Comments on: Sometimes Moving Is All You Can Do

By: sue

sue — Thu, 28 Aug 2008 17:17:53 +0000

We found this to be true, too. We were originally from NJ, then moved to CA and lived there, happily, for 9 years. When we realized how much we missed our east coast family, we moved back to NJ. By then (last year), our son was 19, almost 20. We rented last year, then realized how bad the adult services were in NJ, so we just moved again, this time to NY. We bought a house here in Rockland County and have been told by our case manager (thru the Medicaid waiver) that our son could probably get in a group home within 1 to 2 years of applying. It sure beats waiting 10 to 20 years (or maybe forever) in NJ!

By: Val

Val — Mon, 02 Jun 2008 00:48:03 +0000

our move fell through so we have to work with what we have here.

By: california law school

california law school — Sun, 01 Jun 2008 23:23:33 +0000

[...] to get services for their autistic child in another part of the country. Doug and Caroline Hall ahttp://www.autismvox.com/sometimes-moving-is-all-you-can-do/Law school sells Old Town campus for 12 million San Diego Daily Transcript via Yahoo! News The [...]

By: Kristina Chew, PhD

Kristina Chew, PhD — Sun, 01 Jun 2008 20:59:54 +0000

I never unpacked a lot of our things from suitcases after this most recent move, into a rental condo—-knew we’d be on the road again. And we stopped worrying about furniture etc. and just try to have what we need—Charlie for sure is very good about all of this.

Imagine factoring in the security deposit into those out of pocket expenses—every penny has been more than worth it. We would have most likely spent just as much on a child who didn’t have special needs, we often think.

By: niksmom

niksmom — Sun, 01 Jun 2008 20:00:12 +0000

I wonder if anyone has ever bothered to consider this factor in any of the studies/surveys done on the out of pocket costs borne by families with (an) autistic member(s)? You know, in addition to all the $$ shelled out for various therapies, medical/biomed treatmetns, home modifications, special diets, meds, etc…

By: RG

RG — Sun, 01 Jun 2008 17:53:03 +0000

It’s true, moving is sometimes all you can do. I’m not happy about it but I anticipate we may have to move again in the near future as my son nears the age of attending a very large high school. Knowing how some districts provide services it’s a scary thought.

I enjoyed reading your posts today, they really got me thinking this morning especially about the Chevy analogy.

By: Bonnie Sayers

Bonnie Sayers — Sun, 01 Jun 2008 17:34:27 +0000

I have no plans for leaving the State of CA. We can stay in LA for the Zoo for Nick to work and Matt to get services with Jay Nolan or to San Diego for Nick to be at Sea World and Matt to get services at St. Madeline Sophie’s center where Chantal Sicile-Kira’s son works and Mark Rimland is as well.

There is also nothern CA where the rate of pay for IHSS workers (which I am) is about $3-4 higher, although cost of living is also.

I watch Open House on HGTV to see home prices and keeping an open mind. Also belong to an Autism CA group and many are up North and I get feedback on Regional center locations, which ones are better, etc.

At one point Nick wanted to be a palentologist, until a fourth grade report revealed thru research the years of schooling, although that would be at UC Berkely.

By: flax hulls

flax hulls — Sun, 01 Jun 2008 17:20:25 +0000

The government has a shameful track record in regards to dealing with people who suffer from any form of mental deficit or condition like Autism. How long ago did they open the doors to the mental hospitals which lead to the homeless problem we have today? What will happen when this tsunami of autistic children (the more seriously effected) reach their 50’s and their caregivers have passed away? The planets are going to align in about 20-30 years to cause a crisis is predictable and unavoidable. SSI will be on the brink of bankruptcy and the number of productive workers is morphed by the number of elderly SSI recipients. There just won’t be any money available to take care of the autistic let alone the elderly. Add to this problem is the projection that in 20-30 years India and China will be the number 1-2 world economic leaders. (bases on growing gnp and other factors I follow as I’m in the import business) The US is projected to be 4 or 5. Our dollar in 20-30 years…. I don’t want to go there, but use your imagination.

The liberals may get their desire in 20-30 years and we may become a socialist governement ruled by the world elite. The masses may beg for this option to avoid starvation. The middle class is being destroyed before our eyes as well as the value of our dollar. 911 and the subsequent trillions of dollars wasted since then will go down in history IMO as the straw that broke the camels back.

To sum up, funding for autistic programs today is not going to solve the problems facing this governement in the future and may just hasten the inevitable collapse and subsequent turn towards tyranny.