Comments on: Trying to Get it Right http://www.blisstree.com/articles/trying-to-get-it-right/ Family, Health, Home and Lifestyles Thu, 03 Dec 2009 16:31:31 -0500 http://wordpress.org/?v=2.8.4 hourly 1 By: theASMan http://www.blisstree.com/articles/trying-to-get-it-right/comment-page-1/#comment-546598 theASMan Fri, 16 Nov 2007 02:27:23 +0000 http://www.autismvox.com/trying-to-get-it-right/#comment-546598 Here is that looney stillman's website http://www.williamstillman.com/connection.html Here is that looney stillman’s website

http://www.williamstillman.com/connection.html

]]> By: Kristina Chew, PhD http://www.blisstree.com/articles/trying-to-get-it-right/comment-page-1/#comment-546542 Kristina Chew, PhD Thu, 15 Nov 2007 23:51:49 +0000 http://www.autismvox.com/trying-to-get-it-right/#comment-546542 The "MR" label has not been officially given to Charlie. I do think that, in a previous generation, this would have been his diagnosis and not autism, due to his language disability, "behaviors," and more. I did find it interesting that Stillman is trying to use the word "epidemic" in a different way in regard to autism, though I think the word more troublesome than helpful. The “MR” label has not been officially given to Charlie. I do think that, in a previous generation, this would have been his diagnosis and not autism, due to his language disability, “behaviors,” and more. I did find it interesting that Stillman is trying to use the word “epidemic” in a different way in regard to autism, though I think the word more troublesome than helpful.

]]> By: alyric http://www.blisstree.com/articles/trying-to-get-it-right/comment-page-1/#comment-546523 alyric Thu, 15 Nov 2007 22:44:28 +0000 http://www.autismvox.com/trying-to-get-it-right/#comment-546523 How strange that this: "the calls to me from young adults and teenagers with autism who are severely depressed, sometimes suicidal, because they have grown up constantly hearing about their deficits and what is missing in them." could evoke a call for relationships and support. To me it looked like an ordinary call for validation - you know, that without which a person cannot succeed in anything no matter what label they are or are not wearing. How strange that this:

“the calls to me from young adults and teenagers with autism who are severely depressed, sometimes suicidal, because they have grown up constantly hearing about their deficits and what is missing in them.”

could evoke a call for relationships and support. To me it looked like an ordinary call for validation – you know, that without which a person cannot succeed in anything no matter what label they are or are not wearing.

]]> By: ancoraimpara http://www.blisstree.com/articles/trying-to-get-it-right/comment-page-1/#comment-546407 ancoraimpara Thu, 15 Nov 2007 21:04:58 +0000 http://www.autismvox.com/trying-to-get-it-right/#comment-546407 This is no surprise to me. My son got an MR diagnosis from the school psychiatrist when we were transitioning. My advocate and I got them to make autism the primary diagnosis, and keep MR as the secondary diagnosis. That was after talking to his support team. The MR got him Medicaid, which got him a home aide and a TSS, and pays for his seizure medication. Huge. He even went to an MR camp this year, which he enjoyed immensely. The Speaker you mentioned is trying to get a bill passed to force the private insurance companies to pay for autism. There are indications that any money freed up by that would be allocated to additional autism resources. I had a conversation yesterday with a father of a 23 year-old autistic. He is upset with how little support his adult son is getting. This is not an issue we can allow to be kept quiet. One thing I am determined to make sure happens is that my son is aware of the community of autistics to whom he belongs. This next year, I am hoping to go with him to Autreat. I had explored it a couple of years ago when he was 6, but decided to wait until he was a little older. But I remember e-mailing Jim Sinclair at the time, and asking how my son would benefit. He responded by asking if my son had ever met an adult autistic. This is no surprise to me. My son got an MR diagnosis from the school psychiatrist when we were transitioning. My advocate and I got them to make autism the primary diagnosis, and keep MR as the secondary diagnosis. That was after talking to his support team. The MR got him Medicaid, which got him a home aide and a TSS, and pays for his seizure medication. Huge. He even went to an MR camp this year, which he enjoyed immensely.
The Speaker you mentioned is trying to get a bill passed to force the private insurance companies to pay for autism. There are indications that any money freed up by that would be allocated to additional autism resources.
I had a conversation yesterday with a father of a 23 year-old autistic. He is upset with how little support his adult son is getting. This is not an issue we can allow to be kept quiet.
One thing I am determined to make sure happens is that my son is aware of the community of autistics to whom he belongs. This next year, I am hoping to go with him to Autreat. I had explored it a couple of years ago when he was 6, but decided to wait until he was a little older. But I remember e-mailing Jim Sinclair at the time, and asking how my son would benefit. He responded by asking if my son had ever met an adult autistic.

]]> By: KimJ http://www.blisstree.com/articles/trying-to-get-it-right/comment-page-1/#comment-546405 KimJ Thu, 15 Nov 2007 20:56:36 +0000 http://www.autismvox.com/trying-to-get-it-right/#comment-546405 It's not so much a matter of PC ethics, but how you see autism and autistic people. People who prefer "with autism" seem to see ASD as an affliction, disease, or barrier to what otherwise would a "normal" person. People who prefer "autistic" see it as a natural descriptor, an extension of who they are. It’s not so much a matter of PC ethics, but how you see autism and autistic people. People who prefer “with autism” seem to see ASD as an affliction, disease, or barrier to what otherwise would a “normal” person. People who prefer “autistic” see it as a natural descriptor, an extension of who they are.

]]> By: theASMan http://www.blisstree.com/articles/trying-to-get-it-right/comment-page-1/#comment-546404 theASMan Thu, 15 Nov 2007 20:55:17 +0000 http://www.autismvox.com/trying-to-get-it-right/#comment-546404 Bill Stillman , isn't he that guy who says aspies have a special spiritual gift of conversing with angels? Bill Stillman , isn’t he that guy who says aspies have a special spiritual gift of conversing with angels?

]]> By: Gabrielle http://www.blisstree.com/articles/trying-to-get-it-right/comment-page-1/#comment-546431 Gabrielle Thu, 15 Nov 2007 20:19:26 +0000 http://www.autismvox.com/trying-to-get-it-right/#comment-546431 The ASMan, I am sorry if I offended. Please note, I am quoting Bill Stillman in several of the instances you reference. The words aren't mine. When the words are mine, I admit, that I don't know what to say and it seems that the words that are preferred by one set of folks really bother others. In talking with parents, it seems that "living with autism" is what they prefer, but I do know that "autistic" is a term that others use and want. I am very open to the discussion and debate. As I said, I am still learning. The ASMan, I am sorry if I offended. Please note, I am quoting Bill Stillman in several of the instances you reference. The words aren’t mine.

When the words are mine, I admit, that I don’t know what to say and it seems that the words that are preferred by one set of folks really bother others. In talking with parents, it seems that “living with autism” is what they prefer, but I do know that “autistic” is a term that others use and want.

I am very open to the discussion and debate. As I said, I am still learning.

]]> By: Cliff http://www.blisstree.com/articles/trying-to-get-it-right/comment-page-1/#comment-546436 Cliff Thu, 15 Nov 2007 20:17:56 +0000 http://www.autismvox.com/trying-to-get-it-right/#comment-546436 On the other hand, I've had some pretty good luck with politicians. They're not all good, certainly, but I'd have issues going after the whole. Of course, it seems we can't get a bill with decent services past the president, so on a national level it seems it only takes one to screw it up. Cliff On the other hand, I’ve had some pretty good luck with politicians. They’re not all good, certainly, but I’d have issues going after the whole.

Of course, it seems we can’t get a bill with decent services past the president, so on a national level it seems it only takes one to screw it up.

Cliff

]]> By: Cliff http://www.blisstree.com/articles/trying-to-get-it-right/comment-page-1/#comment-546435 Cliff Thu, 15 Nov 2007 20:14:22 +0000 http://www.autismvox.com/trying-to-get-it-right/#comment-546435 She's self-proclaimed as being new, so to aggressively push that point, even if it has merit, is distasteful, especially phrased like that. Cliff She’s self-proclaimed as being new, so to aggressively push that point, even if it has merit, is distasteful, especially phrased like that.

Cliff

]]> By: Gabrielle http://www.blisstree.com/articles/trying-to-get-it-right/comment-page-1/#comment-546434 Gabrielle Thu, 15 Nov 2007 20:14:19 +0000 http://www.autismvox.com/trying-to-get-it-right/#comment-546434 Well, you can try moving someplace where politicians have family members with ASD and other disabilities and actually experience firsthand the needs of the populations and how hard it is to get services and supports that help the family and the person on the spectrum. Or you can invite folks you see as po-lie-ticians to spend some time with real people with real needs. It doesn't always work and like Kristina said, there is never a magic pill, but I have found that sometimes when you actively engage a politician, its much harder for him/her to convince himself/herself that action needs to be taken. Well, you can try moving someplace where politicians have family members with ASD and other disabilities and actually experience firsthand the needs of the populations and how hard it is to get services and supports that help the family and the person on the spectrum.

Or you can invite folks you see as po-lie-ticians to spend some time with real people with real needs.

It doesn’t always work and like Kristina said, there is never a magic pill, but I have found that sometimes when you actively engage a politician, its much harder for him/her to convince himself/herself that action needs to be taken.

]]>