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	<title>Comments on: Worry Worry</title>
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	<description>Family, Health, Home and Lifestyles</description>
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		<title>By: Kristina Chew, PhD</title>
		<link>http://www.blisstree.com/articles/worry-worry/comment-page-1/#comment-546007</link>
		<dc:creator>Kristina Chew, PhD</dc:creator>
		<pubDate>Mon, 15 Oct 2007 19:43:55 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/worry-worry/#comment-546007</guid>
		<description>Great to hear from you again! I&#039;ll check out your videos---thank you.</description>
		<content:encoded><![CDATA[<p>Great to hear from you again! I&#8217;ll check out your videos&#8212;thank you.</p>
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		<title>By: Correy Lennox</title>
		<link>http://www.blisstree.com/articles/worry-worry/comment-page-1/#comment-546000</link>
		<dc:creator>Correy Lennox</dc:creator>
		<pubDate>Mon, 15 Oct 2007 19:30:03 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/worry-worry/#comment-546000</guid>
		<description>Hi Kristina!
This is TOTALLY off thread, but I&#039;m responding to a message from you from last April!  My film is called &quot;The Ghost at the Banquet&quot; and there&#039;s clips uploaded to youtube.  It&#039;s now done, actually!

Sorry I took so long to respond and apologize for not responding to this article.</description>
		<content:encoded><![CDATA[<p>Hi Kristina!<br />
This is TOTALLY off thread, but I&#8217;m responding to a message from you from last April!  My film is called &#8220;The Ghost at the Banquet&#8221; and there&#8217;s clips uploaded to youtube.  It&#8217;s now done, actually!</p>
<p>Sorry I took so long to respond and apologize for not responding to this article.</p>
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		<title>By: Last Week&#8217;s Top Posts</title>
		<link>http://www.blisstree.com/articles/worry-worry/comment-page-1/#comment-545795</link>
		<dc:creator>Last Week&#8217;s Top Posts</dc:creator>
		<pubDate>Mon, 15 Oct 2007 06:15:00 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/worry-worry/#comment-545795</guid>
		<description>[...] Worry, WorryA 11-year-old boy is bullied as he gets off the schoolbus&#8212;and the attackers videotape it. [...]</description>
		<content:encoded><![CDATA[<p>[...] Worry, WorryA 11-year-old boy is bullied as he gets off the schoolbus&#8212;and the attackers videotape it. [...]</p>
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		<title>By: athina</title>
		<link>http://www.blisstree.com/articles/worry-worry/comment-page-1/#comment-543738</link>
		<dc:creator>athina</dc:creator>
		<pubDate>Wed, 10 Oct 2007 06:26:00 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/worry-worry/#comment-543738</guid>
		<description>When I think of my son&#039;s future, the song &quot;yesterday,all my troubles seemed so far away, now it seems they&#039;re only here to stay&quot; comes in my mind. Yesterday was before the diagnosis and my troubles, my greatest trouble, is his future. I&#039;ll try to prepare him as good as I can for his unfair battle in life, but there are no guarantees that he will live an indepentent life, or, more fundamentally, be happy and safe. I guess we should deal with problems the way the arise and just hope for the best. However, the question &quot;what will happen to him after I&#039;m gone&quot; is definetely a trouble that is here to stay.</description>
		<content:encoded><![CDATA[<p>When I think of my son&#8217;s future, the song &#8220;yesterday,all my troubles seemed so far away, now it seems they&#8217;re only here to stay&#8221; comes in my mind. Yesterday was before the diagnosis and my troubles, my greatest trouble, is his future. I&#8217;ll try to prepare him as good as I can for his unfair battle in life, but there are no guarantees that he will live an indepentent life, or, more fundamentally, be happy and safe. I guess we should deal with problems the way the arise and just hope for the best. However, the question &#8220;what will happen to him after I&#8217;m gone&#8221; is definetely a trouble that is here to stay.</p>
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		<title>By: Edwin Tirado Takes the Stand in His Trial</title>
		<link>http://www.blisstree.com/articles/worry-worry/comment-page-1/#comment-543702</link>
		<dc:creator>Edwin Tirado Takes the Stand in His Trial</dc:creator>
		<pubDate>Wed, 10 Oct 2007 03:10:28 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/worry-worry/#comment-543702</guid>
		<description>[...] Tirado working overtime, even &#8220;multiple double shifts&#8221;: I suspect, or at least worry, that this is not unusual.   ASD, Aspergers, autism, children, Education, family, health, jonathans [...]</description>
		<content:encoded><![CDATA[<p>[...] Tirado working overtime, even &#8220;multiple double shifts&#8221;: I suspect, or at least worry, that this is not unusual.   ASD, Aspergers, autism, children, Education, family, health, jonathans [...]</p>
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		<title>By: amy</title>
		<link>http://www.blisstree.com/articles/worry-worry/comment-page-1/#comment-543523</link>
		<dc:creator>amy</dc:creator>
		<pubDate>Tue, 09 Oct 2007 18:25:36 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/worry-worry/#comment-543523</guid>
		<description>m~d, unfortunately, even in human services when you have kind, multiply-degreed people available, the pay is not much better.  I know social workers on food stamps.  And people do burn out within years.  There is tremendous need -- so much that my sense is that the people who do demand, and command, professional salaries are resented.  We have very few child psychiatrists here, the need is great, and there are just not enough appointments available, even for those with great insurance.  They are not going to work themselves to exhaustion for no money the way the social workers do.

Regan, the way that most people I know of deal with the problem of &quot;what happens when I can&#039;t be there because I&#039;m dead or disabled&quot; has to do with insurance, family, carefully made wills and trusts, and hope.  Because in the end that&#039;s really all you can do; there&#039;s a limit to what you can do from beyond the grave.  

My own worries have only to do with about the next 15 years or so; if something happens to me, my ex will have my daughter&#039;s care, even if he&#039;s not really able to take care of her (or himself).  Our families are small and scattered, our parents are getting on.  So there is an insurance trust that allows him to live with her in the house, pays bills if he can&#039;t work, pays for household staff, and pays for healthcare for both of them.  Trustees and advisors have been carefully chosen.  My daughter and I are part of a small, tight Jewish community, and I&#039;ve arranged things so that they&#039;re likely to look out for her, keep her connected, show her models of successful professional/educational life, and attend to her education.  I am well-connected with the local human-services establishment and I trust those people to make good recommendations for good-enough, understanding household staff (who can be paid a premium thanks to the insurance trust).  My school friends would also, I think, help out.

Of course, my ex could reject all of this.  Nothing I can do about that, and in the worst case she would grow up isolated, taking care of her father and watching his breakdowns in a home dominated by his mental illness, with little or no training in looking to her own future.  

There is really only so much you can do.  Money can sometimes help if it&#039;s carefully controlled.  A combination of money, savvy, and a devoted family member is probably the best you can do. In practice, plan the best you can, and then put aside fantasies of future grief as best you can, because they cannot help.</description>
		<content:encoded><![CDATA[<p>m~d, unfortunately, even in human services when you have kind, multiply-degreed people available, the pay is not much better.  I know social workers on food stamps.  And people do burn out within years.  There is tremendous need &#8212; so much that my sense is that the people who do demand, and command, professional salaries are resented.  We have very few child psychiatrists here, the need is great, and there are just not enough appointments available, even for those with great insurance.  They are not going to work themselves to exhaustion for no money the way the social workers do.</p>
<p>Regan, the way that most people I know of deal with the problem of &#8220;what happens when I can&#8217;t be there because I&#8217;m dead or disabled&#8221; has to do with insurance, family, carefully made wills and trusts, and hope.  Because in the end that&#8217;s really all you can do; there&#8217;s a limit to what you can do from beyond the grave.  </p>
<p>My own worries have only to do with about the next 15 years or so; if something happens to me, my ex will have my daughter&#8217;s care, even if he&#8217;s not really able to take care of her (or himself).  Our families are small and scattered, our parents are getting on.  So there is an insurance trust that allows him to live with her in the house, pays bills if he can&#8217;t work, pays for household staff, and pays for healthcare for both of them.  Trustees and advisors have been carefully chosen.  My daughter and I are part of a small, tight Jewish community, and I&#8217;ve arranged things so that they&#8217;re likely to look out for her, keep her connected, show her models of successful professional/educational life, and attend to her education.  I am well-connected with the local human-services establishment and I trust those people to make good recommendations for good-enough, understanding household staff (who can be paid a premium thanks to the insurance trust).  My school friends would also, I think, help out.</p>
<p>Of course, my ex could reject all of this.  Nothing I can do about that, and in the worst case she would grow up isolated, taking care of her father and watching his breakdowns in a home dominated by his mental illness, with little or no training in looking to her own future.  </p>
<p>There is really only so much you can do.  Money can sometimes help if it&#8217;s carefully controlled.  A combination of money, savvy, and a devoted family member is probably the best you can do. In practice, plan the best you can, and then put aside fantasies of future grief as best you can, because they cannot help.</p>
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		<title>By: Chuck</title>
		<link>http://www.blisstree.com/articles/worry-worry/comment-page-1/#comment-543505</link>
		<dc:creator>Chuck</dc:creator>
		<pubDate>Tue, 09 Oct 2007 17:48:30 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/worry-worry/#comment-543505</guid>
		<description>There are the rare direct care workers that &quot;care&quot;, are literate, and drug-free and I am happy to be married to one. :P</description>
		<content:encoded><![CDATA[<p>There are the rare direct care workers that &#8220;care&#8221;, are literate, and drug-free and I am happy to be married to one. <img src='http://www.blisstree.com/wp-includes/images/smilies/icon_razz.gif' alt=':P' class='wp-smiley' /> </p>
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		<title>By: mommy~dearest</title>
		<link>http://www.blisstree.com/articles/worry-worry/comment-page-1/#comment-543493</link>
		<dc:creator>mommy~dearest</dc:creator>
		<pubDate>Tue, 09 Oct 2007 17:16:48 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/worry-worry/#comment-543493</guid>
		<description>I hate to say that this is a totally appropriate fear.  I have worked in group homes, ans was appalled at some of the things I saw going on.  I eventually got out of the &quot;direct care&quot; field because I just couldn&#039;t take it, and nobody seemed to give a crap to change it.

Reality is, within a company, it is the direct care workers that deal with the clients on a daily basis.  Clients depend on them to meet their basic needs.  They are also the lowest paid in the company, with a turnover rate that is incredible.  

The company I work for now, is very prestigious, ans very well known throughout the TBI (traumatic brain injury) community.  Even with all of that, we still hire direct care workers who are less than desirable.  Matter of fact, the only reason we&#039;ve ever turned anyone away is if they had been convicted of abuse in the past.  Convicted.

It&#039;s sad, but on the business side, it does boil down to the almighty dollar.  Try getting a quality, experienced, or degreed person to work for $7-$8/hour without weekends or holidays.  These people do need to get paid more, but companies should stop settling for illiterate dropouts with drug histories and such (not saying that all workers are like this, just speaking from my experiences) to care for our loved ones.</description>
		<content:encoded><![CDATA[<p>I hate to say that this is a totally appropriate fear.  I have worked in group homes, ans was appalled at some of the things I saw going on.  I eventually got out of the &#8220;direct care&#8221; field because I just couldn&#8217;t take it, and nobody seemed to give a crap to change it.</p>
<p>Reality is, within a company, it is the direct care workers that deal with the clients on a daily basis.  Clients depend on them to meet their basic needs.  They are also the lowest paid in the company, with a turnover rate that is incredible.  </p>
<p>The company I work for now, is very prestigious, ans very well known throughout the TBI (traumatic brain injury) community.  Even with all of that, we still hire direct care workers who are less than desirable.  Matter of fact, the only reason we&#8217;ve ever turned anyone away is if they had been convicted of abuse in the past.  Convicted.</p>
<p>It&#8217;s sad, but on the business side, it does boil down to the almighty dollar.  Try getting a quality, experienced, or degreed person to work for $7-$8/hour without weekends or holidays.  These people do need to get paid more, but companies should stop settling for illiterate dropouts with drug histories and such (not saying that all workers are like this, just speaking from my experiences) to care for our loved ones.</p>
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		<title>By: chrisd</title>
		<link>http://www.blisstree.com/articles/worry-worry/comment-page-1/#comment-543245</link>
		<dc:creator>chrisd</dc:creator>
		<pubDate>Tue, 09 Oct 2007 03:10:53 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/worry-worry/#comment-543245</guid>
		<description>It&#039;s very scary, especially since the boy is my son&#039;s age.

But part of it (for me at least) is that I have to trust God that He will care for my son, even when I can&#039;t be there.

I thank God that this incident was videotaped. Authorities will know for certain who did this disgraceful thing. And the parents of these children will not be able to deny it either.

Scary.</description>
		<content:encoded><![CDATA[<p>It&#8217;s very scary, especially since the boy is my son&#8217;s age.</p>
<p>But part of it (for me at least) is that I have to trust God that He will care for my son, even when I can&#8217;t be there.</p>
<p>I thank God that this incident was videotaped. Authorities will know for certain who did this disgraceful thing. And the parents of these children will not be able to deny it either.</p>
<p>Scary.</p>
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		<title>By: Kristina Chew, PhD</title>
		<link>http://www.blisstree.com/articles/worry-worry/comment-page-1/#comment-543187</link>
		<dc:creator>Kristina Chew, PhD</dc:creator>
		<pubDate>Mon, 08 Oct 2007 23:48:48 +0000</pubDate>
		<guid isPermaLink="false">http://www.autismvox.com/worry-worry/#comment-543187</guid>
		<description>Having lived with two elderly in-laws last year, I was very struck by overlaps in issues of their care and of Charlie&#039;s. In both cases, the need for advocacy and honesty about needs, condition, diagnosis was essential---Jim and I have been able to do our best by Charlie by striving to be as honest and discerning of where he is as we can. It was much harder to do this with my in-laws, both of whom are not able to make more and more decisions for themselves----are not able to judge their physical and mental state, for one thing.</description>
		<content:encoded><![CDATA[<p>Having lived with two elderly in-laws last year, I was very struck by overlaps in issues of their care and of Charlie&#8217;s. In both cases, the need for advocacy and honesty about needs, condition, diagnosis was essential&#8212;Jim and I have been able to do our best by Charlie by striving to be as honest and discerning of where he is as we can. It was much harder to do this with my in-laws, both of whom are not able to make more and more decisions for themselves&#8212;-are not able to judge their physical and mental state, for one thing.</p>
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