Disney and Penguins
October 8, 2008 by Kristina Chew, PhD
Filed under Animals, Art
Disney characters and penguins are 15-year-old Pamela Williamson’s favorite subjects to draw, and Microsoft’s Paint software is her preferred medium. According to today’s Saanich News, Williamson was diagnosed with autism at the age of 5:
While normally Pamela draws from her photographic memory, today she references a picture of herself at Disneyland to guide her drawing. The face, hair, arms, neck and torso take shape and colour in minutes - but she exercises her artistic licence by replacing the mouth with that of a robot’s.
“Pamela is a silly goose!” announces the 15 year old.
With a few clicks and drags of the mouse, she is transformed into Princess Jasmine from Disney’s Aladdin.
Pam is crazy about Disney.
Her family takes her several times a year and each time they stay at the same hotel in the same room.
Room 178, confirms Pam.
During every visit, she has a growth spurt, says her mom Gail. Her need to communicate is so great that her language skills improve by leaps and bounds.
Go to Artism Today to see a gallery of artists’ work—-more speaking with pictures. Am liking the colors on Trent Altman’s paintings.
Speaking With Pictures
September 25, 2008 by Kristina Chew, PhD
Filed under Art, Books
Drawing pictures has been how Kim Miller, who’s autistic, is able to communicate her feelings, thoughts, fears and more. Now 20 years old, Miller’s pictures are the illustrations for a book about her story by her mother, Eileen, The Girl Who Spoke With Pictures, which is published by Jessica Kingsley Publishers (Oregon). Today’s News-Review features an interview with Kim Miller and her mother:
The dichotomy between Kim in real life and Kim on paper is evident throughout the book.
As Kim grew older, she illustrated the obstacles she faced during her daily routine, such as sensitivity to noise. As a 12-year-old, she created a drawing titled, “Today.” In the picture, she has her hands over her ears, a word bubble from her mouth screams, “I can’t take it!”
The crunch from someone eating cereal was enough to spoil her day.
As Kim got older and her drawings became more elaborate and personal, the family had to search through Kim’s notebooks to find any clues as to what their daughter was feeling.
“You had to dig for it, look for it,” said Eileen. “She wouldn’t just hand it to you. We had to be very active.”
As soon as Kim began drawing about her sensitivity to hearing, Eileen was able to advocate for her. When Kim drew a picture of kids chasing her home from school, Eileen could identify the kids from the details in the picture.
And when Kim’s pictures were heartbreaking —such as the self-portrait of a 13-year-old clutching a blanket, a tear rolling from her eye as she realizes she is autistic — Eileen was able to console her daughter.
She also could use the drawings to Kim’s advantage. Eileen would prepare teachers for the school year with a portfolio of art.
“Kim was afforded opportunity because of her drawings,” said Eileen. “They realized she wasn’t a glass half-empty. She was a glass half-full.”
It’s noted the Kim is able to articulate her “needs through her art”—-”loathing” at the word “retarded”
The Miller family was discovering Kim’s needs through her art.
And for Kim, art was an outlet. She was able to express her loathing of the word “retarded,” or the feeling of rejection. Masks appear frequently in her art:
“One reason is I adore ‘Phantom of the Opera.’ And second, one of the things interesting to me is deception or outward appearances,” said Kim, who added with a smile, “And I like costumey stuff.”
Yet another reason why art class, and art, are essential.
Why Charlie Needs Art Class
September 21, 2008 by Kristina Chew, PhD
Filed under Art, Movies, new york
Something to watch: The September 16th New York Times reports on Reabilities: The First Annual NY Disabilities Film Festival, which will be held from September 21-23. Among the films is Ben X, a Belgian film about an autistic boy who “hides from the harsh reality of being bullied in school by escaping to his favorite online computer game.”
And somethings more on the West Coast: Creativity Explored is a San Francisco-based non-profit visual arts center where “artists with developmental disabilities create, exhibit, and sell art.” Go here to see an online gallery of artwork. The colors and forms on this painting of cakes by Camille Holvoet draw me in.
At Back to School night, Charlie’s teacher had mentioned that she was trying to work out an arrangement with the art teachers. I really hope she can. Just this past summer, Charlie—who’s shown near-zero inclination towards drawing or art—-became interested in making things, in doing art. Creativity can’t go to waste.
Should Only Disabled Actors Be Cast in Disabled Parts?
September 20, 2008 by Kristina Chew, PhD
Filed under Art, Movies
Performing Arts Studio West provides training and management for developmentally disabled individuals. The September 18th KNBC features PASW and some of the actors who train there (with video, too). It’s noted that founder and director John Paizis would “like to see the industry begin to cast disabled actors in non-disabled parts, and PASW will continue to provide training and — perhaps more importantly — encouragement.” A couple of weeks ago, it was announced that actress Claire Danes is to play Temple Grandin in an HBO biopic: But maybe some other actress (an autistic actress?) ought to take the part?
Beyond Eclectic: Art By Autistic Artists
July 23, 2008 by Kristina Chew, PhD
Filed under Art
Getting a little Michael Savage has no idea what he is talking about fatigued? Check out the exhbition of art by artistic artists at dessert’s bar in Kuala Lumpur. It’s called Beyond Eclectic. There’s paintings and ceramics and portraits of each of the artists.
Helping Others Out
July 5, 2008 by Kristina Chew, PhD
Filed under Art
We hear plenty about other people helping out autistic kids—-here’s a story about some autistic children making blankets for children staying at a Rescue Mission in Youngstown, Ohio. So much we—all and any of us—can all do.
Autism is Global, Autism is Local
June 30, 2008 by Kristina Chew, PhD
Filed under Africa, Art, Autism Organizations, China, Education, Family
Autism is a global phenomenon: The Global Autism Project was started five years ago by Molly Ola Pinney of Dublin (NH), after she moved to Ghana to continue caring for a Ghanaian boy she’d met in Seattle while on assignment with the AmeriCorps. According to today’s Sentinel-Source:
“There were only 30 pediatricians and only one was diagnosing autism,” Pinney said. “The others believed the autistic were possessed. … Within months of coming to Ghana, I was being sought out by people with autistic family members. They said they were alone, that they needed help but didn’t know where to find it.”
After launching the Global Autism Project, Pinney partnered with Serway Quaynor, a Ghanaian who’d been teaching her autistic adult son at home because he had nowhere else to go.
In 1998, Quaynor founded the Autism Awareness Care & Training Centre, which filled in a huge gap in Ghana by providing training and educational services to help children with autism function in society.
I met Pinney a couple of years ago (we had both been asked to speak on a panel about autism following a drama festival on neurodiversity). Her Global Autism Project is an example of how, when it comes to assisting autistic individuals, one person’s efforts can make a big difference. We’ve found this out again and again through the many, many teachers, therapists, college students, and others who have spent time with Charlie and who he never forgets.
The Sentinel-Source notes that Pinney was “recently featured in a promotional video for Autism Speaks, the nation’s top private funder for autism research” and an organization that seems to be seeking to, indeed, be a sort of global autism organization, in additional to a national one. You may have heard of the recent disagreement/brouhaha between Autism Speaks and AutismLink, a Pennsylvania autism organization, as noted in a press release:
AutismLink, the largest autism advocacy organization in the State of Pennsylvania, is standing with Governor Edward G. Rendell and Speaker of the House Dennis M. O’Brien in their denouncement of the Senate Autism Bill. The Bill, HB1150, is scheduled for vote today. (The bill passed.) The bill requires insurance companies to cover up to $36,000 of autism-related treatment for individuals less than 21 years old, but was gutted of all useful language by the Senate’s Banking and Insurance Committee, headed byIndiana Senator Don White, a former insurance broker.
“This bill was carefully crafted to end insurance discrimination of children with autism in Pennsylvania,” said Cindy Waeltermann, President of AutismLink and parent of two children with autism. “Those who carefully crafted the bill understand the system inPennsylvania. Although the bill has been endorsed by Autism Speaks,Pennsylvania families of children with autism by and large reject the bill.”
“Make no mistake,” said AutismLink Executive Director and parent of a child with autism, Rick Bryant, “The Autism Speaks team working on this bill is comprised of individuals from New York, California and Maryland and they are completely ignoring the advice and information given to them from Pennsylvania advocates and/or clinicians.”
This particular disagreement points to something that might be noted about autism advocacy and organizations. There’s mission statements and goals, but—for me—autism is, when you get down to it, local. It’s about one person knocking on our door and maintaining the same compassion and composure to teach Charlie to build with legos or put on his socks. It’s about the clerk in the store who says “he sure likes his sushi” and smiles at Charlie, as I tried to pack too many groceries into one bag and hang onto my wallet. It’s about the email his teacher sent me exclaiming over the great time he had at a field trip to a beading shop: Charlie not only made his creation with “speed and accuracy” but “blew everyone away” with its beauty.
Yes, autism is all around the globe and many have needs everywhere, and all the more reason to listen as carefully as one can to what the locals are saying.
Exploring Nirvana
May 29, 2008 by Kristina Chew, PhD
Filed under Art, Books
Exploring Nirvana is the title of a 97-page book of the works of artist Jessica Park of Williamstown, Massachusetts. As noted in The Transcript, the book was just released by the Massachusetts College of Liberal Arts, which gave Park an honorary degree in 2003:
Park’s more recent acrylic paintings are defined by their exact, geometric detail and bright colors. She transforms brownstone buildings by tinting them with rainbow hues.
“The way most people relate to one another, Jessy relates to colors,” said Jane Groden, director of the Groden Center for children and youth with autism, behavioral disorders and developmental disabilities, located in Providence, R.I.
A symptom of autism is restricted and repetitive behavior, which might be one reason why Park’s lines are exceptionally exact in her paintings, Groden said. She said she found Park’s work simply beautiful, however, and credited her mother for encouraging Parks’ talent from an early age.
Park’s mother, Clara Claiborne Park, has written two books about raising an autistic daughter when parents were blamed for “causing” their children to become autistic. You can see examples of Park’s paintings here.
There is something about her use of color and the delicate precision the lines and forms in Park’s paintings that reminds me very much of Charlie and the care that he takes to align objects on the floor and with each other. Even yesterday at the pool, Charlie—after tucking his socks into the backs of his shoes—leaned over and placed them several inches away from the wood bleechers, the heels exactly lined up against the lines between the chipped tiles.
And then he jumped into the pool.
Art from a Pringles Can
May 24, 2008 by Kristina Chew, PhD
Filed under Art, Sports
13-year-old Nicolas Simms of Duluth, Minnesota, crafts tiny replicas of basketball players (Kobe Bryant, LeBron James) out of the foil from Pringles chips cans. Now that’s recycling (”green” art?). Wonder if he’s done J-Mac?
Last Week’s Top Posts
April 26, 2008 by Kristina Chew, PhD
Filed under Art, Autism Organizations, Bike, Cause, Charlisms, Environment, Epidemic, Family, Health, Junk Science, Neuroscience, Parenting, Politics, Psychiatry, Psychology, Science, Stereotypes, Treatment, Vaccines, new york
After a lot of hesitation about riding his new bike, Charlie hoisted himself up, put his left foot on the left pedal, put his right foot on, and zoomed off with Jim easily catching up—that’s the image in my mind after a full week here.
- Parents Going Back to School
Some parents of autistic children are returning to the classroom to study with a view towards helping their kids as they grow up. - We Go to the Met
Charlie and I spend a Saturday in Manhattan. - So Much For Autism Awareness
Robert Goldberg, the vice president of The Center for Medicine in the Public Interest in New York City writes about why Autism Awareness Month has become “not a noble search for a cure, but an annual war on the bookshelves, as scientists and activists - often with no medical proof - battle over lifesaving vaccines.” - Eats, Shops, and Gives…..
Another fund-raising event from mega-autism-organization Autism Speaks. - Mother Guilt Returns
A mother participates in a study on maternal antibodies and worries that she has “brain-eating blood” that “attacked” her son. - Another Way to Access the Candidates: The Vaccine-Autism Question
Senator Obama is quoted at a Pennsylvania rally saying that he is “suspicious” that the “skyrocketing” autism rate might connected to vaccines. - The Case of Hannah Poling Again
From the April 22 Scientific American: ““….. scientifically, from the documents presented in the vaccine court, the Polings did not make a case that deserved compensation.” - Autism and Cancer
To illustrate what some term an “autism epidemic” (including three presidential candidates), people regularly compare the prevalence rate of children diagnosed with autism to that of children diagnosed with childhood cancer (1.5 per 10,000 children) or to the rate of children who have three diseases, “pediatric cancer, diabetes, and AIDS combined.” - Obama and Clinton, Autism and Disability
While the presidential candidates’ views on vaccine and autism have become a sort of barometer for their views on science, it’s necessary also to consider their views on disability—on education, special education, employment, health care—more generally. - Brain Tune-Up
Researchers in the Department of Occupational Therapy and Occupational Science at the University of Missouri are using neurofeedback to “retrain” autistic children’s brains. - Power Plants and Autism Rates in Texas
A study published in the journal Health and Place makes a correlation between rates of autism and the proximity of schools in Texas to power plants. - Politicking, Pandering, and Paranoia
On the paranoid style in American science, in American politics, and discussions about autism.



































