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	<title>Comments on: Where Are All the Autistic Adults?</title>
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		<title>By: Here&#8217;s the Autistic Adults</title>
		<link>http://www.blisstree.com/articles/where-are-all-the-autistic-adults/comment-page-3/#comment-544787</link>
		<dc:creator>Here&#8217;s the Autistic Adults</dc:creator>
		<pubDate>Wed, 23 Jul 2008 20:00:54 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/where-are-all-the-autistic-adults/#comment-544787</guid>
		<description>[...] 20th. Noting that autism, and in particular Asperger Syndrome, is being recognized in more and more adults, the article cites these [...]</description>
		<content:encoded><![CDATA[<p>[...] 20th. Noting that autism, and in particular Asperger Syndrome, is being recognized in more and more adults, the article cites these [...]</p>
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		<title>By: Regan</title>
		<link>http://www.blisstree.com/articles/where-are-all-the-autistic-adults/comment-page-3/#comment-549664</link>
		<dc:creator>Regan</dc:creator>
		<pubDate>Mon, 23 Jun 2008 13:50:21 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/where-are-all-the-autistic-adults/#comment-549664</guid>
		<description>Kristina,
Didn&#039;t know *quite* where to put this, but I thought it was interesting, even if it falls more into the anecdotal than data.
I&#039;ve been doing some genealogy searches, with some associated news archive searching and did some browsing under search terms childhood schizophrenia and autism. Wasn&#039;t quite sure what I would find.

Simpson&#039;s Leader-Times, PA April 29, 1963
&quot;More than 500,000 children in the United States are mentally ill and most of them suffer from childhood schizophrenia, which is psychosis, not to be confused with mental retardation.&quot;

Simpson&#039;s Leader-Times, PA 
January 15, 1967
Autistic Child Stays Completely to Himself
&quot;...It is estimated that there are 500,000 such children in the US&quot;.
FWIW--this quoted number is not from an isolated story, although these two were from the Simpson-Leader. There were many, starting from about 1963 under the header of &quot;childhood schizophrenia&quot; and &quot;autism&quot;. The use of the term childhood schizophrenia started to die out in the early 70&#039;s and was overtaken by the use of the term autism in the &#039;80&#039;s.

Simpson&#039;s Leader-Times, PA, Sept 25, 1972
&quot;...Dr. (Lorna) Wing says that although some experts have called autism a &quot;childhood schizophrenia,&quot; the disease differs from adult schizophrenia in that the child does not have delusions and hallucinations...&quot;

The Capital (Annapolis, MD) July 13, 1973
Story about 3 children aged 9, 15, 14
Which would translate to birthdates of 
1958, 1959, 1964
Which speaks both to adults and to vaccination schedule influences, since that was the way-back-when of few shots spaced widely and later often alluded to in current campaigns.
&quot;...were &quot;perfect babies,&quot; according to their mothers. They cried very little, developed fairly normally, walking and talking at about the right age...Yet, each child, as he neared the age of two began to withdraw. Each child regressed in his language development and began to dislike being hugged. They each shied away from physical contact with their parents...&quot;

Then, as now, there is lots of discussions of etiology, treatment modalities, some stories citing hopelessness, some discussing differential and unexpected outcomes.  Like I said, purely anecdotal, but kind of interesting.</description>
		<content:encoded><![CDATA[<p>Kristina,<br />
Didn&#8217;t know *quite* where to put this, but I thought it was interesting, even if it falls more into the anecdotal than data.<br />
I&#8217;ve been doing some genealogy searches, with some associated news archive searching and did some browsing under search terms childhood schizophrenia and autism. Wasn&#8217;t quite sure what I would find.</p>
<p>Simpson&#8217;s Leader-Times, PA April 29, 1963<br />
&#8220;More than 500,000 children in the United States are mentally ill and most of them suffer from childhood schizophrenia, which is psychosis, not to be confused with mental retardation.&#8221;</p>
<p>Simpson&#8217;s Leader-Times, PA<br />
January 15, 1967<br />
Autistic Child Stays Completely to Himself<br />
&#8220;&#8230;It is estimated that there are 500,000 such children in the US&#8221;.<br />
FWIW&#8211;this quoted number is not from an isolated story, although these two were from the Simpson-Leader. There were many, starting from about 1963 under the header of &#8220;childhood schizophrenia&#8221; and &#8220;autism&#8221;. The use of the term childhood schizophrenia started to die out in the early 70&#8217;s and was overtaken by the use of the term autism in the &#8217;80&#8217;s.</p>
<p>Simpson&#8217;s Leader-Times, PA, Sept 25, 1972<br />
&#8220;&#8230;Dr. (Lorna) Wing says that although some experts have called autism a &#8220;childhood schizophrenia,&#8221; the disease differs from adult schizophrenia in that the child does not have delusions and hallucinations&#8230;&#8221;</p>
<p>The Capital (Annapolis, MD) July 13, 1973<br />
Story about 3 children aged 9, 15, 14<br />
Which would translate to birthdates of<br />
1958, 1959, 1964<br />
Which speaks both to adults and to vaccination schedule influences, since that was the way-back-when of few shots spaced widely and later often alluded to in current campaigns.<br />
&#8220;&#8230;were &#8220;perfect babies,&#8221; according to their mothers. They cried very little, developed fairly normally, walking and talking at about the right age&#8230;Yet, each child, as he neared the age of two began to withdraw. Each child regressed in his language development and began to dislike being hugged. They each shied away from physical contact with their parents&#8230;&#8221;</p>
<p>Then, as now, there is lots of discussions of etiology, treatment modalities, some stories citing hopelessness, some discussing differential and unexpected outcomes.  Like I said, purely anecdotal, but kind of interesting.</p>
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		<title>By: Vaccines, Diagnosis, and Databases</title>
		<link>http://www.blisstree.com/articles/where-are-all-the-autistic-adults/comment-page-3/#comment-543968</link>
		<dc:creator>Vaccines, Diagnosis, and Databases</dc:creator>
		<pubDate>Sun, 22 Jun 2008 23:39:19 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/where-are-all-the-autistic-adults/#comment-543968</guid>
		<description>[...] media, to cite a recently published book&#8212;has contributed to more children and, too, adults, being diagnosed with autism. This growing understanding of autism has, it has been argued, [...]</description>
		<content:encoded><![CDATA[<p>[...] media, to cite a recently published book&#8212;has contributed to more children and, too, adults, being diagnosed with autism. This growing understanding of autism has, it has been argued, [...]</p>
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		<title>By: donald savitz</title>
		<link>http://www.blisstree.com/articles/where-are-all-the-autistic-adults/comment-page-3/#comment-558562</link>
		<dc:creator>donald savitz</dc:creator>
		<pubDate>Fri, 20 Jun 2008 12:01:00 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/where-are-all-the-autistic-adults/#comment-558562</guid>
		<description>How many legs are there for your sites. I have found about 4 so far.I try to read all of them and all i see is that most of them seem to like that they have autism and not how they got it. No body seems to went to get involved on the caused the them to get it.</description>
		<content:encoded><![CDATA[<p>How many legs are there for your sites. I have found about 4 so far.I try to read all of them and all i see is that most of them seem to like that they have autism and not how they got it. No body seems to went to get involved on the caused the them to get it.</p>
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		<title>By: Kristina Chew, PhD</title>
		<link>http://www.blisstree.com/articles/where-are-all-the-autistic-adults/comment-page-3/#comment-554919</link>
		<dc:creator>Kristina Chew, PhD</dc:creator>
		<pubDate>Tue, 17 Jun 2008 21:40:27 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/where-are-all-the-autistic-adults/#comment-554919</guid>
		<description>Money does, but just making presumptions about &quot;pharma companies&quot; and supposed influences doesn&#039;t really address issues such as determining diagnostic criteria and, too, finding autistic adults.</description>
		<content:encoded><![CDATA[<p>Money does, but just making presumptions about &#8220;pharma companies&#8221; and supposed influences doesn&#8217;t really address issues such as determining diagnostic criteria and, too, finding autistic adults.</p>
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		<title>By: donald savitz</title>
		<link>http://www.blisstree.com/articles/where-are-all-the-autistic-adults/comment-page-3/#comment-558323</link>
		<dc:creator>donald savitz</dc:creator>
		<pubDate>Tue, 17 Jun 2008 20:53:10 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/where-are-all-the-autistic-adults/#comment-558323</guid>
		<description>I wounder how long it is going for the uk to do the study and how payed for it  I hope that is not a pharma co. Be if is you can be shur that it will come out in favor of the what the co wents it to say. Money has that afect.</description>
		<content:encoded><![CDATA[<p>I wounder how long it is going for the uk to do the study and how payed for it  I hope that is not a pharma co. Be if is you can be shur that it will come out in favor of the what the co wents it to say. Money has that afect.</p>
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		<title>By: donald savitz</title>
		<link>http://www.blisstree.com/articles/where-are-all-the-autistic-adults/comment-page-3/#comment-554865</link>
		<dc:creator>donald savitz</dc:creator>
		<pubDate>Mon, 16 Jun 2008 01:05:50 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/where-are-all-the-autistic-adults/#comment-554865</guid>
		<description>Norah; You said that your country never put fluoride in the water supply. and witch country is that.</description>
		<content:encoded><![CDATA[<p>Norah; You said that your country never put fluoride in the water supply. and witch country is that.</p>
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		<title>By: Patience</title>
		<link>http://www.blisstree.com/articles/where-are-all-the-autistic-adults/comment-page-3/#comment-556369</link>
		<dc:creator>Patience</dc:creator>
		<pubDate>Wed, 21 May 2008 20:58:42 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/where-are-all-the-autistic-adults/#comment-556369</guid>
		<description>I realize this is quite an old post, and that a lot of discussion has gone on between now and then (haven&#039;t even read it yet), but the very first reply struck me as so true: &quot;The second big reason is why in the world would an autistic who has progressed to the point of “making it” in a NT world want to slap a label on themself? So they can be further ostracized and marginalized in society, and their bosses can have an excuse for getting rid of them?&quot;

The more I learn, the more I strongly suspect I have Asperger&#039;s.  Reading previous comments I have made would show an evolution of thought on this, from acknowledging that I have some traits to, now, acknowledging that by &quot;some&quot; I mean &quot;all but being impaired by my traits&quot;.  I could fall within the BAP, I suppose, instead.  Either way, I&#039;m not impaired by my differences.  I&#039;ve learned to make them work, and found people who love me for who I am, who don&#039;t look at me weird if I have a hand twitching stim in public that draws looks and are understanding if I get upset because I don&#039;t understand tones well and misinterpret statements.  I&#039;m smart, and I do a number of things well.  Why in the world would I want to get a label now, when I&#039;m finally an adult and finally really functioning in the world?  I fear that it would give excuses to employers not to hire me (hard enough being a young adult and assumed to be a lazy good for nothing because of it), for people to discriminate.  The mental picture so many people have of autism is so negative, I&#039;m reluctant to associate myself with it.  I do realize that this is contradictory to helping people see that autism isn&#039;t just one thing, but it&#039;s hard to take that leap.

My girlfriend has an overt disability (cerebral palsy) and has a hard enough time getting people to treat her as an intelligent adult.  It&#039;s selfish, yes, but I don&#039;t want to stand up and be evaluated and counted if it means I will be marked as &#039;disabled&#039; too.  I&#039;m able.  I just do things differently.</description>
		<content:encoded><![CDATA[<p>I realize this is quite an old post, and that a lot of discussion has gone on between now and then (haven&#8217;t even read it yet), but the very first reply struck me as so true: &#8220;The second big reason is why in the world would an autistic who has progressed to the point of “making it” in a NT world want to slap a label on themself? So they can be further ostracized and marginalized in society, and their bosses can have an excuse for getting rid of them?&#8221;</p>
<p>The more I learn, the more I strongly suspect I have Asperger&#8217;s.  Reading previous comments I have made would show an evolution of thought on this, from acknowledging that I have some traits to, now, acknowledging that by &#8220;some&#8221; I mean &#8220;all but being impaired by my traits&#8221;.  I could fall within the BAP, I suppose, instead.  Either way, I&#8217;m not impaired by my differences.  I&#8217;ve learned to make them work, and found people who love me for who I am, who don&#8217;t look at me weird if I have a hand twitching stim in public that draws looks and are understanding if I get upset because I don&#8217;t understand tones well and misinterpret statements.  I&#8217;m smart, and I do a number of things well.  Why in the world would I want to get a label now, when I&#8217;m finally an adult and finally really functioning in the world?  I fear that it would give excuses to employers not to hire me (hard enough being a young adult and assumed to be a lazy good for nothing because of it), for people to discriminate.  The mental picture so many people have of autism is so negative, I&#8217;m reluctant to associate myself with it.  I do realize that this is contradictory to helping people see that autism isn&#8217;t just one thing, but it&#8217;s hard to take that leap.</p>
<p>My girlfriend has an overt disability (cerebral palsy) and has a hard enough time getting people to treat her as an intelligent adult.  It&#8217;s selfish, yes, but I don&#8217;t want to stand up and be evaluated and counted if it means I will be marked as &#8216;disabled&#8217; too.  I&#8217;m able.  I just do things differently.</p>
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		<title>By: laurentius-rex</title>
		<link>http://www.blisstree.com/articles/where-are-all-the-autistic-adults/comment-page-3/#comment-554754</link>
		<dc:creator>laurentius-rex</dc:creator>
		<pubDate>Tue, 13 May 2008 16:12:28 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/where-are-all-the-autistic-adults/#comment-554754</guid>
		<description>I expect a continuing dialogue ending in a proper research design.

My concern is of course that they do not have the resources to employ the census takers they will need for a realistic attempt, and rely on questionnaire return. One really needs a significant number of people to reply to be valid on a street to street basis otherwise it becomes all too prone the self selecting bias, (or self opting out as the case may be)

The worst case would be to trawl existing records and base questionnaires on that.

I wonder whether there was competitive bidding for this project, of whether it was just plonked on the team chosen in the expectation that they will be able to come up with a method, they know not of yet.

Well I intend to find out one way or the other. If not from professor Brugha, then from others involved elsewhere to whom I have easier and more reliable access.</description>
		<content:encoded><![CDATA[<p>I expect a continuing dialogue ending in a proper research design.</p>
<p>My concern is of course that they do not have the resources to employ the census takers they will need for a realistic attempt, and rely on questionnaire return. One really needs a significant number of people to reply to be valid on a street to street basis otherwise it becomes all too prone the self selecting bias, (or self opting out as the case may be)</p>
<p>The worst case would be to trawl existing records and base questionnaires on that.</p>
<p>I wonder whether there was competitive bidding for this project, of whether it was just plonked on the team chosen in the expectation that they will be able to come up with a method, they know not of yet.</p>
<p>Well I intend to find out one way or the other. If not from professor Brugha, then from others involved elsewhere to whom I have easier and more reliable access.</p>
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		<title>By: Autism Blog - The Autism Epidemic Meme is Behind Almost All Autism Woo: A Call for Additional Research &#124; Left Brain/Right Brain</title>
		<link>http://www.blisstree.com/articles/where-are-all-the-autistic-adults/comment-page-3/#comment-557296</link>
		<dc:creator>Autism Blog - The Autism Epidemic Meme is Behind Almost All Autism Woo: A Call for Additional Research &#124; Left Brain/Right Brain</dc:creator>
		<pubDate>Tue, 13 May 2008 14:12:06 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/where-are-all-the-autistic-adults/#comment-557296</guid>
		<description>[...] in adults. This one is non-trivial, as there are some ethical issues to consider, but it seems they will attempt it in the UK. I hope it&#8217;s not another case of trying to find how many adults are diagnosed with autism or [...]</description>
		<content:encoded><![CDATA[<p>[...] in adults. This one is non-trivial, as there are some ethical issues to consider, but it seems they will attempt it in the UK. I hope it&#8217;s not another case of trying to find how many adults are diagnosed with autism or [...]</p>
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