Comments on: The First Cause: Charlie, the Unmoved Mover http://www.blisstree.com/articles/the-first-cause/ Family, Health, Home and Lifestyles Tue, 15 Dec 2009 20:21:59 -0500 http://wordpress.org/?v=2.8.4 hourly 1 By: Kristina Chew, PhD http://www.blisstree.com/articles/the-first-cause/comment-page-1/#comment-534975 Kristina Chew, PhD Mon, 28 May 2007 14:52:45 +0000 http://www.autismvox.com/the-first-cause/#comment-534975 Gosia, I will answer your questions over the course of the upcoming week. And when you are able, I would like much to know about autism in Poland. Gosia, I will answer your questions over the course of the upcoming week. And when you are able, I would like much to know about autism in Poland.

]]> By: gosia http://www.blisstree.com/articles/the-first-cause/comment-page-1/#comment-534988 gosia Mon, 28 May 2007 12:39:40 +0000 http://www.autismvox.com/the-first-cause/#comment-534988 Hi, There's something wrong with my e-mail box, so I've decided to give my questions here. So, if you can help me, that will be just great!!!! 1. Who has suggested you that your child could be autistic? 2. Who has made the diagnosis that your child is autistic? 3. What was the competence of the specialists diagnosing the child in autism? 4. What did you hear after first diagnosis? some suggestions? some help? 5. Who was present, when you have heard the diagnosis 6. What did you feel when you heard the diagnosis? 7. Did you await support at that time? (If so, what kind of support and from whom?) 8. What difficulties did you have when you needed help? 9. Are you members of the support groups? 10. Has any therapeutic help been offered to your family in the Early Intervention Center? 11. Has any specialist come to your home? What for? 12. Was the offered help adequate to what you needed? 13. What do you think about the support of the proffesionals? 14. Did the Early Intervention Center cooperate with you? What kind of the cooperation was that? 15. Is your family in care of one person supervising the specialistic opinions about the child’s state? 16. Is such a person In your opinion such necessery? 17. Did the workers of the Early Intervention Center give you any practical advices? 18. Have you been given the instructions about child’s therapy 19. Have the child’s documentation been kept in the Early Intervention Center? 20. Have any others diagnoses been made about child? 21. Has your child been diagnosed once again later? (When? On whose request? Where? What was the diagnosis?) I know, that that's so many questions and I thank everyone who will answer. If you don't want to write public, pleace sent it to my email. I'm asking, because I want to help families in Poland. Thank you Gosia Hi,

There’s something wrong with my e-mail box, so I’ve decided to give my questions here. So, if you can help me, that will be just great!!!!
1. Who has suggested you that your child could be autistic?
2. Who has made the diagnosis that your child is autistic?
3. What was the competence of the specialists diagnosing the child in autism?
4. What did you hear after first diagnosis? some suggestions? some help?
5. Who was present, when you have heard the diagnosis
6. What did you feel when you heard the diagnosis?
7. Did you await support at that time? (If so, what kind of support and from whom?)
8. What difficulties did you have when you needed help?
9. Are you members of the support groups?
10. Has any therapeutic help been offered to your family in the Early Intervention Center?
11. Has any specialist come to your home? What for?
12. Was the offered help adequate to what you needed?
13. What do you think about the support of the proffesionals?
14. Did the Early Intervention Center cooperate with you? What kind of the cooperation was that?

15. Is your family in care of one person supervising the specialistic opinions about the child’s state?

16. Is such a person In your opinion such necessery?
17. Did the workers of the Early Intervention Center give you any practical advices?

18. Have you been given the instructions about child’s therapy

19. Have the child’s documentation been kept in the Early Intervention Center?

20. Have any others diagnoses been made about child?
21. Has your child been diagnosed once again later? (When? On whose request? Where? What was the diagnosis?)

I know, that that’s so many questions and I thank everyone who will answer. If you don’t want to write public, pleace sent it to my email. I’m asking, because I want to help families in Poland.
Thank you
Gosia

]]> By: Kristina Chew, PhD http://www.blisstree.com/articles/the-first-cause/comment-page-1/#comment-534720 Kristina Chew, PhD Sun, 27 May 2007 16:14:35 +0000 http://www.autismvox.com/the-first-cause/#comment-534720 Dear Gosia, I'm very glad to answer any emails and questions about autism. You can reach me at kristina AT b5media DOT com and I will try to contact you, too. Dear Gosia,

I’m very glad to answer any emails and questions about autism. You can reach me at kristina AT b5media DOT com and I will try to contact you, too.

]]> By: gosia http://www.blisstree.com/articles/the-first-cause/comment-page-1/#comment-534783 gosia Sun, 27 May 2007 08:24:58 +0000 http://www.autismvox.com/the-first-cause/#comment-534783 Hi, I'm polish student and I very interested in autism. Would you like to answer few question about the early intervention in USA? I wait for your e-mails. Thank you Gosia Hi,

I’m polish student and I very interested in autism. Would you like to answer few question about the early intervention in USA? I wait for your e-mails. Thank you
Gosia

]]> By: Autism Vox » The Causes, and the Cause, of Autism http://www.blisstree.com/articles/the-first-cause/comment-page-1/#comment-534021 Autism Vox » The Causes, and the Cause, of Autism Thu, 03 May 2007 06:20:41 +0000 http://www.autismvox.com/the-first-cause/#comment-534021 [...] differences of definitions of the Latin causa, or the causes of autism, or of autism. My own first cause—my son Charlie—who has lived through many a firestorm—school placements, tough [...] [...] differences of definitions of the Latin causa, or the causes of autism, or of autism. My own first cause—my son Charlie—who has lived through many a firestorm—school placements, tough [...]

]]> By: Allison Edwards http://www.blisstree.com/articles/the-first-cause/comment-page-1/#comment-531098 Allison Edwards Sun, 18 Feb 2007 19:10:52 +0000 http://www.autismvox.com/the-first-cause/#comment-531098 Agreed. I have changed entirely since discovering my son's autism. Some friends have fallen by the wayside but have to say I am so glad this happened because the people I have met because of him has put back my faith in the human race. Of course there have been others I will never forget, like the dreadful woman who walloped my son because he gave her a shove as she moved to close to us as I reported a lost bag at Sardinia airport last Summer. His outward perfection prevents others understanding the true depth of his disablilty. He has no speech and little understanding of our world and is likely to suffer unless I am always there to protect him.....Anyone got any ideas of how to live forever? Agreed. I have changed entirely since discovering my son’s autism. Some friends have fallen by the wayside but have to say I am so glad this happened because the people I have met because of him has put back my faith in the human race. Of course there have been others I will never forget, like the dreadful woman who walloped my son because he gave her a shove as she moved to close to us as I reported a lost bag at Sardinia airport last Summer. His outward perfection prevents others understanding the true depth of his disablilty. He has no speech and little understanding of our world and is likely to suffer unless I am always there to protect him…..Anyone got any ideas of how to live forever?

]]> By: diane http://www.blisstree.com/articles/the-first-cause/comment-page-1/#comment-531084 diane Sun, 18 Feb 2007 14:51:50 +0000 http://www.autismvox.com/the-first-cause/#comment-531084 I love this post. Thank you. Your example is an inspiration. Sincerely, Diane I love this post. Thank you. Your example is an inspiration. Sincerely, Diane

]]> By: Kristina Chew, PhD http://www.blisstree.com/articles/the-first-cause/comment-page-1/#comment-531067 Kristina Chew, PhD Sat, 17 Feb 2007 18:44:37 +0000 http://www.autismvox.com/the-first-cause/#comment-531067 Thanks for reading through it---it's been a most excellent journey of discovery, and humility, and very good times. Allison: What coincidences! Yes, I guess I can say I expect too much of friends and family and yet who wouldn't say that our kids are not the "finest cause on the planet"? Thanks for reading through it—it’s been a most excellent journey of discovery, and humility, and very good times.

Allison: What coincidences! Yes, I guess I can say I expect too much of friends and family and yet who wouldn’t say that our kids are not the “finest cause on the planet”?

]]> By: Daisy http://www.blisstree.com/articles/the-first-cause/comment-page-1/#comment-531066 Daisy Sat, 17 Feb 2007 17:59:25 +0000 http://www.autismvox.com/the-first-cause/#comment-531066 It was well worth the time to read and savor this post. Having children changes our lives; raising disabled children changes our lives in ways that parents of non-disabled and neuro-typicals can never even imagine. I had some information and experience (an autistic cousin), so we actually spotted the symptoms and sought diagnosis before our doctors and teachers did. It's been, and will continue to be, quite a journey. It was well worth the time to read and savor this post. Having children changes our lives; raising disabled children changes our lives in ways that parents of non-disabled and neuro-typicals can never even imagine. I had some information and experience (an autistic cousin), so we actually spotted the symptoms and sought diagnosis before our doctors and teachers did. It’s been, and will continue to be, quite a journey.

]]> By: Allison Edwards http://www.blisstree.com/articles/the-first-cause/comment-page-1/#comment-531065 Allison Edwards Sat, 17 Feb 2007 17:34:57 +0000 http://www.autismvox.com/the-first-cause/#comment-531065 My son Jonathon was born 2/5/97 diagnosed with severe autism July 1999, his older brother Charlie is fine he is 12. We saw Jon change after his MMR. Now autism is all I talk about too, I campaign for issues surrounding his daily life, education, speech and language therapy, respite, toilet changing facilities as he's still in nappies. My friends eyes glaze over too as I discuss his autism - how familiar, perhaps we expect too much of our friends or they're just not up to the job. I did Latin and Ancient Greek at secondary school too. Your words and experiences seemed to coincide so much with my own life, felt compelled to say so. Good luck. My son Jonathon was born 2/5/97 diagnosed with severe autism July 1999, his older brother Charlie is fine he is 12. We saw Jon change after his MMR. Now autism is all I talk about too, I campaign for issues surrounding his daily life, education, speech and language therapy, respite, toilet changing facilities as he’s still in nappies. My friends eyes glaze over too as I discuss his autism – how familiar, perhaps we expect too much of our friends or they’re just not up to the job. I did Latin and Ancient Greek at secondary school too. Your words and experiences seemed to coincide so much with my own life, felt compelled to say so. Good luck.

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