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	<title>Comments on: To Hell and Back</title>
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	<link>http://www.blisstree.com/articles/to-hell-and-back/</link>
	<description>Family, Health, Home and Lifestyles</description>
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		<title>By: Ettina</title>
		<link>http://www.blisstree.com/articles/to-hell-and-back/comment-page-1/#comment-556908</link>
		<dc:creator>Ettina</dc:creator>
		<pubDate>Fri, 08 Aug 2008 18:41:37 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/to-hell-and-back/#comment-556908</guid>
		<description>To those parents who say things like &quot;I&#039;d give anything to have my child call me &#039;mommy&#039;&quot; I&#039;d like to point out that probably the hardest children to raise have no speech problems at all (or only very mild). My cousin, who used to live with us, once saw my mother cooking a meal he didn&#039;t like, and without giving her a chance to reassure him that she was making something else for him, he started yelling insults at her. Several hours later, she finally managed to tell him she was cooking something else for him. (This was typical behavior for him.) Kids like him are much harder to parent than a severely autistic kid.</description>
		<content:encoded><![CDATA[<p>To those parents who say things like &#8220;I&#8217;d give anything to have my child call me &#8216;mommy&#8217;&#8221; I&#8217;d like to point out that probably the hardest children to raise have no speech problems at all (or only very mild). My cousin, who used to live with us, once saw my mother cooking a meal he didn&#8217;t like, and without giving her a chance to reassure him that she was making something else for him, he started yelling insults at her. Several hours later, she finally managed to tell him she was cooking something else for him. (This was typical behavior for him.) Kids like him are much harder to parent than a severely autistic kid.</p>
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		<title>By: The Crystal Ball Crack&#8217;d &#171; Andrea&#8217;s Buzzing About:</title>
		<link>http://www.blisstree.com/articles/to-hell-and-back/comment-page-1/#comment-550133</link>
		<dc:creator>The Crystal Ball Crack&#8217;d &#171; Andrea&#8217;s Buzzing About:</dc:creator>
		<pubDate>Thu, 07 Aug 2008 17:43:04 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/to-hell-and-back/#comment-550133</guid>
		<description>[...] ~First words (at age 35) of an autistic man [quote source] [...]</description>
		<content:encoded><![CDATA[<p>[...] ~First words (at age 35) of an autistic man [quote source] [...]</p>
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		<title>By: Julia</title>
		<link>http://www.blisstree.com/articles/to-hell-and-back/comment-page-1/#comment-532798</link>
		<dc:creator>Julia</dc:creator>
		<pubDate>Thu, 05 Apr 2007 21:14:24 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/to-hell-and-back/#comment-532798</guid>
		<description>Sam is on prescription Zyrtec for allergies, as needed.  It helps.  It doesn&#039;t make him hyper.  If he&#039;s on Benadryl for more than 2 days in a row, he gets very irritable, but the Zyrtec is OK for longer-term use.

Of course, everyone is going to react differently to different medications; but if Benadryl isn&#039;t cutting it, trying something else might be in order.

(For &lt;em&gt;me&lt;/em&gt;, I learned a trick from a friend -- if you&#039;re having allergy problems but can&#039;t afford the drowsiness that Benadryl gives some people, try a children&#039;s dose (12.5 mg. instead of the 25 that one adult capsule is), see if that helps without too much impairment.  It&#039;s done the trick for me the times I&#039;ve tried it.)

And Sam may not have very much in the way of words, but he does a darn good job of communicating some of the important things, including hunger (and what he wants!) and wanting to be outside.</description>
		<content:encoded><![CDATA[<p>Sam is on prescription Zyrtec for allergies, as needed.  It helps.  It doesn&#8217;t make him hyper.  If he&#8217;s on Benadryl for more than 2 days in a row, he gets very irritable, but the Zyrtec is OK for longer-term use.</p>
<p>Of course, everyone is going to react differently to different medications; but if Benadryl isn&#8217;t cutting it, trying something else might be in order.</p>
<p>(For <em>me</em>, I learned a trick from a friend &#8212; if you&#8217;re having allergy problems but can&#8217;t afford the drowsiness that Benadryl gives some people, try a children&#8217;s dose (12.5 mg. instead of the 25 that one adult capsule is), see if that helps without too much impairment.  It&#8217;s done the trick for me the times I&#8217;ve tried it.)</p>
<p>And Sam may not have very much in the way of words, but he does a darn good job of communicating some of the important things, including hunger (and what he wants!) and wanting to be outside.</p>
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		<title>By: Autism Vox &#187; Green in a Blue World</title>
		<link>http://www.blisstree.com/articles/to-hell-and-back/comment-page-1/#comment-532331</link>
		<dc:creator>Autism Vox &#187; Green in a Blue World</dc:creator>
		<pubDate>Thu, 29 Mar 2007 23:27:59 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/to-hell-and-back/#comment-532331</guid>
		<description>[...] age of 4; her article resonated with me in light of recent discussions here (see yesterday&#8217;s To Hell and Back and the ongoing debate on David Kirby and Autism Speaks about what some perceive as a huge divide [...]</description>
		<content:encoded><![CDATA[<p>[...] age of 4; her article resonated with me in light of recent discussions here (see yesterday&#8217;s To Hell and Back and the ongoing debate on David Kirby and Autism Speaks about what some perceive as a huge divide [...]</p>
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		<title>By: Karen</title>
		<link>http://www.blisstree.com/articles/to-hell-and-back/comment-page-1/#comment-532354</link>
		<dc:creator>Karen</dc:creator>
		<pubDate>Thu, 29 Mar 2007 20:23:33 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/to-hell-and-back/#comment-532354</guid>
		<description>Poor Charlie! I wish he&#039;d had the easy &#039;calm down&#039; reaction that benedryl gives my family. It says it causes hyperactivity in children on the package, but my Bummy always used it to stop it.

Computers are fun for everybody -- I hope that Charlie falls in love with them and finds a program he really enjoys. There was a student at Scotty&#039;s school whose parents bought him a computer after we&#039;d gotten some donated &amp; found some software that he liked -- parents who thought their teen son had no interest in computers at all. Sometimes it takes just the right program to catch their interest!</description>
		<content:encoded><![CDATA[<p>Poor Charlie! I wish he&#8217;d had the easy &#8216;calm down&#8217; reaction that benedryl gives my family. It says it causes hyperactivity in children on the package, but my Bummy always used it to stop it.</p>
<p>Computers are fun for everybody &#8212; I hope that Charlie falls in love with them and finds a program he really enjoys. There was a student at Scotty&#8217;s school whose parents bought him a computer after we&#8217;d gotten some donated &amp; found some software that he liked &#8212; parents who thought their teen son had no interest in computers at all. Sometimes it takes just the right program to catch their interest!</p>
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		<title>By: Kristina Chew, PhD</title>
		<link>http://www.blisstree.com/articles/to-hell-and-back/comment-page-1/#comment-532359</link>
		<dc:creator>Kristina Chew, PhD</dc:creator>
		<pubDate>Thu, 29 Mar 2007 19:51:25 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/to-hell-and-back/#comment-532359</guid>
		<description>Hi Karen---Charlie has had interesting reactions to Benedryl. Once it did make him fall asleep completely---another time, it made him very hyper and he could not sleep at all! Charlie is just starting a typing program and I hope he might be able to type to communicate as your brother does, someday. </description>
		<content:encoded><![CDATA[<p>Hi Karen&#8212;Charlie has had interesting reactions to Benedryl. Once it did make him fall asleep completely&#8212;another time, it made him very hyper and he could not sleep at all! Charlie is just starting a typing program and I hope he might be able to type to communicate as your brother does, someday.</p>
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		<title>By: Karen</title>
		<link>http://www.blisstree.com/articles/to-hell-and-back/comment-page-1/#comment-532368</link>
		<dc:creator>Karen</dc:creator>
		<pubDate>Thu, 29 Mar 2007 17:55:17 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/to-hell-and-back/#comment-532368</guid>
		<description>Have you ever tried to give Charlie benedryl? My family has bad environmental allergies, and we always have reactions to prescription drugs, so my grandmother learned a long time ago to give Scott benedryl when he started his train chuckles. 

Train chuckles are the the low rumbling laughter at the back of the throat accompanied by the inability to make eye contact -- which I get, &#039;cause I can&#039;t make eye contact when my allergies are bad (it almost hurts, and my eyes will sting and tear up).

Words help Scott a lot when he&#039;s upset. He&#039;ll take his magnet letters and spell out &quot;ache&quot; or he&#039;ll write down &quot;head&quot; on a piece of paper. Words for Scotty -- those are the things that I remember most about him in our childhood. 

We can&#039;t have a &#039;conversation&#039; with him so much as type out a question and get him to type a one-word response that may or may not appear as an actual answer, but he loves doing it.</description>
		<content:encoded><![CDATA[<p>Have you ever tried to give Charlie benedryl? My family has bad environmental allergies, and we always have reactions to prescription drugs, so my grandmother learned a long time ago to give Scott benedryl when he started his train chuckles. </p>
<p>Train chuckles are the the low rumbling laughter at the back of the throat accompanied by the inability to make eye contact &#8212; which I get, &#8217;cause I can&#8217;t make eye contact when my allergies are bad (it almost hurts, and my eyes will sting and tear up).</p>
<p>Words help Scott a lot when he&#8217;s upset. He&#8217;ll take his magnet letters and spell out &#8220;ache&#8221; or he&#8217;ll write down &#8220;head&#8221; on a piece of paper. Words for Scotty &#8212; those are the things that I remember most about him in our childhood. </p>
<p>We can&#8217;t have a &#8216;conversation&#8217; with him so much as type out a question and get him to type a one-word response that may or may not appear as an actual answer, but he loves doing it.</p>
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		<title>By: Kristina Chew, PhD</title>
		<link>http://www.blisstree.com/articles/to-hell-and-back/comment-page-1/#comment-532433</link>
		<dc:creator>Kristina Chew, PhD</dc:creator>
		<pubDate>Thu, 29 Mar 2007 06:36:20 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/to-hell-and-back/#comment-532433</guid>
		<description>&quot;he’s got words, but it’s like listening to them through water, all distorted&quot;: Karen, that is what Charlie often sounds like....... I have often wondered how allergies might bother him. And he tears up paper, very methodocally, when he is anxious and upset.</description>
		<content:encoded><![CDATA[<p>&#8220;he’s got words, but it’s like listening to them through water, all distorted&#8221;: Karen, that is what Charlie often sounds like&#8230;&#8230;. I have often wondered how allergies might bother him. And he tears up paper, very methodocally, when he is anxious and upset.</p>
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		<title>By: Karen</title>
		<link>http://www.blisstree.com/articles/to-hell-and-back/comment-page-1/#comment-532435</link>
		<dc:creator>Karen</dc:creator>
		<pubDate>Thu, 29 Mar 2007 06:21:16 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/to-hell-and-back/#comment-532435</guid>
		<description>My brother&#039;s nonverbal (to a degree -- he&#039;s got words, but it&#039;s like listening to them through water, all distorted). That doesn&#039;t mean that we don&#039;t talk to him, and it most certainly doesn&#039;t mean that he doesn&#039;t communicate.

I&#039;m a talker. I always talked to Scott. My grandmother always talked to Scott, would sit him on the computer and type out things to him. There&#039;s always a way for communication.

What you&#039;ve said about Charlie&#039;s &#039;complex&#039; points hits home with me. Scotty will say &quot;Go bah&quot; to ask to go to the bathroom (something he learned in school at age twelve, argh), and other things, but when his allergies are bothering him, he wraps his head in toilet paper. We usually can tell that he&#039;s got a really bad sinus headache before them -- everybody&#039;s cranky with a sinus headache -- but it was something that made my grandmother laugh, and something he sticks too. 

When he&#039;s upset, he sometimes tears up paper. He just uses the physical to communicate more. Though once when I was eight, our mother came to visit us, and Scott, twelve, managed to say, &quot;I STAY I STAY I STAY&quot; about a million times.</description>
		<content:encoded><![CDATA[<p>My brother&#8217;s nonverbal (to a degree &#8212; he&#8217;s got words, but it&#8217;s like listening to them through water, all distorted). That doesn&#8217;t mean that we don&#8217;t talk to him, and it most certainly doesn&#8217;t mean that he doesn&#8217;t communicate.</p>
<p>I&#8217;m a talker. I always talked to Scott. My grandmother always talked to Scott, would sit him on the computer and type out things to him. There&#8217;s always a way for communication.</p>
<p>What you&#8217;ve said about Charlie&#8217;s &#8216;complex&#8217; points hits home with me. Scotty will say &#8220;Go bah&#8221; to ask to go to the bathroom (something he learned in school at age twelve, argh), and other things, but when his allergies are bothering him, he wraps his head in toilet paper. We usually can tell that he&#8217;s got a really bad sinus headache before them &#8212; everybody&#8217;s cranky with a sinus headache &#8212; but it was something that made my grandmother laugh, and something he sticks too. </p>
<p>When he&#8217;s upset, he sometimes tears up paper. He just uses the physical to communicate more. Though once when I was eight, our mother came to visit us, and Scott, twelve, managed to say, &#8220;I STAY I STAY I STAY&#8221; about a million times.</p>
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		<title>By: Kristina Chew, PhD</title>
		<link>http://www.blisstree.com/articles/to-hell-and-back/comment-page-1/#comment-532441</link>
		<dc:creator>Kristina Chew, PhD</dc:creator>
		<pubDate>Thu, 29 Mar 2007 04:49:34 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/to-hell-and-back/#comment-532441</guid>
		<description>The thing about Charlie&#039;s communication is that what he uses words to say are the basic things---requests for food or objects, hi and bye and no. But to get his more &quot;complex&quot; points across--his emotions, for instance----takes something more eleborate, whether a melody hummed, the way he runs up and down the room, where he has arrayed certain of his favored possessions.</description>
		<content:encoded><![CDATA[<p>The thing about Charlie&#8217;s communication is that what he uses words to say are the basic things&#8212;requests for food or objects, hi and bye and no. But to get his more &#8220;complex&#8221; points across&#8211;his emotions, for instance&#8212;-takes something more eleborate, whether a melody hummed, the way he runs up and down the room, where he has arrayed certain of his favored possessions.</p>
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