look ahead, I have been so busy with the now, I did not look so far in the future.</p>
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		<title>By: Marcie</title>
		<link>http://www.blisstree.com/articles/i-can-assure-you-that-no-one-knows-the-autism-spectrum-better-than-someone-on-it/comment-page-1/#comment-531404</link>
		<dc:creator>Marcie</dc:creator>
		<pubDate>Fri, 02 Mar 2007 01:02:04 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/i-can-assure-you-that-no-one-knows-the-autism-spectrum-better-than-someone-on-it/#comment-531404</guid>
		<description>&quot;Surely he is not suggesting that parents of autistic children, whether they are still children or adults, should transfer their legal and moral obligations to speak on behalf of their children, who can not communicate for themselves, to someone who has such advanced communication skills.&quot;


I can assure you, *noone* wants to take over the obligations of anyone else.  You may not realize that there&#039;s a sub-culture of autistic people - and we&#039;re very concerned for each others welfare.  I go to parent meetings all the time; the only thing I get out of it - and the only thing I want - is the joy of helping bring people together through understanding.  Even with &quot;good communication skills&quot;, a person on the spectrum still has the thought patterns of an autistic person.  Of course, every one&#039;s different. All people are.  But those of us who speak in language can provide translation clues for those who only speak a sensory language.</description>
		<content:encoded><![CDATA[<p>&#8220;Surely he is not suggesting that parents of autistic children, whether they are still children or adults, should transfer their legal and moral obligations to speak on behalf of their children, who can not communicate for themselves, to someone who has such advanced communication skills.&#8221;</p>
<p>I can assure you, *noone* wants to take over the obligations of anyone else.  You may not realize that there&#8217;s a sub-culture of autistic people &#8211; and we&#8217;re very concerned for each others welfare.  I go to parent meetings all the time; the only thing I get out of it &#8211; and the only thing I want &#8211; is the joy of helping bring people together through understanding.  Even with &#8220;good communication skills&#8221;, a person on the spectrum still has the thought patterns of an autistic person.  Of course, every one&#8217;s different. All people are.  But those of us who speak in language can provide translation clues for those who only speak a sensory language.</p>
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		<title>By: Kristina Chew, PhD</title>
		<link>http://www.blisstree.com/articles/i-can-assure-you-that-no-one-knows-the-autism-spectrum-better-than-someone-on-it/comment-page-1/#comment-531399</link>
		<dc:creator>Kristina Chew, PhD</dc:creator>
		<pubDate>Thu, 01 Mar 2007 21:39:55 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/i-can-assure-you-that-no-one-knows-the-autism-spectrum-better-than-someone-on-it/#comment-531399</guid>
		<description>The pilot program that the bill would establish is to be evaluated &quot;no later than two years after the date that it commences operations&quot; and I&#039;m curious as to what might result from that.

&lt;a href=&quot;http://www.njleg.state.nj.us/2006/Bills/A4500/4057_I1.HTM&quot;&gt;Bill A4057&lt;/a&gt; establishes a New Jersey Adults with Autism Task Force.

&lt;a href=&quot;http://www.njleg.state.nj.us/2006/Bills/S3000/2558_I1.HTM&quot;&gt;Bill S2558&lt;/a&gt;  requires candidates for teaching certificates and current teachers to receive instruction in autism awareness and methods of teaching students with autism.

All bill pertaining to autism in the 2006-2007 Legislative session can be found &lt;a href=&quot;http://www.njleg.state.nj.us/bills/BillsByKeyword.asp&quot;&gt;here&lt;/a&gt;.</description>
		<content:encoded><![CDATA[<p>The pilot program that the bill would establish is to be evaluated &#8220;no later than two years after the date that it commences operations&#8221; and I&#8217;m curious as to what might result from that.</p>
<p><a href="http://www.njleg.state.nj.us/2006/Bills/A4500/4057_I1.HTM">Bill A4057</a> establishes a New Jersey Adults with Autism Task Force.</p>
<p><a href="http://www.njleg.state.nj.us/2006/Bills/S3000/2558_I1.HTM">Bill S2558</a>  requires candidates for teaching certificates and current teachers to receive instruction in autism awareness and methods of teaching students with autism.</p>
<p>All bill pertaining to autism in the 2006-2007 Legislative session can be found <a href="http://www.njleg.state.nj.us/bills/BillsByKeyword.asp">here</a>.</p>
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		<title>By: Club 166</title>
		<link>http://www.blisstree.com/articles/i-can-assure-you-that-no-one-knows-the-autism-spectrum-better-than-someone-on-it/comment-page-1/#comment-531398</link>
		<dc:creator>Club 166</dc:creator>
		<pubDate>Thu, 01 Mar 2007 21:12:55 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/i-can-assure-you-that-no-one-knows-the-autism-spectrum-better-than-someone-on-it/#comment-531398</guid>
		<description>&lt;b&gt;&lt;i&gt;The purpose of the initiative is to provide vocational, educational and social training services to persons with Asperger’s Syndrome, ...&lt;/b&gt;&lt;/i&gt;

When a law is written, it is usually interpreted to mean exactly what it says (especially when money is involved).  Therefore this law would exclude Kristina&#039;s Charlie, as well as my Buddy Boy, as neither carries a diagnosis of &quot;Asperger&#039;s Syndrome&quot;.

It&#039;s a shame that the law was not written to include &lt;i&gt;all&lt;/i&gt;disabled who need support services in the community.</description>
		<content:encoded><![CDATA[<p><b><i>The purpose of the initiative is to provide vocational, educational and social training services to persons with Asperger’s Syndrome, &#8230;</i></b></p>
<p>When a law is written, it is usually interpreted to mean exactly what it says (especially when money is involved).  Therefore this law would exclude Kristina&#8217;s Charlie, as well as my Buddy Boy, as neither carries a diagnosis of &#8220;Asperger&#8217;s Syndrome&#8221;.</p>
<p>It&#8217;s a shame that the law was not written to include <i>all</i>disabled who need support services in the community.</p>
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		<title>By: Kristina Chew, PhD</title>
		<link>http://www.blisstree.com/articles/i-can-assure-you-that-no-one-knows-the-autism-spectrum-better-than-someone-on-it/comment-page-1/#comment-531394</link>
		<dc:creator>Kristina Chew, PhD</dc:creator>
		<pubDate>Thu, 01 Mar 2007 20:01:47 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/i-can-assure-you-that-no-one-knows-the-autism-spectrum-better-than-someone-on-it/#comment-531394</guid>
		<description>I have met Ari Ne&#039;eman --- with my son Charlie present --- there are great differences in their skills (and ages, Ne&#039;eman being in college) but there are some similarities; Ne&#039;eman&#039;s point about the difficulties in communication and in using language for an autistic person applies to many &quot;strata&quot; of those on the spectrum (in my opinion). It is important to work together, autistic persons, parents, professionals, as I think we can learn a lot from each other and help each other.</description>
		<content:encoded><![CDATA[<p>I have met Ari Ne&#8217;eman &#8212; with my son Charlie present &#8212; there are great differences in their skills (and ages, Ne&#8217;eman being in college) but there are some similarities; Ne&#8217;eman&#8217;s point about the difficulties in communication and in using language for an autistic person applies to many &#8220;strata&#8221; of those on the spectrum (in my opinion). It is important to work together, autistic persons, parents, professionals, as I think we can learn a lot from each other and help each other.</p>
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		<title>By: Harold Doherty</title>
		<link>http://www.blisstree.com/articles/i-can-assure-you-that-no-one-knows-the-autism-spectrum-better-than-someone-on-it/comment-page-1/#comment-531392</link>
		<dc:creator>Harold Doherty</dc:creator>
		<pubDate>Thu, 01 Mar 2007 18:49:57 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/i-can-assure-you-that-no-one-knows-the-autism-spectrum-better-than-someone-on-it/#comment-531392</guid>
		<description>&quot;The true voice of autism is “the autistic community, that of individuals actually on the spectrum.”

That&#039;s great.  

And who speaks for those on the autism spectrum who can not speak at all? Surely not people with communication skills such as demonstrated by Ari Ne&#039;eman. Surely he is not suggesting that parents of autistic children, whether they are still children or adults, should transfer their legal and moral obligations to speak on behalf of their children, who can not communicate for themselves, to someone who has such advanced communication skills.  It seems strange that Ari Ne&#039;emen would want to take back his right to speak for himself and then assert a right to speak on behalf of someone who has fundamentally different realities.</description>
		<content:encoded><![CDATA[<p>&#8220;The true voice of autism is “the autistic community, that of individuals actually on the spectrum.”</p>
<p>That&#8217;s great.  </p>
<p>And who speaks for those on the autism spectrum who can not speak at all? Surely not people with communication skills such as demonstrated by Ari Ne&#8217;eman. Surely he is not suggesting that parents of autistic children, whether they are still children or adults, should transfer their legal and moral obligations to speak on behalf of their children, who can not communicate for themselves, to someone who has such advanced communication skills.  It seems strange that Ari Ne&#8217;emen would want to take back his right to speak for himself and then assert a right to speak on behalf of someone who has fundamentally different realities.</p>
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