Comments on: Who Remembers Secretin?: Let the Parent Beware When Seeking Treatments for Autism

By: Mark

Mark — Sat, 25 Jul 2009 03:09:48 +0000

Can oral secretin be purchased and where? I heard there is now a pill.

By: Mark

Mark — Tue, 21 Jul 2009 20:22:22 +0000

Where can I obtain secretin for my 16 year old Autistic Son? Need help.

By: And when we were wrong, we promptly admitted it

And when we were wrong, we promptly admitted it — Mon, 22 Sep 2008 15:06:25 +0000

[...] dog or multivitamins? Chocolate? Invest in hours of ABA, or Floortime? Chelate, do HBOT, secretin (who remembers it……), various magic supplements? Hire an advocate to accompany you to IEP meetings; hire [...]

By: From Secretin to HBOT to [insert name of next autism treatment here]

From Secretin to HBOT to [insert name of next autism treatment here] — Tue, 02 Sep 2008 17:57:21 +0000

[...] was not a treatment suggested for autistic children when my son was young. Secretin was and studies have not replicated the miraculous benefit that some claimed it would have. We [...]

By: Storkdok

Storkdok — Mon, 05 May 2008 01:02:39 +0000

After my son had his endoscopy and colonoscopy by Dr. Buie at LADDERS/Mass Gen, he had the first normal/formed stool that was brown, once a day, for the first time in his life at 2.5 years old. He received Secretin as part of the GI scope. When the results were back, Dr. Buie said my son had not only severe acute and chronic colitis and gastritis, but also a partial pancreatic insufficiency. As part of his treatment, not only did he take meds to calm down the inflammatory bowel disease, but he also was prescribed Secretin IV monthly, which helped tremendously. Dr. Buie said he would probably outgrow the pancreatic insufficiency, and Alex did after he was about 4 years old, and his pancreas started producing enough enzymes to help digest his food. (We had tried the prescription enzymes before the Secretin, and he couldn’t tolerate them, they burned his esophagus when put into applesauce, and they are huge “horsepills”, so small kids can’t swallow them.) He only had to take the Secretin then for 14 months, and he has continued on the colitis and gastritis meds and is very stable.

We saw a dramatic difference in Alex after the GI problems were adequately treated. I would not say the Secretin “helped his autism”, rather it helped his overall GI health and stopped the terrible pain he was in, and when his GI tract was functioning well, he was able to learn better. He was telling us by his actions before the scope that he was in pain. I knew he was in pain and I tried to tell many doctors this before Dr. Buie, but they didn’t believe me. Dr. Buie confirmed that many kids have undiagnosed pain from real medical disorders, and they are misdiagnosed as “autistic symptoms” instead of properly working them up and diagnosing and treating these very real medical problems.

I have often wondered if the first children who received Secretin had the same thing happen as what happened to Alex, and they attributed the improvement in language and less stimming, etc, to the Secretin, instead of helping the GI problems, which allowed their kids to be pain free and more able to learn.

Karen

By: Bonnie Sayers

Bonnie Sayers — Sun, 04 May 2008 22:02:38 +0000

I remember that time, my pre-computer days. I had that Shaw book in yellow. They gave it for free at some conference I attended. The Foothill Autism Alliance was just being created and now ten years later they have formed an alliance with ASA. The Los Angeles Chapter of ASA had conferences, a library and meetings. Than it changed to another name and disappeared. Now there is a chapter that I am not associated with and not sure what they do.

I had called ARI and spoke with Dr Rimland and ordered the supplement DMG and my kids did not like it, did the E-2 forms for my kids and registered with AGRE and Dr. Smith came for the testing and videotaped me and boys.

I orderd a book by Catherine Maurice on behavior and made copies for preschool teacher and then a few years later sold that and the Shaw book on ebay. I also had the EZ ON vest but never used it, was too hard and sold that too.

By: mary

mary — Sat, 08 Mar 2008 12:34:46 +0000

we’ve been been giving my previously non verbal 4 year old son homeopathic secretin for two weeks now and he has just started saying words in the past few days, coincidence?? possibly, but we plan to continue to see what happens next.

By: Kristina Chew, PhD

Kristina Chew, PhD — Thu, 14 Feb 2008 13:35:14 +0000

Very interesting—–another friend of mine has given it to her son, but the results only lasted briefly. Hope your son continues to do well.

By: Pauline Zeilenga

Pauline Zeilenga — Thu, 14 Feb 2008 05:25:45 +0000

My son was severely autistic we tried therapy that was recommended. Then we found Secretin. After just one infusion (6 weeks worth) the results were miraculous to say the least. He was on it for a few years and then we found he didn’t need it anymore. He is a bright funny kind and thoughtful 12 year old with many friends and a full social life.

By: Pauline Zeilenga

Pauline Zeilenga — Thu, 14 Feb 2008 05:25:44 +0000