Comments on: The Search for Certainty (or, why we’re going to the dentist at 3.15pm) http://www.blisstree.com/articles/the-search-for-certainty-or-why-were-going-to-the-dentist-at-315pm/ Family, Health, Home and Lifestyles Tue, 22 Dec 2009 17:01:07 -0500 http://wordpress.org/?v=2.8.4 hourly 1 By: Top Posts from the Past Two Weeks http://www.blisstree.com/articles/the-search-for-certainty-or-why-were-going-to-the-dentist-at-315pm/comment-page-1/#comment-562184 Top Posts from the Past Two Weeks Sun, 16 Nov 2008 18:23:37 +0000 http://www.autismvox.com/the-search-for-certainty-or-why-were-going-to-the-dentist-at-315pm/#comment-562184 [...] The Search for Certainty (or, why we’re going to the dentist at 3.15pm) An emergency dentist visit for Charlie prompts me to think about why parents so often try to find medical reasons for why something’s going on. [...] [...] The Search for Certainty (or, why we’re going to the dentist at 3.15pm) An emergency dentist visit for Charlie prompts me to think about why parents so often try to find medical reasons for why something’s going on. [...]

]]> By: “Strange” Play As a Marker for Autism in Infants? http://www.blisstree.com/articles/the-search-for-certainty-or-why-were-going-to-the-dentist-at-315pm/comment-page-1/#comment-560298 “Strange” Play As a Marker for Autism in Infants? Fri, 07 Nov 2008 07:21:33 +0000 http://www.autismvox.com/the-search-for-certainty-or-why-were-going-to-the-dentist-at-315pm/#comment-560298 [...] normal” play in a young child now set a parent (already worrying about vaccines and seeking certainty) on edge? Tags: asd, asperger, autism, autism blog, Baby, board book, colors, Diagnosis, [...] [...] normal” play in a young child now set a parent (already worrying about vaccines and seeking certainty) on edge? Tags: asd, asperger, autism, autism blog, Baby, board book, colors, Diagnosis, [...]

]]> By: jon poling http://www.blisstree.com/articles/the-search-for-certainty-or-why-were-going-to-the-dentist-at-315pm/comment-page-1/#comment-559379 jon poling Fri, 31 Oct 2008 13:58:44 +0000 http://www.autismvox.com/the-search-for-certainty-or-why-were-going-to-the-dentist-at-315pm/#comment-559379 Kristina, Very good with the dentist. Yes, my daughter had to go to the hospital yesterday for blood sample to monitor medication toxicity. She didn't mind the needle because my colleagues at the hospital always "make me (Hannah) feel better" she says. A mother the other day pointed out another positive benefit of the forward progress with mitochondrial issues in Autism. She lived in Canada and informed me that officials were threatening child abuse charges against her for blood draws and invasive tests to biomedically work-up Autism. Now with this new information (not really new-- Dr. Coleman at Georgetown reported lactic acidosis in a subset of Autism in 1985); she can have her child evaluated appropriately. Regan, Yes you are correct with the reference. There is a very good table in the article. Unfortunately I cannot reproduce it to the web, as it's copyrighted. Jon Poling Kristina,

Very good with the dentist. Yes, my daughter had to go to the hospital yesterday for blood sample to monitor medication toxicity. She didn’t mind the needle because my colleagues at the hospital always “make me (Hannah) feel better” she says.

A mother the other day pointed out another positive benefit of the forward progress with mitochondrial issues in Autism. She lived in Canada and informed me that officials were threatening child abuse charges against her for blood draws and invasive tests to biomedically work-up Autism. Now with this new information (not really new– Dr. Coleman at Georgetown reported lactic acidosis in a subset of Autism in 1985); she can have her child evaluated appropriately.

Regan,
Yes you are correct with the reference. There is a very good table in the article. Unfortunately I cannot reproduce it to the web, as it’s copyrighted.

Jon Poling

]]> By: Kristina Chew, PhD http://www.blisstree.com/articles/the-search-for-certainty-or-why-were-going-to-the-dentist-at-315pm/comment-page-1/#comment-564325 Kristina Chew, PhD Fri, 31 Oct 2008 05:30:10 +0000 http://www.autismvox.com/the-search-for-certainty-or-why-were-going-to-the-dentist-at-315pm/#comment-564325 @jon poling, thanks for sharing your thoughts and knowledge----it was a good dentist visit, no cavities or anything and Charlie was mostly anxious because he wanted to get the dentist to make the chair go up....... @jon poling,
thanks for sharing your thoughts and knowledge—-it was a good dentist visit, no cavities or anything and Charlie was mostly anxious because he wanted to get the dentist to make the chair go up…….

]]> By: Regan http://www.blisstree.com/articles/the-search-for-certainty-or-why-were-going-to-the-dentist-at-315pm/comment-page-1/#comment-564079 Regan Fri, 31 Oct 2008 04:54:52 +0000 http://www.autismvox.com/the-search-for-certainty-or-why-were-going-to-the-dentist-at-315pm/#comment-564079 and, <a href="http://www.neurology.org/cgi/content/full/67/10/1823/DC1">Data Supplement to the article</a>. and,
Data Supplement to the article.

]]> By: Regan http://www.blisstree.com/articles/the-search-for-certainty-or-why-were-going-to-the-dentist-at-315pm/comment-page-1/#comment-564078 Regan Fri, 31 Oct 2008 04:54:09 +0000 http://www.autismvox.com/the-search-for-certainty-or-why-were-going-to-the-dentist-at-315pm/#comment-564078 Thanks for the link Dr. Poling. Unfortunately it just goes to a payment page without the title-- Would I be correct that this is the article? Morava, E., van den Henvel, L., Hol, F., de Vries, M.C., Hogeveen, M., Rodenburg, R.J., Smeitink, J.A.M (2006). Mitochondrial disease criteria: Diagnostic applications in children. Neurology, 67, 1823-1826. <a href="http://www.neurology.org/cgi/content/abstract/67/10/1823">ABSTRACT</a> Thanks for the link Dr. Poling. Unfortunately it just goes to a payment page without the title–

Would I be correct that this is the article?
Morava, E., van den Henvel, L., Hol, F., de Vries, M.C., Hogeveen, M., Rodenburg, R.J., Smeitink, J.A.M (2006). Mitochondrial disease criteria: Diagnostic applications in children. Neurology, 67, 1823-1826.
ABSTRACT

]]> By: jon poling http://www.blisstree.com/articles/the-search-for-certainty-or-why-were-going-to-the-dentist-at-315pm/comment-page-1/#comment-559311 jon poling Fri, 31 Oct 2008 04:04:50 +0000 http://www.autismvox.com/the-search-for-certainty-or-why-were-going-to-the-dentist-at-315pm/#comment-559311 Kristina, Yes, very good analogy and reference to Dr. Kathy Rivers story. The mitochondrial story is important for the reason that we are all searching for biological explanations for a multitude of symptoms manifest with ASDs. Perhaps this path with lead to promising new treatments and answers to help our children -- table the vaccine-autism epidemiology and follow the science. A friend pointed out this 2006 article on mito criteria to help guide who should have a muscle biopsy. I found it interesting that my child would have been considered in the 'definite mitochondrial disorder' category even without biopsy. I wonder how many others would as well, especially in the regressive category? http://www.neurology.org/cgi/content/full/67/10/1823/T122 Other Autism docs like Dr. I Rapin have felt that no specific neuro-metabolic work-up is even indicated in Autism. That's just it, there is no one answer to Autism and it will be a matter of teasing out the various subtypes based on biology. Good luck at the dentist, hopefully there is fixable issue rather than-- "it's just the Autism." Jon Poling Kristina,

Yes, very good analogy and reference to Dr. Kathy Rivers story. The mitochondrial story is important for the reason that we are all searching for biological explanations for a multitude of symptoms manifest with ASDs. Perhaps this path with lead to promising new treatments and answers to help our children — table the vaccine-autism epidemiology and follow the science.

A friend pointed out this 2006 article on mito criteria to help guide who should have a muscle biopsy. I found it interesting that my child would have been considered in the ‘definite mitochondrial disorder’ category even without biopsy. I wonder how many others would as well, especially in the regressive category?

http://www.neurology.org/cgi/content/full/67/10/1823/T122

Other Autism docs like Dr. I Rapin have felt that no specific neuro-metabolic work-up is even indicated in Autism. That’s just it, there is no one answer to Autism and it will be a matter of teasing out the various subtypes based on biology.

Good luck at the dentist, hopefully there is fixable issue rather than– “it’s just the Autism.”

Jon Poling

]]> By: Thoughts While Watching Charlie at the Dentist http://www.blisstree.com/articles/the-search-for-certainty-or-why-were-going-to-the-dentist-at-315pm/comment-page-1/#comment-563327 Thoughts While Watching Charlie at the Dentist Wed, 29 Oct 2008 07:36:07 +0000 http://www.autismvox.com/the-search-for-certainty-or-why-were-going-to-the-dentist-at-315pm/#comment-563327 [...] a most unexpected (in New Jersey) October snowfall to take Charlie to a medical appointment (the dentist, to be more precise) on a cold mid-afternoon on Tuesday—-but as I glanced at him in the rear [...] [...] a most unexpected (in New Jersey) October snowfall to take Charlie to a medical appointment (the dentist, to be more precise) on a cold mid-afternoon on Tuesday—-but as I glanced at him in the rear [...]

]]> By: Regan http://www.blisstree.com/articles/the-search-for-certainty-or-why-were-going-to-the-dentist-at-315pm/comment-page-1/#comment-564007 Regan Tue, 28 Oct 2008 23:00:15 +0000 http://www.autismvox.com/the-search-for-certainty-or-why-were-going-to-the-dentist-at-315pm/#comment-564007 So, inquiring minds want to know-- How'd Charlie's checkup go? So, inquiring minds want to know–

How’d Charlie’s checkup go?

]]> By: Melody http://www.blisstree.com/articles/the-search-for-certainty-or-why-were-going-to-the-dentist-at-315pm/comment-page-1/#comment-563286 Melody Tue, 28 Oct 2008 22:49:19 +0000 http://www.autismvox.com/the-search-for-certainty-or-why-were-going-to-the-dentist-at-315pm/#comment-563286 I was okay with brushing my teeth, except that mostly I would just have the toothbrush hang in my mouth, and my parents had to pretend like it was a race so that I would actually brush. Even now, it takes me awhile to brush. I was okay with brushing my teeth, except that mostly I would just have the toothbrush hang in my mouth, and my parents had to pretend like it was a race so that I would actually brush. Even now, it takes me awhile to brush.

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