Helping a Friend With a Chronic Illness

Reaction to illness depends on how severe the illness is, how long it lasts, and a variety of other things. Usually, if a good friend is diagnosed with an illness like cancer or has an unexpected surgery, friends come up with plans like helping with meals, transporting kids, and so on. Even the shorter-term illnesses, like pneumonia, are taken carexchng_sick of by people sending chicken soup or bringing you a book to read.

But what happens when someone has a chronic illness, like fibromyalgia or chronic fatigue syndrome? When they’re not always in-your-face ill, but they have times when they feel desperately ill or just too ill to face the world?

xchng_the_deckSince it’s a chronic illness that can literally last a lifetime, what is a well-meaning friend to do?

There’s a great post over at But You Don’t Look Sick. The post offers 36 Easy things that you can do to make the life of your chronically ill friend a bit better .

There are some great suggestions and hopefully you may find something that you feel fits you and your friend just right.

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Images: Stockxchnge.com

National Fibromyalgia Awareness Day

May 12, 2009 by Marijke Durning, RN  
Filed under Diseases & Conditions

I’ve written quite a bit on fibromyalgia and I had featured someone with it in a Company’s Calling piece (Company’s calling - a journey with fibromyalgia ) when I wrote Help My Hurt for this network. I never knew there was a National Fibromyalgia Awareness Day - and I bet many of you didn’t either.

man-holding-calendar_nc1

Fibromyalgia is one of those hidden diseases that is still very much a disease that’s fighting to be recognized (Fibromyalgia debate continues ), which adds to the difficulties faced by those who live with it. They know it’s real - they have to live with its effects on a daily basis. Read more

The Invisible Illness

April 4, 2009 by Guest Blogger  
Filed under Diseases & Conditions

By Guest Blogger Patti G.

I don’t look like there’s anything wrong with me. If you saw me you wouldn’t know that I’m in pain. Everyday activities are challenging and I never know how my body will feel from one day to the next. Simple things, like laundry and dishes, become impossible some days, barely tolerable others.

I live with Fibromyalgia.

back pain

Image: istockphoto

I hurt my back in a fall eleven years ago. For many years I dealt with trying to learn how to live with the chronic pain from it. I tried everything; medication, injections, physical therapy. Nothing helped; my doctors finally told me I’d have to live with it.

About five years ago my pain changed. It moved through my body, it moved beyond my back. It felt all-consuming. Some doctors told me that it was ‘referred’ pain, my back still the cause of it. Others told me that it was in my head.

A move brought a new doctor. One who listened carefully to me, beyond just my medical records. And he was able to diagnose the Fibromyalgia. It was both frightening and a relief. It was nice to have an answer, to know I was right thinking there was something else going on. But it was frightening getting a diagnosis that had no solution. I’m glad it’s not more serious, it’s not life threatening. But it has changed my life.

There are medications out now for Fibromyalgia, unfortunately they didn’t work for me. Over the last couple of years I’ve learned to live with it, gained some coping skills that give me the best chance of functioning as normally as I can.

The most important thing, and the hardest, was accepting it. I hurt and that’s not going to change. I listen to my body, if I push it too far it will be worse. I’ve learned what time of day I feel best and I schedule myself accordingly. I’ve made my surroundings as accommodating as I can–everything from what shelf towels are on to how I sit at my computer.

It’s easiest at home; it gets harder out in public. I don’t look ill and I’m not elderly. It’s hard asking for help lifting things. I’ve gotten more than a few raised eyebrows. I look like I should be able to lift a case of water or put the groceries in the car. I didn’t ask for help for a long time, it felt like giving in to something I didn’t want to admit had so much control over me. I learned the hard way, lifting that case of water made me hurt more. My mind needed to accept it to help my body feel the best it can.

Fibromyalgia is a challenge, but it can be manageable. With acceptance and awareness I function better now than I did when I was first diagnosed. I have good days and bad days, but now I feel like I have some control over all of them.

For further information about Fibromyalgia, check the Mayo Clinic website.

National Invisible Chronic Illness Week Is September 10th Through The 16th.

September 10, 2007 by Kendra James, RN  
Filed under Diseases & Conditions

invisible-illness.gifToday kicks off National Invisible Chronic Illness Awareness Week. It runs September 10th through the 16th. What is an invisible chronic illness? If you have an illness and it can’t be seen from the outside, you have it. That would include diabetes, heart disease, arthritis, autism, chronic fatigue syndrome, fibromyalgia, migraines, chronic back pain, eating disorders, multiple sclerosis and mental illness, just to name a few.

Actually over 95% of chronic illness is invisible. Laura from CFS Squared sent me a link to a great website that is officially hosting an area to come together and “feel that there is someone else that gets it”. Go check out all that it offers including… articles, things to buy, chat rooms and a very funny “10 things not to say to a chronically ill person”.


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