Comments on: Your Comments on Autism Services Sought for the IACC

By: IACC Services Subcommittee Meeting on Dec 10.

IACC Services Subcommittee Meeting on Dec 10. — Fri, 05 Dec 2008 18:03:42 +0000

[...] Autism Coordinating Committee (IACC), to review public comments received in response to a completed Request for Information. When I attended the November 21st IACC meeting, a good part of the agenda was devoted to [...]

By: About the NIH ASD Research Portfolio; Submit Feedback to the IACC

About the NIH ASD Research Portfolio; Submit Feedback to the IACC — Mon, 15 Sep 2008 17:14:31 +0000

[...] Be sure to get your feedback in to the Interagency Autism Coordinating Committee (IACC). Send in what you think about comments about autism services by September 19, and also your comments about the draft of the [...]

By: Comments to the IACC and a Contest about “thinking differently”

Comments to the IACC and a Contest about “thinking differently” — Mon, 25 Aug 2008 17:00:36 +0000

[...] a month away but it’s not too late to get started. (And, September 19th is the deadline for submitting a comment to the IACC about autism services.) Tags: asd, asperger, autism, autism blog, contest, disabilities [...]

By: IACC Strategic Plan RFI | Autism Library

IACC Strategic Plan RFI | Autism Library — Fri, 22 Aug 2008 04:21:26 +0000

[...] This is different than the recent RFI from the services subcommittee, which we discussed and AutismVox has discussed. [...]

By: Paula

Paula — Fri, 22 Aug 2008 02:40:05 +0000

I’ve attended two IACC meetings and given statements during the public comment sessions. I have also submitted RFI statements and attended several conference calls (listen-only mode). My impression is that NIMH is very interested in hearing ALL points of view. I don’t think it’s a “done deal” that only certain types of research are going to get funded. Right now research into services and supports is vastly underfunded compared with genetic research and even biomedical research. If a concerted effort is made to respond to this RFI I think it could make a difference in where funds are allocated.

By: blog-thing : Talk back to IACC

blog-thing : Talk back to IACC — Thu, 21 Aug 2008 22:02:19 +0000

[...] AutismVox [...]

By: Regan

Regan — Thu, 21 Aug 2008 18:35:30 +0000

Huge is right. That was my hyperbolic, over the top never gonna happen wish…as far as the economic model that would make it happen…how about one that is at least as committed as the defense budget?

If in my lifetime I see IDEA fully funded as originally specified, I will consider that a real statement of commitment by the Federal government. I think underfunding has become so much of the status quo that I talked to some state lawmakers who were unaware that it was underfunded.

So, not relevant to the IACC, but just on my mind.

By: Kristina Chew, PhD

Kristina Chew, PhD — Thu, 21 Aug 2008 01:48:31 +0000

The Friends of Autistic People are also planning a farm community in southwestern Connecticut.

Regan, maybe this is too huge a question, but what kind of economic model might help to make such a “permanent and long-view commitment” plausible?

By: Regan

Regan — Wed, 20 Aug 2008 21:46:12 +0000

One option that I think receives less consideration than it might are farming communities as a community living option. This article discusses some pros and cons. My own feeling is that it could be more available for those who would enjoy having such as a lifestyle and vocation. In Response to Deinstitutionalization: Farm Communities as a Housing Alternative for Individuals with Autism . The biggest long-term concern that I have is opportunity for exercise of autonomy, competent professionals/parapros, and dignified living conditions premised from strengths at least as much as that from disability. Unfortunately, the ringer is $$...always $$, which can derail the best laid plans. I would feel a lot more confident if our society would establish a permanent and long-view commitment to basic and quality safety nets/systems for those most vulnerable in the society, because so far my experience is that these are too susceptible to political sea changes.