Comments on: Sensible Accommodations for Sensory Issues

By: Kassiane

Kassiane — Wed, 03 Sep 2008 07:57:59 +0000

I’m not a parent but an autistic/epileptic with massive sensory issues.

Topamax is freaking excellent for mine, I’ve noticed. Except at the wrong dose it made me really out of it.

By: MINDY

MINDY — Mon, 01 Sep 2008 02:30:42 +0000

Hi Caroline – I wanted to ask you about the anti-seziure drug your child takes for SPD. I am a physical therapist with 23 years experience in pediatrics, many of those doing sensory integration therapy. In fact I am probably a SPD info junkie. I have seen so many success stories and have helped so many children just by being able to tell their parents I knew why their child did the things they do and what they could do to help them feel and fit in better. I now have a daughter who is 4 1/2. She was adopted at 10 months. She is legally blind, drug exposed and very smart! However, she has significant sensory modulation problems and behavior issues that we struggle with daily. I also have a 12 year old son (biological) with SPD, but much more mild and managable. Long story- sorry, anyway, I feel like I’ve tried most of the treatments recommended for SPD, including diet changes, listening therapy, and ALOT of vestibular and proprioceptive stim (even brushing which I don’t really use much). I have struggled for a while with the idea of trying medication, but I feel like sensory integration therapies alone are not enough. We tried Abilify this summer, It just made our little girl tired and weepy, so not a good trade. The behaviors we deal with are primarily emotional outbursts, hitting, screaming, biting, kicking… .Poor self calming, difficulty with transitions, poor peer interactions, very low frustration level… . Please let me know what your child takes. I have been thinking about asking the pediatrician for an anti seziure drug, as I’ve heard this is sometimes a good choice. Thanks for listening!

By: What Sound Does a Color Make?: Auditory Synesthesia

What Sound Does a Color Make?: Auditory Synesthesia — Thu, 07 Aug 2008 17:06:23 +0000

[...] over the signs of sensory dysfunction(?) in Charlie this year, the hands over the ears (more of htis a few months ago) and all the recent [...]

By: The Phantom Menace?

The Phantom Menace? — Fri, 20 Jun 2008 01:29:59 +0000

[...] menace,” as an article in Babble puts it? Many autistic individuals note difficulties with sensory stimuli. Maybe “menace” isn’t quite the right way to refer to sensory processing [...]

By: Bonnie Sayers

Bonnie Sayers — Sun, 27 Apr 2008 04:32:47 +0000

Good post. Sounds a lot like my son Matthew. I too can remember the first visit to an OT for Nick in 1998 at the childrens hospital in Los Angeles and not knowing any of the terms. I say sensory issues so often now and no one ever asks what that means.

I am looking forward to the post conference with Dr Stanley Greenspan on sensory processing disorders that will take place online in May.

By: Sensory Fear Factor

Sensory Fear Factor — Thu, 11 Oct 2007 17:50:44 +0000

[...] presentation that she created to give others a better understanding of the disordered and different sensory processing systems of autistic persons. The October 10th WHP CBS (Harrisburg, PA) notes that she sought to simulate [...]

By: Teaching Strategy #11: Training and the Problem With the Basket Hold

Teaching Strategy #11: Training and the Problem With the Basket Hold — Fri, 22 Jun 2007 05:26:51 +0000

[...] Best Way to Teach Autistic Children” with all due respect to their sensory needs, communication difficulties, intellectual ability, and dignity is a topic that can (I think) [...]

By: The Truth About Fat and French Fries

The Truth About Fat and French Fries — Mon, 11 Jun 2007 00:09:42 +0000

[...] (hint: there’s a Big Mac that looks more like Big Mess; if you were expecting one sort of sensory experience, you might be disappointed, and also in a gustatory way). I’ve yet to find a French fry that [...]

By: Marcie

Marcie — Wed, 06 Jun 2007 23:18:59 +0000

“I also think segregation of ANY individual from the ‘NT’ population is
wrong no matter what the diagnosis.”

I disagree, to an extent. It’s good for kids on the spectrum to be around NT kids IF they are understanding. But sometimes the best thing you can do is keep them away from other kids. Of course, there’s the issue of bullying. Hand in hand with that is another issue: when I’m around people who are somewhat like me, even if they’re technically nt, I can emulated that to a certain degree. If I’m around people who are on the opposite side of the human spectrum, then I just get confused and don’t know what to do.

But then I’m coming from the exact opposite perspective you are. That is, I had NO diagnosis growing up. I was expect to just “deal with it”, no matter what “it” was.

By: Jannalou

Jannalou — Wed, 06 Jun 2007 00:57:59 +0000

Sensory processing differences are common in ADHD and other developmental disorders, as well. I think, unless people are willing to pull all of those other disorders into the umbrella of either PDD or ASD, it is best to keep SPD as a separate diagnosis. But that’s me – an ADDult with various sensory processing differences and coordination problems.