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	<title>Comments on: The Meaning of Autismland: Why I see autism everywhere</title>
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	<link>http://www.blisstree.com/articles/the-meaning-of-autismland/</link>
	<description>Family, Health, Home and Lifestyles</description>
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		<title>By: Believe</title>
		<link>http://www.blisstree.com/articles/the-meaning-of-autismland/comment-page-1/#comment-552154</link>
		<dc:creator>Believe</dc:creator>
		<pubDate>Wed, 18 Jun 2008 04:42:28 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/the-meaning-of-autismland/#comment-552154</guid>
		<description>[...] I knew Charlie&#8217;s diagnosis of autism, I did not&#8212;could not?&#8212;see autism and I often think that prior to Charlie&#8217;s diagnosis, my world was shades of gray, and now [...]</description>
		<content:encoded><![CDATA[<p>[...] I knew Charlie&#8217;s diagnosis of autism, I did not&#8212;could not?&#8212;see autism and I often think that prior to Charlie&#8217;s diagnosis, my world was shades of gray, and now [...]</p>
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		<title>By: Bonnie Sayers</title>
		<link>http://www.blisstree.com/articles/the-meaning-of-autismland/comment-page-1/#comment-556394</link>
		<dc:creator>Bonnie Sayers</dc:creator>
		<pubDate>Wed, 21 May 2008 22:44:25 +0000</pubDate>
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		<description>Good reading in this post and comments as well. I have been using the term &quot;autismfamily&quot; since 2000 when I joined ebay and needed a member id.  I use it on most of the communities I am on as well.  When I first got online many were surprised I had two kids on the spectrum and now it is not that uncommon.</description>
		<content:encoded><![CDATA[<p>Good reading in this post and comments as well. I have been using the term &#8220;autismfamily&#8221; since 2000 when I joined ebay and needed a member id.  I use it on most of the communities I am on as well.  When I first got online many were surprised I had two kids on the spectrum and now it is not that uncommon.</p>
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		<title>By: Insurance Doesn&#8217;t Pay For Groceries&#8212;What About Autism?</title>
		<link>http://www.blisstree.com/articles/the-meaning-of-autismland/comment-page-1/#comment-556368</link>
		<dc:creator>Insurance Doesn&#8217;t Pay For Groceries&#8212;What About Autism?</dc:creator>
		<pubDate>Wed, 21 May 2008 21:12:45 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/the-meaning-of-autismland/#comment-556368</guid>
		<description>[...] Those criteria are under revision but once you know what autism is, you become much more aware of how much autism there is around you. By providing children with the therapies they need, autism is not at all [...]</description>
		<content:encoded><![CDATA[<p>[...] Those criteria are under revision but once you know what autism is, you become much more aware of how much autism there is around you. By providing children with the therapies they need, autism is not at all [...]</p>
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		<title>By: Kristina Chew, PhD</title>
		<link>http://www.blisstree.com/articles/the-meaning-of-autismland/comment-page-1/#comment-530840</link>
		<dc:creator>Kristina Chew, PhD</dc:creator>
		<pubDate>Fri, 09 Feb 2007 07:09:27 +0000</pubDate>
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		<description>Dear Portia,

Thanks so much for reading my posts, first of all, and for your thoughtful comments and clarifications. I read &lt;i&gt;Strange Son&lt;/i&gt; just when it came out and have been thinking about different ways in which to write about it. I more than appreciate your highlighting your use of fairy tales and other mythical references in the book; I have long found much in &lt;a href=&quot;http://www.kristinachew.com/autism/2007/01/proteus_in_auti.html&quot;&gt;ancient mythology&lt;/a&gt; (of the Greeks, in particular) that has helped set my experiences raising my son Charlie into context, and that have shed much light.

It does seem to me that the changeling myth contains echoes and references, some under the surface, that do not sit so well with the autistic adults I have been in communication with; the use of this myth can certainly be further investigated. But I do sense the power of these stories and how they provide a kind of framework for thinking about and through some very difficult moments in the life of an autism mother---in the feelings that parents have when (as you write in the early parts of &lt;i&gt;Strange Son&lt;/i&gt;) they are just discovering &quot;autism.&quot; 

I saw much of my own son &lt;a href=&quot;http://www.kristinachew.com&quot;&gt;Charlie&lt;/a&gt; in your descriptions of Dov, and of Tito---certainly the lovely eyes and the tremendous struggles to express themselves, until the right medium is found.

I am writing an autism book and literature is wound up into i; certainly I would more than appreciate learning what you think of it. Thank you so much for your kind words, and, too, for your work. 

Many regards from Kristina Chew</description>
		<content:encoded><![CDATA[<p>Dear Portia,</p>
<p>Thanks so much for reading my posts, first of all, and for your thoughtful comments and clarifications. I read <i>Strange Son</i> just when it came out and have been thinking about different ways in which to write about it. I more than appreciate your highlighting your use of fairy tales and other mythical references in the book; I have long found much in <a href="http://www.kristinachew.com/autism/2007/01/proteus_in_auti.html">ancient mythology</a> (of the Greeks, in particular) that has helped set my experiences raising my son Charlie into context, and that have shed much light.</p>
<p>It does seem to me that the changeling myth contains echoes and references, some under the surface, that do not sit so well with the autistic adults I have been in communication with; the use of this myth can certainly be further investigated. But I do sense the power of these stories and how they provide a kind of framework for thinking about and through some very difficult moments in the life of an autism mother&#8212;in the feelings that parents have when (as you write in the early parts of <i>Strange Son</i>) they are just discovering &#8220;autism.&#8221; </p>
<p>I saw much of my own son <a href="http://www.kristinachew.com">Charlie</a> in your descriptions of Dov, and of Tito&#8212;certainly the lovely eyes and the tremendous struggles to express themselves, until the right medium is found.</p>
<p>I am writing an autism book and literature is wound up into i; certainly I would more than appreciate learning what you think of it. Thank you so much for your kind words, and, too, for your work. </p>
<p>Many regards from Kristina Chew</p>
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		<title>By: Portia Iversen</title>
		<link>http://www.blisstree.com/articles/the-meaning-of-autismland/comment-page-1/#comment-530831</link>
		<dc:creator>Portia Iversen</dc:creator>
		<pubDate>Fri, 09 Feb 2007 04:23:04 +0000</pubDate>
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		<description>Dear Kristina,
I just wanted to let you know that I read your posts and they are quite beautiful. I was especially touched by your recent post entitled ‘Autismland’ - with your lyrical and heartbreaking references to Joyce’s ‘The Dead’ – the post made me cry when I read it. You are an exquisite writer and I appreciate the depth and breadth of your literary knowledge and the sensitivity with which you make connections and interpretations between autism and literature.  I also appreciate your knowledge of and reference to fairytales and myths and yes, I do have a large collection of these books myself. I lived on fairytales and magic when I was a child because I felt I had no control over my life, our family’s poverty or the mental illness of some of the adults in my life. 

When my son Dov was diagnosed with autism I felt the same sense of helplessness and the same need to stubbornly believe that something better was possible, in spite of the devastating advice to “give up” that was being foisted on me by the “experts”. I felt once again like I was faced with an impossible situation, one that I could not understand or have an impact on. Hence my analogy to the fairy story where the girl is required to spin gold from straw by dawn in order to get her infant returned. I know you are opposed to the ‘changeling myth’ metaphor, but that was my personal emotional experience when my one-year old child stopped responding to me entirely. It took me many years to get to know him again after that because he is nonverbal and he had no means of communication, not even nodding his head or a gesture. But as you probably know, if you read my book, Dov began to communicate at the age of nine. Again, this felt to me like a magical event and it has been a joy beyond words to get to know him. There were a many more fairytale metaphors and references in my book that were cut out of the final version. 

One clarification regarding mythological references - trolls in particular, which you mention in reference to the changeling myth in my book ‘Strange Son’ - in one of your previous posts you say: “images of a human child stolen in the night by trolls and replaced with an ugly, non-human child” -- I do not actually make any reference to trolls in my book and I never describe my son as ugly or non-human. I have never seen him that way or described him that way. I love him very much and I think he is an exquisitely beautiful person. 

Kristina, again, thank you for all your very interesting and insightful posts and the wonderful connections you make. Have you considered writing a book about autism as it relates to literature and vice versa? It would be great to see your ideas woven together in one over-arching work.  I know I would read it! 

Wishing you well, -Portia Iversen</description>
		<content:encoded><![CDATA[<p>Dear Kristina,<br />
I just wanted to let you know that I read your posts and they are quite beautiful. I was especially touched by your recent post entitled ‘Autismland’ &#8211; with your lyrical and heartbreaking references to Joyce’s ‘The Dead’ – the post made me cry when I read it. You are an exquisite writer and I appreciate the depth and breadth of your literary knowledge and the sensitivity with which you make connections and interpretations between autism and literature.  I also appreciate your knowledge of and reference to fairytales and myths and yes, I do have a large collection of these books myself. I lived on fairytales and magic when I was a child because I felt I had no control over my life, our family’s poverty or the mental illness of some of the adults in my life. </p>
<p>When my son Dov was diagnosed with autism I felt the same sense of helplessness and the same need to stubbornly believe that something better was possible, in spite of the devastating advice to “give up” that was being foisted on me by the “experts”. I felt once again like I was faced with an impossible situation, one that I could not understand or have an impact on. Hence my analogy to the fairy story where the girl is required to spin gold from straw by dawn in order to get her infant returned. I know you are opposed to the ‘changeling myth’ metaphor, but that was my personal emotional experience when my one-year old child stopped responding to me entirely. It took me many years to get to know him again after that because he is nonverbal and he had no means of communication, not even nodding his head or a gesture. But as you probably know, if you read my book, Dov began to communicate at the age of nine. Again, this felt to me like a magical event and it has been a joy beyond words to get to know him. There were a many more fairytale metaphors and references in my book that were cut out of the final version. </p>
<p>One clarification regarding mythological references &#8211; trolls in particular, which you mention in reference to the changeling myth in my book ‘Strange Son’ &#8211; in one of your previous posts you say: “images of a human child stolen in the night by trolls and replaced with an ugly, non-human child” &#8212; I do not actually make any reference to trolls in my book and I never describe my son as ugly or non-human. I have never seen him that way or described him that way. I love him very much and I think he is an exquisitely beautiful person. </p>
<p>Kristina, again, thank you for all your very interesting and insightful posts and the wonderful connections you make. Have you considered writing a book about autism as it relates to literature and vice versa? It would be great to see your ideas woven together in one over-arching work.  I know I would read it! </p>
<p>Wishing you well, -Portia Iversen</p>
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		<title>By: diane</title>
		<link>http://www.blisstree.com/articles/the-meaning-of-autismland/comment-page-1/#comment-530810</link>
		<dc:creator>diane</dc:creator>
		<pubDate>Thu, 08 Feb 2007 18:01:39 +0000</pubDate>
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		<description>wow, beautiful post. Thank you. diane</description>
		<content:encoded><![CDATA[<p>wow, beautiful post. Thank you. diane</p>
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		<title>By: Lisa/Jedi</title>
		<link>http://www.blisstree.com/articles/the-meaning-of-autismland/comment-page-1/#comment-530807</link>
		<dc:creator>Lisa/Jedi</dc:creator>
		<pubDate>Thu, 08 Feb 2007 17:09:57 +0000</pubDate>
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		<description>So very true &amp; beautifully put, Kristina. We are all living in many lands... but it&#039;s almost as if people go around wearing blinders to the diversity of life around them. I remember when I was on crutches &amp; in a wheelchair, the terribly disjointed feeling of being both invisible &amp; hyper-visible, because nobody wanted to see a disabled person &amp; many felt that their only role was to help you. I observe how some people treat my son after they&#039;ve figured out that there&#039;s something different about him. There is so much around us, &amp; I don&#039;t know why it&#039;s so hard/bad/scary to be open to &amp; aware of people different from ourselves. Why it seems to cost so much effort to be compassionate, to learn &amp; accept. If positive awareness is a by-product  of living in Autismland, then I&#039;m glad of it.</description>
		<content:encoded><![CDATA[<p>So very true &amp; beautifully put, Kristina. We are all living in many lands&#8230; but it&#8217;s almost as if people go around wearing blinders to the diversity of life around them. I remember when I was on crutches &amp; in a wheelchair, the terribly disjointed feeling of being both invisible &amp; hyper-visible, because nobody wanted to see a disabled person &amp; many felt that their only role was to help you. I observe how some people treat my son after they&#8217;ve figured out that there&#8217;s something different about him. There is so much around us, &amp; I don&#8217;t know why it&#8217;s so hard/bad/scary to be open to &amp; aware of people different from ourselves. Why it seems to cost so much effort to be compassionate, to learn &amp; accept. If positive awareness is a by-product  of living in Autismland, then I&#8217;m glad of it.</p>
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