Comments on: The Parent Activist http://www.blisstree.com/articles/the-parent-activist/ Family, Health, Home and Lifestyles Thu, 24 Dec 2009 02:33:08 -0500 http://wordpress.org/?v=2.8.4 hourly 1 By: Regan http://www.blisstree.com/articles/the-parent-activist/comment-page-1/#comment-561879 Regan Sat, 09 Aug 2008 19:26:45 +0000 http://www.autismvox.com/the-parent-activist/#comment-561879 AOA has a blogpost on activism, and when I started reading, I thought I might learn something...that maybe it wasn't all vaccination awareness. Disappointed. Shucks. AOA has a blogpost on activism, and when I started reading, I thought I might learn something…that maybe it wasn’t all vaccination awareness.

Disappointed. Shucks.

]]> By: Kristina Chew, PhD http://www.blisstree.com/articles/the-parent-activist/comment-page-1/#comment-554658 Kristina Chew, PhD Sat, 09 Aug 2008 02:57:29 +0000 http://www.autismvox.com/the-parent-activist/#comment-554658 @babs, have to apologize it took so long to post your comment----and, eve more, have to thank you for your kind and sustaining words! it's knowig so many other parents and "sympathetic others" are out there that makes all the difference. @babs, have to apologize it took so long to post your comment—-and, eve more, have to thank you for your kind and sustaining words! it’s knowig so many other parents and “sympathetic others” are out there that makes all the difference.

]]> By: Kristina Chew, PhD http://www.blisstree.com/articles/the-parent-activist/comment-page-1/#comment-552337 Kristina Chew, PhD Wed, 06 Aug 2008 03:23:23 +0000 http://www.autismvox.com/the-parent-activist/#comment-552337 Charlie's lost a couple of teeth this year----the looseness and wriggling seem to drive him crazy and before I know it there is blood all over and something in his hand, and he's looking happier. We give him 2 pills when he wakes up and one pill around 3.30pm, even if he wakes up late. Seems to help to give him the doses in those amounts and at those times of day. Charlie’s lost a couple of teeth this year—-the looseness and wriggling seem to drive him crazy and before I know it there is blood all over and something in his hand, and he’s looking happier.

We give him 2 pills when he wakes up and one pill around 3.30pm, even if he wakes up late. Seems to help to give him the doses in those amounts and at those times of day.

]]> By: Marla http://www.blisstree.com/articles/the-parent-activist/comment-page-1/#comment-558440 Marla Wed, 06 Aug 2008 03:19:49 +0000 http://www.autismvox.com/the-parent-activist/#comment-558440 I hope the eye appointment goes well. Also, the time of unstructure. We are getting ready for homeschooling. I was really hoping the Autism Center would schedule something for M. Still no return of my calls. I really hope they will be a resource for us. I hope the eye appointment goes well. Also, the time of unstructure. We are getting ready for homeschooling. I was really hoping the Autism Center would schedule something for M. Still no return of my calls. I really hope they will be a resource for us.

]]> By: A Visit to the Optometrist and More Questions to Squint At http://www.blisstree.com/articles/the-parent-activist/comment-page-1/#comment-554466 A Visit to the Optometrist and More Questions to Squint At Wed, 06 Aug 2008 02:01:52 +0000 http://www.autismvox.com/the-parent-activist/#comment-554466 [...] visit to the optometrist was inconclusive. She was able to test Charlie for acuity—-he’s 20/20 in his right eye [...] [...] visit to the optometrist was inconclusive. She was able to test Charlie for acuity—-he’s 20/20 in his right eye [...]

]]> By: Bonnie Sayers http://www.blisstree.com/articles/the-parent-activist/comment-page-1/#comment-558457 Bonnie Sayers Wed, 06 Aug 2008 00:35:36 +0000 http://www.autismvox.com/the-parent-activist/#comment-558457 I put Matt to bed every night at 7:15, give him his dose of meds at 5pm to get this accomplished, so this is similar to Charlie sleeping in till 10:30 am. What time do you give Charlie his dose of Risperdal? Does he take 1 x a day or 2? The Optometrist could not do a eye test on Matt and not sure what the next step is. He lost another tooth today chewing on cheese puffs during the drive home from camp. It was on the floor of the van where he sits, so he must have spit it out. I got out a hand mirror and showed him his smile, he seemed to like it. Both openings are bottom teeth. I put Matt to bed every night at 7:15, give him his dose of meds at 5pm to get this accomplished, so this is similar to Charlie sleeping in till 10:30 am.

What time do you give Charlie his dose of Risperdal? Does he take 1 x a day or 2?

The Optometrist could not do a eye test on Matt and not sure what the next step is.

He lost another tooth today chewing on cheese puffs during the drive home from camp. It was on the floor of the van where he sits, so he must have spit it out. I got out a hand mirror and showed him his smile, he seemed to like it. Both openings are bottom teeth.

]]> By: Regan http://www.blisstree.com/articles/the-parent-activist/comment-page-1/#comment-554414 Regan Tue, 05 Aug 2008 19:19:12 +0000 http://www.autismvox.com/the-parent-activist/#comment-554414 Activism to me implies action for societal change and community-building beyond that of simple "protesting", which seems to be the commonly used synonym. Protesting is exciting and heady stuff but it doesn't exhaust the possibilities. In relation to autism and disabilities, the vaccine protests and political action seem to be the most visible and media-worthy, but in the broad picture to me seem tangential. Assume, for thought problem purposes, that their goal is achieved tomorrow. What will have changed in regards to implementation and funding of IDEA & ADA, effective education, dignified housing, competent and effective supports, community inclusion, civil rights, and societal understanding and acceptance of difference? If the answer is "nothing", then that seems to tell me what is being overshadowed the longer that particular topic is the locus of so much interest. Activism to me implies action for societal change and community-building beyond that of simple “protesting”, which seems to be the commonly used synonym. Protesting is exciting and heady stuff but it doesn’t exhaust the possibilities. In relation to autism and disabilities, the vaccine protests and political action seem to be the most visible and media-worthy, but in the broad picture to me seem tangential.

Assume, for thought problem purposes, that their goal is achieved tomorrow. What will have changed in regards to implementation and funding of IDEA & ADA, effective education, dignified housing, competent and effective supports, community inclusion, civil rights, and societal understanding and acceptance of difference? If the answer is “nothing”, then that seems to tell me what is being overshadowed the longer that particular topic is the locus of so much interest.

]]> By: Bonnie http://www.blisstree.com/articles/the-parent-activist/comment-page-1/#comment-556506 Bonnie Tue, 05 Aug 2008 18:53:47 +0000 http://www.autismvox.com/the-parent-activist/#comment-556506 Kristina, I guess I never thought of the everyday things we do with our child as activism on a small level. But it's so true. Lately, I have become tired to trying to get Casey to stop stimming and talking to himself out in public (and he holds his ear while he does it, like an announcer) and I sorta just let him do it. I figure if anyone is curious, they can ask, because I get really sick of getting on my child to fit societies norms all the time! I guess that's activism huh? Kristina, I guess I never thought of the everyday things we do with our child as activism on a small level. But it’s so true. Lately, I have become tired to trying to get Casey to stop stimming and talking to himself out in public (and he holds his ear while he does it, like an announcer) and I sorta just let him do it. I figure if anyone is curious, they can ask, because I get really sick of getting on my child to fit societies norms all the time! I guess that’s activism huh?

]]> By: Jen http://www.blisstree.com/articles/the-parent-activist/comment-page-1/#comment-554439 Jen Tue, 05 Aug 2008 17:41:50 +0000 http://www.autismvox.com/the-parent-activist/#comment-554439 Just got back from vacation and grandma and grandpa's cottage, and while there, we did notice that E seemed to be stimming a bit more, and that he's been a bit more jumpy now that we're back (but that could have been due to the loooong car ride!) With him, it's always seemed to be the lack of activity rather than a lack of structure that he had trouble with, but maybe it's one in the same- we'll see how this week goes, now that he's back in his therapy program. Just got back from vacation and grandma and grandpa’s cottage, and while there, we did notice that E seemed to be stimming a bit more, and that he’s been a bit more jumpy now that we’re back (but that could have been due to the loooong car ride!) With him, it’s always seemed to be the lack of activity rather than a lack of structure that he had trouble with, but maybe it’s one in the same- we’ll see how this week goes, now that he’s back in his therapy program.

]]> By: Kristina Chew, PhD http://www.blisstree.com/articles/the-parent-activist/comment-page-1/#comment-552521 Kristina Chew, PhD Tue, 05 Aug 2008 14:28:45 +0000 http://www.autismvox.com/the-parent-activist/#comment-552521 Or lurking in the NJ Meadowlands.......... And surely parents can be active and advocate in more ways than making jejune graphics like <a href="http://www.ageofautism.com/2008/08/amanda-peet-her.html">this on Age of Autism</a>. Sharon, always love to follow your family on your various voyages! Erin, So far Charlie is spending today asleep---it's 10.30am and he's still not up. Planning out the next two days for him and my husband already. Or lurking in the NJ Meadowlands……….

And surely parents can be active and advocate in more ways than making jejune graphics like this on Age of Autism.

Sharon, always love to follow your family on your various voyages!

Erin, So far Charlie is spending today asleep—it’s 10.30am and he’s still not up. Planning out the next two days for him and my husband already.

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