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	<title>Comments on: On being an involved autism mother</title>
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	<link>http://www.blisstree.com/articles/on-being-an-involved-autism-mother/</link>
	<description>Family, Health, Home and Lifestyles</description>
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		<title>By: Robert Kennedy, Jr., and the EPA?</title>
		<link>http://www.blisstree.com/articles/on-being-an-involved-autism-mother/comment-page-1/#comment-554546</link>
		<dc:creator>Robert Kennedy, Jr., and the EPA?</dc:creator>
		<pubDate>Thu, 06 Nov 2008 04:43:03 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/on-being-an-involved-autism-mother/#comment-554546</guid>
		<description>[...] Robert F. Kennedy, Jr., who, in June of 2007, equated those people criticizing mothers of autistic children who believe that thimerasol in vaccines causes autism with those who “once blamed autism on ‘bad parenting,’ and ‘uninvolved’ [...]</description>
		<content:encoded><![CDATA[<p>[...] Robert F. Kennedy, Jr., who, in June of 2007, equated those people criticizing mothers of autistic children who believe that thimerasol in vaccines causes autism with those who “once blamed autism on ‘bad parenting,’ and ‘uninvolved’ [...]</p>
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		<title>By: Excuse me, I think your child may have autism&#8230;&#8230;&#8230;</title>
		<link>http://www.blisstree.com/articles/on-being-an-involved-autism-mother/comment-page-1/#comment-539451</link>
		<dc:creator>Excuse me, I think your child may have autism&#8230;&#8230;&#8230;</dc:creator>
		<pubDate>Sat, 15 Sep 2007 16:34:10 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/on-being-an-involved-autism-mother/#comment-539451</guid>
		<description>[...] Jonah has autism, in an essay on Babble entitled Dear Stranger. What do you, autism parent&#8212;-involved autism parent&#8212;do? Do you drop the &#8220;a&#8221; word? Mention Early Intervention? Just say [...]</description>
		<content:encoded><![CDATA[<p>[...] Jonah has autism, in an essay on Babble entitled Dear Stranger. What do you, autism parent&#8212;-involved autism parent&#8212;do? Do you drop the &#8220;a&#8221; word? Mention Early Intervention? Just say [...]</p>
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		<title>By: O Tempora, O Mores: Connecting the California condor, 9-11, chelation, and autistic children</title>
		<link>http://www.blisstree.com/articles/on-being-an-involved-autism-mother/comment-page-1/#comment-536084</link>
		<dc:creator>O Tempora, O Mores: Connecting the California condor, 9-11, chelation, and autistic children</dc:creator>
		<pubDate>Sun, 01 Jul 2007 07:47:37 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/on-being-an-involved-autism-mother/#comment-536084</guid>
		<description>[...] LoPresti. Since the word &#8220;chemical detoxification&#8221; appears in the next sentence, and Robert Kennedy, Jr., is mentioned in the third sentence, a reader may not be too surprised to see that LoPresti [...]</description>
		<content:encoded><![CDATA[<p>[...] LoPresti. Since the word &#8220;chemical detoxification&#8221; appears in the next sentence, and Robert Kennedy, Jr., is mentioned in the third sentence, a reader may not be too surprised to see that LoPresti [...]</p>
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		<title>By: vincent</title>
		<link>http://www.blisstree.com/articles/on-being-an-involved-autism-mother/comment-page-1/#comment-535645</link>
		<dc:creator>vincent</dc:creator>
		<pubDate>Thu, 21 Jun 2007 03:22:54 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/on-being-an-involved-autism-mother/#comment-535645</guid>
		<description>Ladies, thnx for the insight! 

Good to see that I&#039;m in such great (Daddy)company.

Kristina, your family rocks!

I guess I&#039;ll end on this note, THE BRAVEST ARE SURELY THOSE WHO HAVE THE CLEAREST VISION OF WHAT LIES BEFORE THEM. GLORY AND DANGER ALIKE AND YET, NOTWITHSTANDING, GO OVER TO MEET IT&quot;
Never surrender.</description>
		<content:encoded><![CDATA[<p>Ladies, thnx for the insight! </p>
<p>Good to see that I&#8217;m in such great (Daddy)company.</p>
<p>Kristina, your family rocks!</p>
<p>I guess I&#8217;ll end on this note, THE BRAVEST ARE SURELY THOSE WHO HAVE THE CLEAREST VISION OF WHAT LIES BEFORE THEM. GLORY AND DANGER ALIKE AND YET, NOTWITHSTANDING, GO OVER TO MEET IT&#8221;<br />
Never surrender.</p>
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		<title>By: Kristina Chew, PhD</title>
		<link>http://www.blisstree.com/articles/on-being-an-involved-autism-mother/comment-page-1/#comment-535643</link>
		<dc:creator>Kristina Chew, PhD</dc:creator>
		<pubDate>Thu, 21 Jun 2007 02:53:36 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/on-being-an-involved-autism-mother/#comment-535643</guid>
		<description>Vincent, it&#039;s been great to hear from you again----am overwhelmed by your generous words. I can only say, life with Charlie has taught me that there can be a &quot;new normal&quot;----if I may use an analogy, sort of like the way that one&#039;s life is transformed when one falls in love: Things are very different (in a very positive way), and a different way of being emerges.

Regarding dads and moms----I prefer to let the dad in our house do the talking on this topic. Due to our circumstances, we have had a fairly traditional set-up of Jim being the main breadwinner and me, while working, attending to most of Charlie&#039;s care. This balance is slowly shifting, in part because of where Jim is in his career and where I am in mine. Jim is now on &quot;morning duty&quot; with the bus; Jim made the decision to teach Charlie to ride his bike and to take off the training wheels. 

Sometimes I have wondered if my spending more time with Charlie (again, due to circumstances----when one&#039;s husband works in the Bronx, as did Jim for some years, and one lives in central New Jersey, the commute is long.......) has helped me &quot;get over&quot; some tough and sad feelings. I&#039;ve done so much with Charlie, spent hectic afternoons rushing here and there in all sorts of weather with him, spent long and dull afternoons in the house wishing for the clock to move faster. 

We&#039;re more 50/50 than we ever have been now---I always tell Jim that Charlie calls for &quot;Dad&quot; when he&#039;s gone, and Jim tells me there&#039;s one word Charlie keeps saying when I am not around.</description>
		<content:encoded><![CDATA[<p>Vincent, it&#8217;s been great to hear from you again&#8212;-am overwhelmed by your generous words. I can only say, life with Charlie has taught me that there can be a &#8220;new normal&#8221;&#8212;-if I may use an analogy, sort of like the way that one&#8217;s life is transformed when one falls in love: Things are very different (in a very positive way), and a different way of being emerges.</p>
<p>Regarding dads and moms&#8212;-I prefer to let the dad in our house do the talking on this topic. Due to our circumstances, we have had a fairly traditional set-up of Jim being the main breadwinner and me, while working, attending to most of Charlie&#8217;s care. This balance is slowly shifting, in part because of where Jim is in his career and where I am in mine. Jim is now on &#8220;morning duty&#8221; with the bus; Jim made the decision to teach Charlie to ride his bike and to take off the training wheels. </p>
<p>Sometimes I have wondered if my spending more time with Charlie (again, due to circumstances&#8212;-when one&#8217;s husband works in the Bronx, as did Jim for some years, and one lives in central New Jersey, the commute is long&#8230;&#8230;.) has helped me &#8220;get over&#8221; some tough and sad feelings. I&#8217;ve done so much with Charlie, spent hectic afternoons rushing here and there in all sorts of weather with him, spent long and dull afternoons in the house wishing for the clock to move faster. </p>
<p>We&#8217;re more 50/50 than we ever have been now&#8212;I always tell Jim that Charlie calls for &#8220;Dad&#8221; when he&#8217;s gone, and Jim tells me there&#8217;s one word Charlie keeps saying when I am not around.</p>
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		<title>By: Niksmom</title>
		<link>http://www.blisstree.com/articles/on-being-an-involved-autism-mother/comment-page-1/#comment-535003</link>
		<dc:creator>Niksmom</dc:creator>
		<pubDate>Thu, 21 Jun 2007 01:42:11 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/on-being-an-involved-autism-mother/#comment-535003</guid>
		<description>V, thanks for the link.  I&#039;ll pass it along to Niksdad.  At the risk of stereotyping along gender lines (and no offense is meant in any way! What follows is based on my personal experiences and observations from many years working in volunteer organizations with men and women)---I wonder if it is so much denial as it may be a means of feeling some greater measure of control over something that feels so overwhelmingly out of control?  For example, I know Niksdad is a methodical planner and a great problem-solver.  It has been tough for him to wrap his brain around some things which are, admittedly, an awful lot less black and white than he is used to (he is an engineer but has gone back to school for a career change)--- like trying to figure out why our son goes through cycles of eating/not eating by mouth.

The things you mention which a lot of dads focus on are, I think, things that they can &quot;fix&quot; (or plan or manage...) and feel more grounded.  I know as I give Niksdad the space to do those things and he steps up to help with some of the more mundane household things, it gives me the mental breathing space to regroup, strategize, advocate, mother, etc. AND to then be able to teach Niksdad about those same things.

I&#039;m not feeling very articulate tonight so I wonder if I am making sense! Feel free to check out my blog site and email me from there. I&#039;d love to continue this diaglogue further.  I think you raise some very pertinent issues/questions ---and I am pretty sure from what I&#039;ve been reading on lots of *moms&#039;* blogs, there are quite a number of dads who are fairly equal partners in parenting. But, I agree---it could always be better!</description>
		<content:encoded><![CDATA[<p>V, thanks for the link.  I&#8217;ll pass it along to Niksdad.  At the risk of stereotyping along gender lines (and no offense is meant in any way! What follows is based on my personal experiences and observations from many years working in volunteer organizations with men and women)&#8212;I wonder if it is so much denial as it may be a means of feeling some greater measure of control over something that feels so overwhelmingly out of control?  For example, I know Niksdad is a methodical planner and a great problem-solver.  It has been tough for him to wrap his brain around some things which are, admittedly, an awful lot less black and white than he is used to (he is an engineer but has gone back to school for a career change)&#8212; like trying to figure out why our son goes through cycles of eating/not eating by mouth.</p>
<p>The things you mention which a lot of dads focus on are, I think, things that they can &#8220;fix&#8221; (or plan or manage&#8230;) and feel more grounded.  I know as I give Niksdad the space to do those things and he steps up to help with some of the more mundane household things, it gives me the mental breathing space to regroup, strategize, advocate, mother, etc. AND to then be able to teach Niksdad about those same things.</p>
<p>I&#8217;m not feeling very articulate tonight so I wonder if I am making sense! Feel free to check out my blog site and email me from there. I&#8217;d love to continue this diaglogue further.  I think you raise some very pertinent issues/questions &#8212;and I am pretty sure from what I&#8217;ve been reading on lots of *moms&#8217;* blogs, there are quite a number of dads who are fairly equal partners in parenting. But, I agree&#8212;it could always be better!</p>
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		<title>By: Kathy</title>
		<link>http://www.blisstree.com/articles/on-being-an-involved-autism-mother/comment-page-1/#comment-535002</link>
		<dc:creator>Kathy</dc:creator>
		<pubDate>Thu, 21 Jun 2007 01:38:53 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/on-being-an-involved-autism-mother/#comment-535002</guid>
		<description>My Hubby is great with our little guy, always has been.

 Even before he was diagnosed with autism.

 When Mark was a little baby Hubby would pack up both  he and our (then) four year old daughter and take them for a visit to his Mom&#039;s or brother&#039;s home to give me a chance to get things done around the house.

 Good fathers who are involved in their child&#039;s life, don&#039;t suddenly turn into bad fathers once their child is diagnosed with autism.

Also of all the autistic fathers that I know,all are involved in their kid&#039;s lives.

 One I know is even a stay at home dad, while his wife goes out to work.

Generally I find more fathers ARE involved in their child&#039;s lives these days.

Certainly it was not the case when I was a child.
 Though fortunately for me my Dad (coming from a large Italian family of eight boys)was always a hands on father. Often cooking great pasta dishes for us all. Taking us out, and playing cricket and football in our big back yard.

I do remember though, back then, many fathers were not as involved with their kids as was my dad.</description>
		<content:encoded><![CDATA[<p>My Hubby is great with our little guy, always has been.</p>
<p> Even before he was diagnosed with autism.</p>
<p> When Mark was a little baby Hubby would pack up both  he and our (then) four year old daughter and take them for a visit to his Mom&#8217;s or brother&#8217;s home to give me a chance to get things done around the house.</p>
<p> Good fathers who are involved in their child&#8217;s life, don&#8217;t suddenly turn into bad fathers once their child is diagnosed with autism.</p>
<p>Also of all the autistic fathers that I know,all are involved in their kid&#8217;s lives.</p>
<p> One I know is even a stay at home dad, while his wife goes out to work.</p>
<p>Generally I find more fathers ARE involved in their child&#8217;s lives these days.</p>
<p>Certainly it was not the case when I was a child.<br />
 Though fortunately for me my Dad (coming from a large Italian family of eight boys)was always a hands on father. Often cooking great pasta dishes for us all. Taking us out, and playing cricket and football in our big back yard.</p>
<p>I do remember though, back then, many fathers were not as involved with their kids as was my dad.</p>
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		<title>By: vincent</title>
		<link>http://www.blisstree.com/articles/on-being-an-involved-autism-mother/comment-page-1/#comment-535005</link>
		<dc:creator>vincent</dc:creator>
		<pubDate>Thu, 21 Jun 2007 01:21:06 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/on-being-an-involved-autism-mother/#comment-535005</guid>
		<description>Actually, a  good dads site is: fathersnetwork.org

Nmom, just speaking as a dad knee deep in this experince. Dont want to overgeneralize, but I feel many dads have a somewhat longer period of denial about autism and its implications. I think, overall, we dads tend to focus on long term matters such as the financial callenges, while many moms respond to the challenges of the daily care. By being less involved in the daily interaction with our children/young adults us dads tend to have a somewhat longer period of denial. Love to get constructive feedback about this.</description>
		<content:encoded><![CDATA[<p>Actually, a  good dads site is: fathersnetwork.org</p>
<p>Nmom, just speaking as a dad knee deep in this experince. Dont want to overgeneralize, but I feel many dads have a somewhat longer period of denial about autism and its implications. I think, overall, we dads tend to focus on long term matters such as the financial callenges, while many moms respond to the challenges of the daily care. By being less involved in the daily interaction with our children/young adults us dads tend to have a somewhat longer period of denial. Love to get constructive feedback about this.</p>
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		<title>By: vincent</title>
		<link>http://www.blisstree.com/articles/on-being-an-involved-autism-mother/comment-page-1/#comment-535639</link>
		<dc:creator>vincent</dc:creator>
		<pubDate>Thu, 21 Jun 2007 00:59:18 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/on-being-an-involved-autism-mother/#comment-535639</guid>
		<description>Would still like more dads to step up to the plate. If you&#039;re at the plate already, I salute ya. 
Honestly, the moms really can use the help out here.</description>
		<content:encoded><![CDATA[<p>Would still like more dads to step up to the plate. If you&#8217;re at the plate already, I salute ya.<br />
Honestly, the moms really can use the help out here.</p>
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		<title>By: Niksmom</title>
		<link>http://www.blisstree.com/articles/on-being-an-involved-autism-mother/comment-page-1/#comment-535018</link>
		<dc:creator>Niksmom</dc:creator>
		<pubDate>Wed, 20 Jun 2007 23:51:36 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/on-being-an-involved-autism-mother/#comment-535018</guid>
		<description>Vincent, I can vouch for Joe&#039;s statement that many dad&#039;s help.  Niksdad is an amazing partner to me and is always willing to pick up the slack, brainstorm, attned IEP meetings, therapy sessions, Dr&#039;s appointments, etc.  All that AND he is going to school and working. Yep, he&#039;s pretty special!</description>
		<content:encoded><![CDATA[<p>Vincent, I can vouch for Joe&#8217;s statement that many dad&#8217;s help.  Niksdad is an amazing partner to me and is always willing to pick up the slack, brainstorm, attned IEP meetings, therapy sessions, Dr&#8217;s appointments, etc.  All that AND he is going to school and working. Yep, he&#8217;s pretty special!</p>
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