How To Deal With Your Mild Autism(?): Wired Wiki

September 5, 2008 by Kristina Chew, PhD  
Filed under Asperger's Syndrome, Technology

Courtesy of Wired magazine, a wiki about how to deal with your mild autism. Tips include:

From item #5,  Make it work for you:

Asperger’s isn’t an illness, it’s a set of characteristics, and you can turn these to your advantage. Find roles where your relentless curiosity can be a plus. Become an expert in your company or field, the go-to guy* for details, but learn to offer only what’s needed when asked. (* more than 95% of Aspies are male)

I appreciated the positive outlook here and emphasis on using Asperger’s to one’s advantage, and the small Socratic reference to “know thyself.”

Who’s Trapped in Whose World?

February 28, 2008 by Kristina Chew, PhD  
Filed under Disability Rights, Philosophy

Are people with autism trapped in their own world? Or are the rest of us just trapped in ours?

asks Tara Parker-Pope on the New York Times, regarding the the Wired magazine article on autism featuring Amanda Baggs and Michelle Dawson.

Parker-Pope asks a chicken and egg kind of question about autism: Is it a disease and a disability? Or is it a difference, a different way of being human? And who decides—autistic persons themselves, “experts” in autism, those who live with autistic persons—or who should decide?

Smart and Smarter

February 27, 2008 by Kristina Chew, PhD  
Filed under Disability Rights, Intelligence

Writes Cory Doctorow on Boing Boing about the Wired magazine article on autism featuring Amanda Baggs and Michelle Dawson:

The article looks into the long-held belief that autism and retardation are tied together and concludes that this just isn’t true — rather, that people with autism have been incorrectly classed as retarded for generations.

Yes.

It’s very obvious to me why people would think my son is mentally retarded; his academic performance and testing reveal this. But anyone who’s spent any time with Charlie knows that—-while he is very limited in his speech and while it often takes a long time (minutes, hours, days) for him to understand things that are said to him—-he doesn’t just look smart, but he is. Charlie’s very attuned to all that is said and done around him; he has an innate sense of direction and a strong memory. He needs a lot of help to navigate the world, whether looking both ways for cars or listening for his name to be called; he’ll very likely always need a lot of supports. He’s neither a genius nor a savant.

And he’s been smart enough to teach me that there’s a whole other way of being and understanding and processing the world—something I was more than ignorant of before getting to know a boy named Charlie.

“”We label them as retarded because they can’t express what they know”

Go here to read Wired’s article, The Truth About Autism: Scientists Reconsider What They Think They Know. The article closely profiles Amanda Baggs—-who notes that “‘I don’t fit the stereotype of autism. But who does?’”— and Michelle Dawson—-who says “‘There’s such a variety of human behavior. Why is my kind wrong?”‘.

And some words by Mike Merzenich, a professor of neuroscience at UC San Francisco:

Mike Merzenich…….says the notion that 75 percent of autistic people are mentally retarded is “incredibly wrong and destructive.” He has worked with a number of autistic children, many of whom are nonverbal and would have been plunked into the low-functioning category. “We label them as retarded because they can’t express what they know,” and then, as they grow older, we accept that they “can’t do much beyond sit in the back of a warehouse somewhere and stuff letters in envelopes.”

And I know one boy who struggles to talk and to read and to answer the question “who many crackers?” after he’s just counted out what’s on his plate: He’s a boy who, too, has been learning the A and D strings on the cello, and who—pointing out the window and calling out “this way, this way”—shows he knows his way up and down New Jersey highways. People might call him retarded and he has a lot of challenges and impairments, and a lot more smarts than you or I can tell.


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