The February 15th issue of the American Journal of Medical Genetics is devoted to children and genetics. My friend Dr. Hsien-Hsien Lei of Eye on DNA highlights articles that, in various ways, are relevant in thinking about a genetic test for autism: Waiving informed consent in newborn screening research; on the ethical implications of including children in a large biobank for genetic-epidemiologic research; on the experiences of young persons regarding predictive genetic testing for Huntington disease (HD) and familial adenomatous polyposis (FAP); and on whether genetic testing for BRCA1/2 should be permitted for minors?.
What will it mean for families and relatives …read more