This was my son.

Dr. Bruce Perry, a Child psychiatrist featured on the Oprah show states that neglect is the absence of necessary stimulation in order to build a certain part of the brain. In order for children to learn, to stimulate areas of their brain they NEED stimulation. Without stimulation they will learn to stimulate them themselves or retract into themselves. Your brain will form differently.

Dr. Federici calls this Institutional Autism in Institutionalized children. But, what about biological children?

Dr. Perry calls this total global neglect.

But, can you make a child autistic by neglecting them so thoroughly because they never, ever come into contact with humans? That they are so globally neglected that they retreat so thoroughly into themselves that they can’t get out.

Can neglect cause mental retardation?

Absolutely.

Danielle, one of Florida’s most shocking cases of neglect was not only malnourished but also so severely neglected that when she was admitted to the hospital for a physical her appearance wasn’t what shocked Dr. Rodriguez most. The most profound effect of her neglect was how she reacted to human beings. “She wouldn’t make eye contact. She frequently pushed us away, kicked us away,” Dr. Rodriguez says. “[She] would snarl at us, frankly. She behaved like an injured animal. We realized the safest place would be one of the caged cribs.”

If there is little or no stimulation, if there is no human contact, if there is nothing there what else is there? Little development. Danielle, at the age of 9 years old, was determined to be 2 months old developmentally. AJ, at his adoption (26 months), was determined to be between 12 and 18 months, depending upon the skill.

Parents are powerful. If you look at this picture (and I am linking to this picture because it is SO extremely important to see) you will see the difference between a normal three year old child and an institutionalized/neglected three year old child. Perry indicates in his interview that the neglect specifically affects sleep, anxiety, and mood regulation, all of which AJ has problems.

So, in our case, is it an issue more with neglect and institutionalism than with medical issues? I am hoping so because I know that children have an opportunity to rebuild some of those synopsis (some) with care.

Yes, back to that nature vs. nurture. Which one wins?

Post from: Blisstree

Oprah, on Neglect

• Sensory and social deprivation can result in the autistic-like behaviors.
• These behaviors may diminish after the child is removed from the initial deprived environment.
• A substantial minority of children will continue to exhibit these difficult behavior patterns for many years.

Risk Factors:
• Heredity and neurological make-up of the adopted child.
• Lack of postnatal care and negative conditions of development before institutionalization.
• Age when placed in an institution and the length of institutionalization.
• Conditions in institution/country of adoption.

Basically, children learn to be autistic because of their experience in the orphanage…stimulating themselves to pass the time or to entertain themselves. In our case, we believe AJ was swaddled for a decent amount of the two years he was there. He was chronically ill will bronchial infections due to an undiagnosed milk intolerance and an oat and banana allergy (the two main foods in his diet there ). Thus, if he was ill he would have either been swaddled and placed on his back in his crib or left to sleep in the playpen off to the side.

Now, if you were 1-2 years old with nothing to do, no toys to play with…what would you do????

AJ learned to play with toys inappropriately (line up and spin all toys because what else can toys do?), poke his eyes, spin in circles, stare out windows, throw monster tantrums at ANY change in movement (if you were in the same place ALL day, would you like to be moved?), stare at lights to keep from sleeping, attentive to every sound (in his crib he could not make eye contact but could hear everything)…I could go on but those are the MAJOR items.

Now, those things have diminished, as have most of his sensory issues. As Federici and Rutter state, most children will recover from Institutional Autism given the right home life. Thank goodness he has been given that.

One thing that we are specifically working on is making sure that AJ has the right resources to improve, not just the “positive dynamic in the child’s development of appropriate behaviors in the family.” If he truly does have organic autism we need to make sure to have him tested on a regular basis. Now that AJ has been home two years and has made some language improvements we need to start chronically his improvements. If he does not make any improvements (or falls behind) we should be looking at organic autism, not just institutional autism.

Post from: Blisstree

Institutional Autism

Because AJ has many signs and symptoms of Institutional Autism we consulted Dr. Federici about two years ago to get his input. We were not able to go visit but instead corresponded via email and received some very valuable information from him.

The conference is held at William Rainey Harper College and sponsored by Adoptive Families Today, Stars of David: A Jewish Adoption Information & Support Network and Families With Children From China.

Post from: Blisstree

Federici and Institutional Autism