Thank you for reading my comment. I am very interested in getting this info out to the world and sometime ago actually started a “free website” about it. The main reason I commented in the first place is because some of the potential characteristics of Fragile X-e are Asberbergers, Autisum, mental retardation, speech and language delays, and more, BUT this doesn’t mean they all apply to any one individual. My oldest grandson who is nearing 17 not only had behavioral issues, speech and language delays, but also had overactive salivary glands. However, with surgery two neck glands were removed this past Fall 2007 and he is doing 100% better with that problem, his speech has improved 99.9% over the years and his behavioral problems subsided as he matured during middle school including all of his drugs at his choice have been eliminated as of last Fall. It was just announced at my eleven year old’s IEP this past Spring 2008 (for those who are unaware of this acronym, it means Individual Education Plan) just graduated from speech and language April 2008 and also does not need to revisit with his Psychiatrist who managed his behavioral medication. For those who do not know what kind of blood work to ask their doctors to check for, it is a blood panel for: lead, iron, glucose, thyroid and chromosomes (in our family’s genetics the issue is chromosomes, I too have this condition). Unfortunately, some doctors only order a test for Fragile X-a and not X-e.

Hope your grandsons are doing all right now—-thank you writing here. We had my son tested for Fragile-X and he does not have it (he was only 2 at the time). Yes, as you wrote—

“not all children who are unruley are just acting out as brats or unmanaged by their parents/care givers”

—have to second your words.